Re: Re: Anyone have sinus cysts? + more PKD stuff

[Guest guest]

Jeanine and Haley, amongst many other illnesses and symptoms, they had told me I

have a retention cyst up near the orbital on the bony structure. I was suppose

to see the specialist last week, but with snow had to cancel as it was a 2 1/2

hour drive. I will be seeing him on the 7th of Jan and he understands about

mold victims, because my other doctor referred me to him. One of my many

questions will be, what is in the fluid of this cyst. I am just afraid due to

the types of molds that are airborne here, mucor, aspergillus, pencillium,

rhizopus, cladosporium. no stachy that we know of but this is only in my place,

Testing was done in some others, and other molds like Acremonium,

altrnaria,ulocladium, and non-sporulating fungi. We don't know what is coming

out of the HVAC in hallways, and lobby yet. And yet again we don't know what

mycotoxins are coming out, that still needs to be tested. Darlene

who <jeaninem660@...> wrote: PKD,

genitic? my azzz. oopps. Haley, I have sinus cysts, some are

grape shaped (mucoceles) some may be polops. have you been diagnosed

with vasculitis? small,medium,large vessel. id you have small vessal

you also have medium and large. weither fungal vasculitis or tpxic

vasculitis, same results. blood poisoning and periocide effects

punches holes in the blood vessals, toxin,fungal ,particles leak out

with blood, this is where cysts come from. abcesses,ect. in fluid

granulomas.

>

> Just got the results of a brain MRI and have more cysts than I knew

about previously...

>

> After my mold exposure, I was accidentally diagnosed with

Polycystic Kidney Disease (PKD) from a CT scan of my abdomen looking

at internal hemorrhaging that nearly killed me. I'm confident the

blood issues were mold/mycotoxin related as I had three events in the

two years I lived in that mold pit and I hadn't had any such issues

in the 8 years prior or 3 years since (I'm prone to bleeding issues

since I have an artificial heart valve which requires me to take

bloodthinners). In addition to the cysts in my kidneys, I also have

cysts in my liver, pancreas, spleen and on my spine. I get them

under the skin on my scalp, as well.

>

> PKD is a genetic disease, although we have no known family

history of the disease or of renal issues. I still have about half

of my renal function left, down from three quarters when it was

diagnosed (that is a WEALTH of kidney left, thankfully). The disease

does not progress in everyone, but if it does progress, it leads to

End Stage Renal Disease (ESRD) which is treated with dialysis and/or

kidney transplant. Lovely.

>

> Mr. Haney recently posted the link to the CDC article indicating

that PKD is suspected by some to be triggered by mold/mycotoxin

exposure. Unfortunately, the study authors are pretty much retired

at this point and don't seem to be furthering that study. The

kidneys they worked with had been removed, and since mine are still

operational, I wanted to know if anyone was removing fluid from

intact kidneys - sounds like that hasn't been done. I did get told

someone is looking into the subject a bit at the Dept. of

Aggriculture.

>

> At any rate, if anyone has any special info on the sinus cyst

situation, I'd be interested.

>

> OR if there are any number of *us* with PKD, maybe we could work

as a group to prompt additional studies on the mold connection (I

keep dangling it in front of Dr. Hooper and hoping he'll bite) - I'd

be willing to help write grant applications, although I'll warn folks

that my brain is continuing to deteriorate, it seems. lol.

>

> Merry Christmas,

>

>

> ~Haley

>

>

[Guest guest]

I have heard that sinus cysts may be a sign of aspirin allergy. I had had

surgery on mine to remove bone that grew over the maxiliaries but no cysts even

tho I am allergic to aspirin.

Something to keep in mind,

Alice

who <jeaninem660@...> wrote:

see, someone should want to study on this. instead of harming us

trying to prove it harms us, they could help us and get proof of

exposure from us.

--- In , Darlene

wrote:

>

> Jeanine and Haley, amongst many other illnesses and symptoms, they

had told me I have a retention cyst up near the orbital on the bony

structure. I was suppose to see the specialist last week, but with

snow had to cancel as it was a 2 1/2 hour drive.

---------------------------------

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[Guest guest]

Alice, I do have an allergy to aspirin, but have not used aspirin since I was a

small child. This cyst was never there until recent. Darlene

Alice Frost <alicefrost1947@...> wrote: I

have heard that sinus cysts may be a sign of aspirin allergy. I had had surgery

on mine to remove bone that grew over the maxiliaries but no cysts even tho I am

allergic to aspirin.

Something to keep in mind,

Alice

who <jeaninem660@...> wrote:

see, someone should want to study on this. instead of harming us

trying to prove it harms us, they could help us and get proof of

exposure from us.

>

> Jeanine and Haley, amongst many other illnesses and symptoms, they

had told me I have a retention cyst up near the orbital on the bony

structure. I was suppose to see the specialist last week, but with

snow had to cancel as it was a 2 1/2 hour drive.

---------------------------------

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