Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Welcome to all of the new families! We are so glad that you found us!! I am Lipscomb Sund, the research chairperson for the IMDSA. We are doing all that we can to recruit families and researchers for studies on Down syndrome/ mosaic Down syndrome. I realize that it may be too soon to even think about getting your child and your family involved in a research project but I wanted to let you know that I am here if you have any questions, thoughts, or ideas on mosaic Ds research Sincerely, Lipscomb Sund IMDSA Research Chairperson Graduate Student Genetic Counseling Molecular and Developmental Biology Cincinnati Children's Hospital Medical Center University of Cincinnati > Hi Everyone > We have a new family joining us today. Here is what they had to say... > > My daughter is 2 weeks old and has been diagnosed with mosaic Down > syndrome. > > Congratulations on your new baby girl! Please tell us all about her and > yourself. Where do you live? We may have a family in your area. I am sure > you are full of questions right now and probably feeling a bit of shock with > this news for your new baby. We are here for you! Each of us has received > the MDS diagnosis at one time for our child, so we do understand how that > feels. The good news is, the shock does wear off and is replaced with > strength and love. > > Please feel free to ask any questions you may have here. No question is a > dumb question and we will all be very happy to share our experiences with > you. > > I look forward to hearing more about you and your family. > Kristy Colvin > IMDSA President > Mom to Arron 26, 22, Tim 21 MDS, Stevan 20 and Garrett 11 > www.imdsa.com > > Quote Link to comment Share on other sites More sharing options...
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