Guess I should introduce myself.

[Guest guest]

Hello,

I recently joined the IMDSA board as the State Representative for

Michigan, and would like to take a moment and introduce myself. I

am the mother of four beautiful children. Each with its own unique

talent and personality. Laila is 14(she was born with a bilateral

cleft lip and palate), is 13, Tahiz is 8 and Aniza is 21

months old(she has MDS). I am married to Ramon who is a wonderful

husband and support. We live in Grand Blanc Michigan, where I am a

stay at home mom for the most part. My husband works in

manufacturing.

I was so excited at the opportunity to be the state rep. There is

so much that can be done and I have so many ideas on how to do

wonderful things for our children and families. You will be hearing

from me quite often as I plan to organize events, provide

information and get to know the wonderful families that have been

the chosen few to have a child with MDS. There are so many

resources out there and so many opportunities to continue to grow as

a family. Because we are a family, a family of individuals chosen

to be blessed by our children. I will always be available to

provide support, information, resources and to just be a friend.

We are working on putting together a monthly meeting for our

families where we can get together for support and to meet other

families. Please feel free to send us your ideas. Also, please

email me and tell me a little about yourselves and your children.

your experiences with your child and any questions that you might

have.

I am really honored to be a part of this organization and to be able

to provide you with support, love and guidance. I hope to hear from

you soon. Thank you for your time.

Sincerely

Linette