Re: Anyone have sinus cysts? + more PKD stuff

[Guest guest]

PKD, genitic? my azzz. oopps. Haley, I have sinus cysts, some are

grape shaped (mucoceles) some may be polops. have you been diagnosed

with vasculitis? small,medium,large vessel. id you have small vessal

you also have medium and large. weither fungal vasculitis or tpxic

vasculitis, same results. blood poisoning and periocide effects

punches holes in the blood vessals, toxin,fungal ,particles leak out

with blood, this is where cysts come from. abcesses,ect. in fluid

granulomas. --- In , Haley <myhaze@...>

wrote:

>

> Just got the results of a brain MRI and have more cysts than I knew

about previously...

>

> After my mold exposure, I was accidentally diagnosed with

Polycystic Kidney Disease (PKD) from a CT scan of my abdomen looking

at internal hemorrhaging that nearly killed me. I'm confident the

blood issues were mold/mycotoxin related as I had three events in the

two years I lived in that mold pit and I hadn't had any such issues

in the 8 years prior or 3 years since (I'm prone to bleeding issues

since I have an artificial heart valve which requires me to take

bloodthinners). In addition to the cysts in my kidneys, I also have

cysts in my liver, pancreas, spleen and on my spine. I get them

under the skin on my scalp, as well.

>

> PKD is a genetic disease, although we have no known family

history of the disease or of renal issues. I still have about half

of my renal function left, down from three quarters when it was

diagnosed (that is a WEALTH of kidney left, thankfully). The disease

does not progress in everyone, but if it does progress, it leads to

End Stage Renal Disease (ESRD) which is treated with dialysis and/or

kidney transplant. Lovely.

>

> Mr. Haney recently posted the link to the CDC article indicating

that PKD is suspected by some to be triggered by mold/mycotoxin

exposure. Unfortunately, the study authors are pretty much retired

at this point and don't seem to be furthering that study. The

kidneys they worked with had been removed, and since mine are still

operational, I wanted to know if anyone was removing fluid from

intact kidneys - sounds like that hasn't been done. I did get told

someone is looking into the subject a bit at the Dept. of

Aggriculture.

>

> At any rate, if anyone has any special info on the sinus cyst

situation, I'd be interested.

>

> OR if there are any number of *us* with PKD, maybe we could work

as a group to prompt additional studies on the mold connection (I

keep dangling it in front of Dr. Hooper and hoping he'll bite) - I'd

be willing to help write grant applications, although I'll warn folks

that my brain is continuing to deteriorate, it seems. lol.

>

> Merry Christmas,

>

>

> ~Haley

>

>

[Guest guest]

see, someone should want to study on this. instead of harming us

trying to prove it harms us, they could help us and get proof of

exposure from us.

> >

> > Just got the results of a brain MRI and have more cysts than I

knew

> about previously...

> >

> > After my mold exposure, I was accidentally diagnosed with

> Polycystic Kidney Disease (PKD) from a CT scan of my abdomen

looking

> at internal hemorrhaging that nearly killed me. I'm confident the

> blood issues were mold/mycotoxin related as I had three events in

the

> two years I lived in that mold pit and I hadn't had any such

issues

> in the 8 years prior or 3 years since (I'm prone to bleeding

issues

> since I have an artificial heart valve which requires me to take

> bloodthinners). In addition to the cysts in my kidneys, I also

have

> cysts in my liver, pancreas, spleen and on my spine. I get them

> under the skin on my scalp, as well.

> >

> > PKD is a genetic disease, although we have no known family

> history of the disease or of renal issues. I still have about

half

> of my renal function left, down from three quarters when it was

> diagnosed (that is a WEALTH of kidney left, thankfully). The

disease

> does not progress in everyone, but if it does progress, it leads

to

> End Stage Renal Disease (ESRD) which is treated with dialysis

and/or

> kidney transplant. Lovely.

> >

> > Mr. Haney recently posted the link to the CDC article

indicating

> that PKD is suspected by some to be triggered by mold/mycotoxin

> exposure. Unfortunately, the study authors are pretty much

retired

> at this point and don't seem to be furthering that study. The

> kidneys they worked with had been removed, and since mine are

still

> operational, I wanted to know if anyone was removing fluid from

> intact kidneys - sounds like that hasn't been done. I did get

told

> someone is looking into the subject a bit at the Dept. of

> Aggriculture.

> >

> > At any rate, if anyone has any special info on the sinus cyst

> situation, I'd be interested.

> >

> > OR if there are any number of *us* with PKD, maybe we could

work

> as a group to prompt additional studies on the mold connection (I

> keep dangling it in front of Dr. Hooper and hoping he'll bite) -

I'd

> be willing to help write grant applications, although I'll warn

folks

> that my brain is continuing to deteriorate, it seems. lol.

> >

> > Merry Christmas,

> >

> >

> > ~Haley

> >

> >

[Guest guest]

some of the symptoms of vasculitis is kudney pain and/or infection,

dead blood vells in urine(neutrophils) and red or purple dirs on eye

lids and/or legs. I had all of these, I think small and medium vessal

show up more in the skin.

>

> see, someone should want to study on this. instead of harming us

> trying to prove it harms us, they could help us and get proof of

> exposure from us.