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Carol.

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Hi Carol-

How was the first day back at school? So sorry I didn't

get to ask earlier.

I assume you are fast asleep so you can get up and enjoy

another day at school.

I missed you here today and thought of you all day long.

Wondered if there were some way I could kiss a manatee

and try to tell about it. They just don't come around in the

snow.

Hoping you get out manatee searching soon!

Hugs and lots of prayers-

Sandie

Des Moines, IA

dad, Merle, passed away from LBD 9-20-02, age 65

mum, Jo, (MIL) passed away from LBD 4-29-07, age 78

-- Re: When do you start thinking about a NH? P.S.

Yep! You understand it completely! We weren't fully aware of all the

in's and out's and we had Millie transported by ambulance after 2 cop

cars, a fire truck and an ambulance were all parked in our yard.

Her psychiatrist ended up calling the sheriff and insisted that if

the ambulance would not take her, the deputy was to deliver Millie to

the hospital himself in the squad car.

Medics didn't want to take her because she knew she was in her yard,

the day of the week, and her name! This was the day she came after

us with a board and was threatening to kill all of us, and the

bastard dogs.

Had we tried to transport, she could have easily broken a wrist, hip,

or arm if we tried to force her into the car.

Other than that, Mrs.Lincoln, how did you enjoy the play?

Carol

>

> > When Millie had a UTI and we needed some respite,

> > they put Millie in a nursing home for several weeks

> > to build her back up, but inside of three weeks they

> > could not find enough wrong with her to allow her to

> > stay and still get paid by Medicare. They pretty

> > much said she could not stay unless she were

> > bedbound.

> >

> > LewyBody was not enough of a dx to allow her to

> > stay. Incontinence, might have been enough, but not

> > Lewy Body alone.

> > Had she been on dialysis, or something, we miy

> > have had a chance.

> > Lewy Body Dementia, in, and of itself, was not

> > enough.

> >

> > Millie was just too functional. She was stronger

> > than most of the residents. Even though she was on

> > a dementia ward, they were doing nothing in our

> > favor to figure out a way for her to stay.

> >

> > She may not have needed enough services by the

> > home to make her a profitable candidate. She was too

> > fit to need physical threapy, and she did not need

> > speech therapy, and the occupational therapist

> > didn't see much she could work toimprove.

> >

> > Now, if we were lied to, I didn't know it, but if

> > I requested her to be put in a nursing home

> > tomorrow, we would probably be shoo-ed off to

> > assisted living.

> >

> > Just because a family is tired of dealing with the

> > LO, it doesn't merit a bed in Fort Myers. I suppose

> > we could convince a doctor she is too dangerous, too

> > violent, and then we might get some help, but

> > medicare, and then medicaid, beds are very hard to

> > come by in our community.

> >

> > If Emma ran into any of those roadblocks, I wanted

> > her to be prepared. If grandma were denied, it

> > would be devastating. I wanted Emma to be have a

> > smooth admission experience, if need be.

> >

> > I am sure every state has different rules.

> > Florida is such a huge retirement mecca, and with

> > all the touristy stuff, we become fairly jaded about

> > a lot of things.

> >

> > Remember, I am not long from my own father's

> > stroke and 5 1/2 weeks of industrial strength

> > caregiving.

> >

> > If no one has any problems anywhere else, then

> > it's all gravy. If they run into roadblocks, they

> > will know they are not alone.

> >

> > So, there's my take!

> >

> > Carol

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them

> > fast with Yahoo! Search.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

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>

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