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Emma

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Hi Emma-

Thank goodness this is working out with an aid coming in.

You have done such hard work in getting this in place with

both phone calls and the emotional side with your mom.

This proves you are a very strong person.

Please keep us posted. Best wishes to you and your

upcoming free time.

Many heartfelt hugs-

Sandie

Des Moines, IA

dad, Merle, passed away from LBD 9-20-02, age 65

mum, Jo, (MIL) passed away from LBD 4-29-07, age 78

-- Re: When do you start thinking about a NH?

Carol/June.

Hi all,

Sorry I haven't been responding much the last day or

two. I HAVE been reading all of your posts and advice

but I just didn't have anything good to say and was

starting to feel like I abuse all of your niceness

with my whining. ;-)

We have at least a temporary solution now, after a

fashion. I will be physically here 7am-3pm Sunday

thru Friday and will be on-call (as usual) the rest of

the time, an aid will be here 7:30am-2pm on Saturdays,

and that same aid will start doing overnights 11pm-7am

Sunday thru Thursday so Bob and I can sleep without

one ear open.

Mom and I talked about this when she came over on

Sunday to snipe at me but apparently we were having 2

different conversations. When I got down to business

making phone calls yesterday and got all of this set

up she got angry at me again because apparently I

wasn't doing what she wanted me to. I got a lot of

" someone to stay FIVE nights?? Thats too expensive!

Why would you do that? What about X, Y, Z??!! " All

stuff we had already discussed! Yes, an aid that much

is not cheap but its not like Grandma is destitute!

The woman has $25,000 in ONE checking account alone!

That doesn't take in her several savings accounts and

all her investments. AND the more we search the more

bank accounts we have found that she never told anyone

about. I don't think she's a millionaire but its

looking like she's damn close and there os still more

coming INTO her checking account each month than is

getting spent. I think we're doing ok with the money.

Not that I want to spend all her money away but if

thats what it takes to keep her at home like my mom is

so vehement about than thats what it takes! A few

hours after all this I got an email she sent to my

uncles filling them in on things and of course she

made it sound like it was all her idea and she did all

the work to make it happen and she is SOOOOOOOOOO

exhausted and stressed out. Cute how she jumps all

over me initially then realizes what I did was the

right thing and takes all the credit.

Jan, you are right that my mother " taking care " of my

step-dad doesn't involve all that much actual care.

The only " more work " than usual factor with him is

that he is on a low bacteria diet so they have to get

a little creative with the grocery shopping and he

can't eat leftovers if they've been around more than

24 hours so there has to be a " real " cooked dinner

every night. Otherwise he is pretty capable of taking

care of himself and except for a minor bit of

" chemo-brain " he is mentally very capable. Mostly

that just seems to effect his reading. He can't focus

enough to read a book so he watches a lot of TV

instead. He also can't leave the house to go out into

the big germy world just yet. So mostly her care of

him is just her worrying.

I need to get over my own need to protect her. She

doesn't handle emotional stress well and starts doing

stupid things (like drinking) when she has too much to

deal with. Thats why I am where I am. Having had to

" take care " of alcoholic parents when I was young

turned me into the caregiver I am and I can't seem to

shake that role when it comes to her. And now she

expects it of me.

Sorry I don't have more good things to say. I'm so

glad that I can keep telling all of you all of this

and I know you don't think I'm exaggerating or being

dramatic like my family seems to. I wish I could make

them understand they way you all do. But I suppose

the only way for me to do that would be for me to

leave and MAKE them try to do what I do. ;-)

Emma

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