How many here have Fibromyalgia and Chronic Fatigue as I have?

[Guest guest]

I read some of the postsd and wonder about this?

deLadyBex

[Guest guest]

I do.

Barth

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c> I read some of the postsd and wonder about this?

c> deLadyBex

[Guest guest]

I have also been diagnosed with Fibromyalgia and Chronic Fatigue some years

back and had suffered from the maladies for many years before diagnosis.

I used to love massages and that part of a pedicure when your feet and legs

get massaged. At some point, I just started going through the roof when

anyone came near me for massage and had no idea what was going on. This

continues to this day.

On the issue of chronic fatigue, when I worked in Boston City Hall, I used

to go down to the nurse's office in the basement to lie down on the cot to

sleep or I would just close the door to the inner office and go down on the rug

to sleep. Little did I know that under that carpet was an entire biology lab

of micro-organisms there growing with impunity because of the chronic

leaking in the office. So many times I would drive to the supermarket after

work

and just turn around and go home because I couldn't find the energy to get out

of the car. On many occasions, I would sit in my car outside the house

because I just couldn't get out of the car because of the crushing fatigue.

Mulvey son

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[Guest guest]

I was diagnosed with it recently... which I might add I DID NOT have it

untill AFTER my ongoing chronic exposure to MOLD!

--- In , " ccgardenlady " <ccgardenlady@...>

wrote:

>

> I read some of the postsd and wonder about this?

> deLadyBex

>

[Guest guest]

Good description: crushing fatigue. There was a time when I could

barely do my grocery shopping in one store. Now I'm able to go to a

few stores, but it's still difficult to get through it all. So hard to

explain to friends and family.

Barth

Mac> On the issue of chronic fatigue, when I worked in Boston City Hall, I used

Mac> to go down to the nurse's office in the basement to lie down on the cot to

Mac> sleep or I would just close the door to the inner office and go down on

the rug

Mac> to sleep. Little did I know that under that carpet was an entire biology

lab

Mac> of micro-organisms there growing with impunity because of the chronic

Mac> leaking in the office. So many times I would drive to the supermarket

after work

Mac> and just turn around and go home because I couldn't find the energy to get

out

Mac> of the car. On many occasions, I would sit in my car outside the house

Mac> because I just couldn't get out of the car because of the crushing

fatigue.

Mac> Mulvey son

[Guest guest]

I have had chronic fatigue syndrome since 1983 even before much was

know about it. My college roommate smoked like a chimney in my dorm

room and as a result, I ended up getting bacterial pneumonia. I

remember all my neighbors spraying lysol every where I went because

they know I was contagious. It was a few months later, I was

diagnosed with chronic fatigue syndrome.

From there as the years went by I had relapses. The first about 2

years after the first episode. I was fine one day and the next could

not go up a flight of stairs. The nurse about fainted when my blood

pressure was 45 over 60. She tooks it 2 times and then the doc came

in and took it -- they were shocked to see that I could even move

let alone get myself to the student health center.

As I am sure some of you are aware...they now believe there is a

close relationship between PTSD and chronic fatigue syndome and

fibromyalgia. I had been diagnosed with PTSD after an emotional

trauma and physical trauma of a car accident.

I recently had an extreme chemical exposure and have symptoms of

chronic fatigue and PTSD. However, my diagnosis of multiple chemical

sensitivities did not develop until after I was put on Lexipro and

then Effexor ---both of which are mood-altering drugs. And yes, they

did alter my mood and my body's tolerance for anything else. If I

could tell or warn you about anything, if you have been diagnosed

with any of the above, note how your body reacts to mood altering

drugs like Paxil, Prozac, Lexipro, Effexor, Wellbutrin. Most of them

are being used off-label and please read the lessor known side

effects that are listed in lessor known published data. Incidentally,

the symptoms for which the drugs were described to me including PTSD,

nightmares and insomnia got worse the longer I took them. After 8

months of continuing to tell my doctor something was wrong, I begin

to have peripheral neuropathy and blood sugar regulation issues and I

am now border-line diabetic. I then then started turning yellow from

liver jaundice and again knew something was wrong. After my doctor

brushed the " turning yellow " part aside, I changed doctors. Before

that, I finally figured out it was the Effexor that was inciting very

harmful liver activity. The only other time I experienced the

neuropathy is when I was being exposed (and I mean up close and

personal ) to the dangerous chemicals that I was inhaling but mostly

could not smell. I am now so sensitive that even the slightest

esposure to VOCs in the air, chemicals in the water, etc. makes me

react.

So yes, I have chronic fatigue syndrome, PTSD and multiple chemical

sensitivities. I probably have fibromyalgia too considering the joint

pain and the muscle tension, but have never gotten the specific

diagnosis.

Sincerely,

Kramer

kkramer@...

Health Education Information and Resource Services

> >

> > I read some of the postsd and wonder about this?

> > deLadyBex

> >

>

[Guest guest]

Yes, I have been diagnosed with Chronic Fatigue Syndrome, PTSD and

Fibromyalgia, many years ago as well, before I had a serious exposure to

mold (that I know of), but had been exposed to many dangerous chemilcals

while working at Aircraft. I probably developed those illnesses

because of the chemicals that I was exposed to (one of them was Methelethel

Ketones " MEK " ). I wonder if maybe those of us whom have these illnesses

also have more of a propensity to develope sensitivities to mold and

mycotoxins???? So, that when we are around mold/mycotoxins we are more

suseptable to it than the general public. Oh, and I too have been having

problems with UTI's and bladder infections... and my stomach is very

swollen.

Just a thought....

On Jan 6, 2008 3:50 PM, ccgardenlady <ccgardenlady@...> wrote:

> I read some of the postsd and wonder about this?

> deLadyBex

>

>

>

[Guest guest]

a toxin is a toxin. these are all regulated by brain effects. a mold

spore without myco's inside or attached is probably pretty harmless.

I really dought that a mold spore would even be pathogenic without

those myco's envolved or other toxins in a DMB. we live are life

around mold, our mucus systems are designed to protect us. it is the

constant insult of toxins that get us in trouble. without the toxins

involved, none of us would be here. if you are hyper-reactive to mold

it's the toxins that your reactive to. not the mold spore itself.

a toxin is a toxin. once you get olfactory,neuron transmission

defects,ect. and brain damage from toxins, you react to toxins.

once those pathways have been made and become fibrotic, they are

pathways for other toxins to follow. thus, affecting many of the same

organs that were damaged during exposure and depending on the type of

toxin and it's effects and dosage. that's why with mcs you can hace a

range of effects depending on all these things.plus effects from

other things that are just irritants to damaged airways.like dust,cat

hair,pollen,ect. doesn't mean your allergic to it.

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> > I read some of the postsd and wonder about this?

> > deLadyBex

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