Re: Re: Advocacy & our Legislators

[Guest guest]

Hey All,

Those are some great points. Someone indeed needs to organize something to

this effect. It takes a tremendous amount of time and effort. We have done

this in the past. Went to DC collectively in the summer of 2004.

A lot has changed since then. I think the timing is good for another mass

effort. The message that we need to get out is that we are sick beyond simple

allergy. Teach the doctors how to recognize, diagnose and treat mycotic

diseases.

I would love to work on a effort like this, but I am already dancing as fast

as I can. If someone wants to take control of organizing a fax/letter

writing/phone in campaign week. I would definitely help as much as I could.

Sharon K

In a message dated 1/12/2008 3:05:05 P.M. Pacific Standard Time,

happyru@... writes:

great idea and I'll volounteer!

[Guest guest]

In a message dated 1/14/2008 9:26:17 A.M. Pacific Standard Time,

myhaze@... writes:

Sharon, is there a well-enough regarded study out there that more accurately

reflects the range of our illnesses?

If I can get a handle on this, I'd be glad to pitch in. Was just thinking it

might be nice to have sort of an organizing document to which we can all

relate our stories.

~Haley

Haley,

Don't think there is a one size fits all study. Dr. Thrasher has a pretty

good one that was published in Mold Columns.

Sharon

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[Guest guest]

Sharon, is there a well-enough regarded study out there that more accurately

reflects the range of our illnesses?

If I can get a handle on this, I'd be glad to pitch in. Was just thinking it

might be nice to have sort of an organizing document to which we can all relate

our stories.

~Haley

snk1955@... wrote:

Hey All,

Those are some great points. Someone indeed needs to organize something to

this effect. It takes a tremendous amount of time and effort. We have done

this in the past. Went to DC collectively in the summer of 2004.

A lot has changed since then. I think the timing is good for another mass

effort. The message that we need to get out is that we are sick beyond simple

allergy. Teach the doctors how to recognize, diagnose and treat mycotic

diseases.

I would love to work on a effort like this, but I am already dancing as fast

as I can. If someone wants to take control of organizing a fax/letter

writing/phone in campaign week. I would definitely help as much as I could.

Sharon K

In a message dated 1/12/2008 3:05:05 P.M. Pacific Standard Time,

happyru@... writes:

great idea and I'll volounteer!

~Haley

[Guest guest]

I'm very sorry, I meant " Dr Thrasher "

[Guest guest]

There are some good studies in Dr. Straus's book " Sick Building

Syndrome " one I think has Dr. Trasher as one of its co-authors.

Also, Dr. Kilburn has several papers that examine the patterns of

neurological impairments he has recorded in people like us and shows

how consistent they are.