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Re: Update and re-intro and typo...

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...that was supposed to say girl..not firls..my haste will get

the best of me...Les

> >

> > I am so glad to see a post from you. Just a couple of days ago,

I

> was wondering about Sydney. I remembered when you originally

posted

> that she had leukemia and I said a little prayer for her and for

> you. Isn't it amazing how God works? He put Sydney in my mind and

> heart and then you posted an update!

> >

> > A.

> > Special Educator

> > Simon Kenton HS

> > 11132 Madison Pk.

> > Independence, KY 41051

> > (859)960-0348

> > cynthia.jones@

> >

> > ________________________________

> >

> > From: MosaicDS on behalf of lesliebarrette

> > Sent: Sun 1/20/2008 8:17 AM

> > To: MosaicDS

> > Subject: Update and re-intro

> >

> >

> >

> > Hi...I am Sampson Barrette CN, Mom to Sdyney 4 1/2 (mds),

> > Zach 19 and kerry-lee 2w1. I have been a member of this group

since

> > 2004..I think :^)! I have taken a hiatus from posting due to the

> > demands of lfe and I think that life will just be demanding no

> matter

> > what! I want to say welcome to all th new members and hello again

> to

> > all of you who have known me and Syd for some time.

> >

> > Sydney is about to start pre-K for the first time on Tuesday. WE

> are

> > very thrilled, but not as excited as she is. She is very social

and

> > very bright! She has a vocabulary of over 2000 words, has

> > expressions that make us luagh for days, and always knows what

> > something is even if we think she would not...like a Platypus!

> >

> > As many of you know, this syndrome can bring with health

> > risks...digestive concerns, heart defects, and risks of getting

> other

> > serious things such as diabetes and Leukemia. Well, on Auguswt

22,

> > 2005, Syd was diagnosed with Acute lymphocytic Leukemia and on

> > October 9, 2007 she finished her 2 month nearly 800 days of chem

> > everyday protocal! She is doing quite well and finally herhair

> > isstarting to return! She has courage, will power, and feist like

> no

> > one I have ever known. In spiote of this obstacle she has

continued

> > to develop, learn and amaze us. Heck..she even knows the capitals

> of

> > all the states on the Eastern seaboard! Of..she is our love and

> > pride and joy.

> >

> > In October my mom(82) became to decline health wise. She had been

> > living with us and I was her primary caretaker 24/7 AS you can

> > imagine, the emotions and demands of taking care of both Sydney

and

> > hmy mom were huge, but somehow we find that we have amazing

> strength

> > when we need them and reaching down to those proverbial

bootstraps

> > allows us to keep going. My mm passed last year on March 20th...3

> > days after Syd's 4th birthdy. She was never able to say good bye,

> > but oftem in a strange and unexplainable way, Syd will

> say " Oop..It's

> > Grammy! " so we just say " Hi " and don;'t ask.

> >

> > Also, in January of 2007, I began graduate school for a masters

in

> > Human Services with a specializaiton in Mental health Counseling.

I

> > would liekt o be able to help families deal witht he unepected

> events

> > that can alter life but teach them it does not have to destroy

life!

> >

> > So..Now as I amwell into my second year of school, Syd about to

go

> > off to pre-K and My older daughter Kerry about to graduate from

> Iona

> > College in NY this may..we are at turning points in our lives

that

> > offer us much promise. It is important tonot worry too much about

> > the fuuture and live every day to its fullest.

> >

> > My husband still sdtruggles with depression since the birth od

> > Sydney. He always says he just feels bad for her. My resposne is

> > always.. " WHY! " She is happy, energetic (much more thatn wwe could

> > ever be), curious, imaginative, loves to learn, loves people,

loves

> > life..and well the list just goes on and onint he postive side!

> > Turly the only qulaity Sydney has that may get the best of her is

> her

> > stubbornness..but I truly think tthat that served her quite wellt

> > hrou out all of her treatment.

> >

> > Thanks so much to all of you hwho sent Sydney gifts and very

kidna

> nd

> > thoughtful cards and messages. WE will never forget how amazingly

> > understanding and compasisnate you allwere. Thge support came

from

> > al over the world

> > !..and almost instantly as soon as I posted the news.

> >

> > I will tell youthis. Treat these kids with dignity, expect great

> > things from them..and let them fly..give them room to explore and

> > figure things out..because they will.

> >

> > Life IS good and is full of wondre and great people. If you

beleive

> > that youwill draw good htings to you. Sydney is my treasure..my

> > wonderful unexpected treasure who has taught me that the

obstacles

> > are there to overcome and when the bumps are absent for a while

> then

> > it is time to take a great big deep breath and know that the next

> > obstacle will be surmountable too.

> >

> > Our new motto from this year is " It will be ok no matter what! "

> >

> > Ilove tot alk about Sydney and all the things she does that they

> told

> > me she would not do..in fact I wonder who the heck they were

> talking

> > about that day...6 hour after she was born. She has gone above

and

> > beyond it all and she is only 4 1/2...imagine what is in

store?!?!?

> >

> > I am a certified Nurtitionist. If any of you have quesitons about

> > anything concerning your child's diet, you may email me at

anytime

> > and I will get back to you.

> >

> > By the way..I live in HAverhill MAssachusetts...and we have a

bunch

> > of snow here and today it is 25 degrees out..time to put the

skates

> > on!

> >

> > Much love and admiration for all of you....and thank you for

> sticking

> > by us.

> >

> > xoxox

> >

> >

> >

> >

> >

> >

> >

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