Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 Okay, !! Send me your address on my email & I will send you a picture or 2 okay? Thanks a bunch! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 --- Agaw12577@... wrote: > who is behind because her phone line was > down all day yesterday! > Ugh! Oh, that's why you didn't give me a buzz ;o)!!!!!! Sandie, Tae and Bo who got new clothes yesterday--thx UPS guy )!!!! ===== " The task ahead of us is never as great as the power behind us. " " Faith is the daring of the soul to go farther than it can see. " " Act as if it were impossible to fail. " " There are no shortcuts to anyplace worth going. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 I wanted to bring up something that happened in the rare gentic's group I belong too. A picture of a young girl was taken from that web-site and used to make a video for a shcool project about Triple X syndrome. The video was then posted on YouTube. I watched the video and did not find it offensive but it was done without the young girls parents permission. I do not have any picture of Isabella on this site so I am not worried about her image being taken. I think I must be illerate when it comes to this type of thing. I did not even know you could take an image from a web-site and use it. The parents in that group are very up set and understandablly so. My question is are our picture on the mds site protected so people can not do this? ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 IMDSA considers our member's privacy very important! That is why we screen each person who wishes to enter our support group and often deny entry if we do not have sufficiant information from the person. So...any photos on the support group are only seen by others on this support group and are protected from outside viewers. The photo albulm that we have on our website is password protected and the ONLY people who have access to that password are those on THIS support group. When IMDSA uses a person's picture for advertising or promotional reasons, the family must sign a consent form before the picture is used. Currently, the only pictures that are viewable to others on the internet are our Feature Child of the Month and our conference pictures (which were agreed upon to use when people registered for the conference) So...don't worry Sue. We do our very best to keep everything as private and secure as possible. I am sure if someone tried hard enough, they could get the pictures, but they would have to be very determined to do so and most are not that eager to get pictures of kids with MDS. Kristy Sue wrote: I wanted to bring up something that happened in the rare gentic's group I belong too. A picture of a young girl was taken from that web-site and used to make a video for a shcool project about Triple X syndrome. The video was then posted on YouTube. I watched the video and did not find it offensive but it was done without the young girls parents permission. I do not have any picture of Isabella on this site so I am not worried about her image being taken. I think I must be illerate when it comes to this type of thing. I did not even know you could take an image from a web-site and use it. The parents in that group are very up set and understandablly so. My question is are our picture on the mds site protected so people can not do this? __________________________________________________________ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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