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Re: When do you start thinking about a NH? P.S.

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When Millie had a UTI and we needed some respite, they put Millie in a nursing

home for several weeks to build her back up, but inside of three weeks they

could not find enough wrong with her to allow her to stay and still get paid by

Medicare. They pretty much said she could not stay unless she were bedbound.

LewyBody was not enough of a dx to allow her to stay. Incontinence, might have

been enough, but not Lewy Body alone.

Had she been on dialysis, or something, we miy have had a chance.

Lewy Body Dementia, in, and of itself, was not enough.

Millie was just too functional. She was stronger than most of the residents.

Even though she was on a dementia ward, they were doing nothing in our favor to

figure out a way for her to stay.

She may not have needed enough services by the home to make her a profitable

candidate. She was too fit to need physical threapy, and she did not need speech

therapy, and the occupational therapist didn't see much she could work

toimprove.

Now, if we were lied to, I didn't know it, but if I requested her to be put in

a nursing home tomorrow, we would probably be shoo-ed off to assisted living.

Just because a family is tired of dealing with the LO, it doesn't merit a bed

in Fort Myers. I suppose we could convince a doctor she is too dangerous, too

violent, and then we might get some help, but medicare, and then medicaid, beds

are very hard to come by in our community.

If Emma ran into any of those roadblocks, I wanted her to be prepared. If

grandma were denied, it would be devastating. I wanted Emma to be have a smooth

admission experience, if need be.

I am sure every state has different rules. Florida is such a huge retirement

mecca, and with all the touristy stuff, we become fairly jaded about a lot of

things.

Remember, I am not long from my own father's stroke and 5 1/2 weeks of

industrial strength caregiving.

If no one has any problems anywhere else, then it's all gravy. If they run

into roadblocks, they will know they are not alone.

So, there's my take!

Carol

---------------------------------

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Yep! You understand it completely! We weren't fully aware of all the

in's and out's and we had Millie transported by ambulance after 2 cop

cars, a fire truck and an ambulance were all parked in our yard.

Her psychiatrist ended up calling the sheriff and insisted that if

the ambulance would not take her, the deputy was to deliver Millie to

the hospital himself in the squad car.

Medics didn't want to take her because she knew she was in her yard,

the day of the week, and her name! This was the day she came after

us with a board and was threatening to kill all of us, and the

bastard dogs.

Had we tried to transport, she could have easily broken a wrist, hip,

or arm if we tried to force her into the car.

Other than that, Mrs.Lincoln, how did you enjoy the play?

Carol

>

> > When Millie had a UTI and we needed some respite,

> > they put Millie in a nursing home for several weeks

> > to build her back up, but inside of three weeks they

> > could not find enough wrong with her to allow her to

> > stay and still get paid by Medicare. They pretty

> > much said she could not stay unless she were

> > bedbound.

> >

> > LewyBody was not enough of a dx to allow her to

> > stay. Incontinence, might have been enough, but not

> > Lewy Body alone.

> > Had she been on dialysis, or something, we miy

> > have had a chance.

> > Lewy Body Dementia, in, and of itself, was not

> > enough.

> >

> > Millie was just too functional. She was stronger

> > than most of the residents. Even though she was on

> > a dementia ward, they were doing nothing in our

> > favor to figure out a way for her to stay.

> >

> > She may not have needed enough services by the

> > home to make her a profitable candidate. She was too

> > fit to need physical threapy, and she did not need

> > speech therapy, and the occupational therapist

> > didn't see much she could work toimprove.

> >

> > Now, if we were lied to, I didn't know it, but if

> > I requested her to be put in a nursing home

> > tomorrow, we would probably be shoo-ed off to

> > assisted living.

> >

> > Just because a family is tired of dealing with the

> > LO, it doesn't merit a bed in Fort Myers. I suppose

> > we could convince a doctor she is too dangerous, too

> > violent, and then we might get some help, but

> > medicare, and then medicaid, beds are very hard to

> > come by in our community.

> >

> > If Emma ran into any of those roadblocks, I wanted

> > her to be prepared. If grandma were denied, it

> > would be devastating. I wanted Emma to be have a

> > smooth admission experience, if need be.

> >

> > I am sure every state has different rules.

> > Florida is such a huge retirement mecca, and with

> > all the touristy stuff, we become fairly jaded about

> > a lot of things.

> >

> > Remember, I am not long from my own father's

> > stroke and 5 1/2 weeks of industrial strength

> > caregiving.

> >

> > If no one has any problems anywhere else, then

> > it's all gravy. If they run into roadblocks, they

> > will know they are not alone.

> >

> > So, there's my take!

> >

> > Carol

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them

> > fast with Yahoo! Search.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

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> know-it-all with Yahoo! Mobile. Try it now.

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Medicare only pays for a very short time while a person is receiving

skilled care or rehab to return home (and this requires a 3 night

stay in a hospital prior to admittance). Medicare doesn't pay for

long term care...that is where medicaid comes in if you qualify.

Otherwise, nursing facilities are private pay or insurance, if you

have it.

After my Dad was in the hospital, displaying the confusion/delirium

that accompanied the hospital stay, the doctor would not release him

for home without 24 hour care. So we did the rehab route in the

nursing home. The doctor said that would give him the best chance to

rehab enough to be accepted by an assisted living facility.

(Assisted living facilities have the right to reject a person if they

believe they can not handle them or will be a problem with the other

residents.)

We had a brief two week stay at an assisted living, with several

reports to the doctor for behavioral issues. Then another medical

condition landed my dad back at the hospital then back to a nursing

facility for rehab. Hospital setting ( & the drugs they give in an

attempt to " adjust " behavior (before we suspected LBD) caused my dad

to " appear " bedbound on admission. In that state, the rehab they

attempt to give is pretty futile, so he came off Medicare within 3

weeks. At that point, we did not have any issues with him remaining

to live in the NH. He is not bedbound nor does he really require any

skilled nursing (just custodial care...requires assistance with all

ADL's).

So in our case, we knew it was time based on doctors input and

unwillingness of assisted living facilities to accept my dad.

That is how it worked for us...everyone's story is different.

Daughter of Bill, 92

>

> When Millie had a UTI and we needed some respite, they put Millie

in a nursing home for several weeks to build her back up, but inside

of three weeks they could not find enough wrong with her to allow her

to stay and still get paid by Medicare. They pretty much said she

could not stay unless she were bedbound.

>

> LewyBody was not enough of a dx to allow her to stay.

Incontinence, might have been enough, but not Lewy Body alone.

> Had she been on dialysis, or something, we miy have had a chance.

> Lewy Body Dementia, in, and of itself, was not enough.

>

> Millie was just too functional. She was stronger than most of

the residents. Even though she was on a dementia ward, they were

doing nothing in our favor to figure out a way for her to stay.

>

> She may not have needed enough services by the home to make her a

profitable candidate. She was too fit to need physical threapy, and

she did not need speech therapy, and the occupational therapist

didn't see much she could work toimprove.

>

> Now, if we were lied to, I didn't know it, but if I requested her

to be put in a nursing home tomorrow, we would probably be shoo-ed

off to assisted living.

>

> Just because a family is tired of dealing with the LO, it doesn't

merit a bed in Fort Myers. I suppose we could convince a doctor she

is too dangerous, too violent, and then we might get some help, but

medicare, and then medicaid, beds are very hard to come by in our

community.

>

> If Emma ran into any of those roadblocks, I wanted her to be

prepared. If grandma were denied, it would be devastating. I wanted

Emma to be have a smooth admission experience, if need be.

>

> I am sure every state has different rules. Florida is such a

huge retirement mecca, and with all the touristy stuff, we become

fairly jaded about a lot of things.

>

> Remember, I am not long from my own father's stroke and 5 1/2

weeks of industrial strength caregiving.

>

> If no one has any problems anywhere else, then it's all gravy.

If they run into roadblocks, they will know they are not alone.

>

> So, there's my take!

>

> Carol

>

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo!

Search.

>

>

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