Still need more information this weekend

[Guest guest]

Thanks for your replys. The latest is Dr. is still pushing for a

locked unit for this resident. Oh and low and behold I just asked the

nurse today and he did have a U.T.I. This could have been the reason

for the violent episode also. I am still looking for info. on the good

meds bad meds list. Can anyone direct me to this site. Now the Hosp.

has informed family that no locked units are avaialble locally and they

might have to place him more than 100 miles away from family. What

next? I went to see him today and my resident gave me the biggest hug

with tears in his eyes and told me he was so sorry for the episode. I

told him he neednt worry it was not his fault. The hug was worth all I

and the family are fighting for. It just breaks your heart to see them

so out of controll and so remorseful. We meet with the Dr. tomm. but I

doubt we can change his mind and he still will not release him to my

private home. We asked for a second opinion and the Dr. we sought does

not practice at that hosp. We are up against a brick wall.

Caregiver in Colorado.

[Guest guest]

First, welcome to the site. I won't add any advice,

because you already have gotten some good advice.

Does this person have a relative or someone with POA

that determines what and where his medical needs will

be met? Otherwise, I don't think a hospital can keep

him or direct where he is to go if there is someone

who is responsible for him. You might check with an

ombusdman for elderly care. Where in Colorado are

you? Are you close to Denver? If so, I would think

there might be one there. In years past, a doctor

could determine what happened to a patient, but I

believe now the patient themselves (if able) can

determine what medical care s/he receives, and if not,

the closest family member or someone with a POA

determines the outcome. You do mention family, so I

assume he has some family members there.

As for the list of meds, go to the bottom of the posts

and click on Files. There should be a list there.

Otherwise, if you go to the LBDA site, there is a list

there as well.

June Christensen

--- jojowood53 wrote:

> Thanks for your replys. The latest is Dr. is still

> pushing for a

> locked unit for this resident. Oh and low and

> behold I just asked the

> nurse today and he did have a U.T.I. This could

> have been the reason

> for the violent episode also. I am still looking

> for info. on the good

> meds bad meds list. Can anyone direct me to this

> site. Now the Hosp.

> has informed family that no locked units are

> avaialble locally and they

> might have to place him more than 100 miles away

> from family. What

> next? I went to see him today and my resident gave

> me the biggest hug

> with tears in his eyes and told me he was so sorry

> for the episode. I

> told him he neednt worry it was not his fault. The

> hug was worth all I

> and the family are fighting for. It just breaks

> your heart to see them

> so out of controll and so remorseful. We meet with

> the Dr. tomm. but I

> doubt we can change his mind and he still will not

> release him to my

> private home. We asked for a second opinion and the

> Dr. we sought does

> not practice at that hosp. We are up against a

> brick wall.

> Caregiver in Colorado.

>

>

June

Wife of Darrell, dx'd Alzheimer's in 1999, Aricept started, added Celexa 2003

for depression; probable dx of LBD 2006; died at age 75 in November 2006.

Autopsy confirmed LBD and AD.

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

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[Guest guest]

If you go to the group home page, click on links.Scroll down you will find ;

Drugs beneficial to some lbd patients

and just below it

Drugs problematic for lbd patients.

I hope that helps.Best of luck Ron

jojowood53 wrote:

Thanks for your replys. The latest is Dr. is still pushing for a

locked unit for this resident. Oh and low and behold I just asked the

nurse today and he did have a U.T.I. This could have been the reason

for the violent episode also. I am still looking for info. on the good

meds bad meds list. Can anyone direct me to this site. Now the Hosp.

has informed family that no locked units are avaialble locally and they

might have to place him more than 100 miles away from family. What

next? I went to see him today and my resident gave me the biggest hug

with tears in his eyes and told me he was so sorry for the episode. I

told him he neednt worry it was not his fault. The hug was worth all I

and the family are fighting for. It just breaks your heart to see them

so out of controll and so remorseful. We meet with the Dr. tomm. but I

doubt we can change his mind and he still will not release him to my

private home. We asked for a second opinion and the Dr. we sought does

not practice at that hosp. We are up against a brick wall.

Caregiver in Colorado.

RON

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

I sure hope you & the family's effort work in order for him NOT to go

into a psych unit. That is what did my mom in! I still feel guilt for

agreeing to put her in a geriatric pscyh hospital to this day. My

mother's story was nightmarish. Something you'd see in a movie. She

walked in, was wheeled out, never to walk again. We were told they'd

only need her there for 3 days, she was there for 3 weeks. Even

though my gut instincts were to not leave her there on that first

day, I listened to the doctors. I had thought it was a good thing for

the doctors to finally see what was going on. To finally see the bad

days... To finally get the tests done that she was on waiting list

for... But at the same time they played w/ the meds... all at the

same time... and gave her the antipscyhotic med that did her in.. My

mom fell into the category of those LBD patients who could not handle

antipsychotics. LBD was never mentioned to me by any doctor. I was

the one who originally diagnosed her by my searching online. I found

every possible form of dementia and wrote down all the symptoms. LBD

was the only one that she had all the symptoms of. When I finally

mentioned to the doctor after her stay at this pscyh ward (who by the

way diagnosed her as having vascular dementia caused by mini strokes

+ extreme mood disorder) he listened and agreed that could be the

form of dementia. At the time he was also considering something other

than dementia - b/c my mom was experiencing rapid decline.

Anyway... I'm rambling again... but please, please, please try your

hardest to not have him at a psych ward. There have been some on this

board that did get correct diagnoses at those type of places - but

many here who have experienced a decline due to the stay at a psych

ward.... b/c they play w/ meds there... and b/c of ins. reasons don't

follow the 'start low, go slow' - in my mom's case, it was all meds

pretty much around the same time... Also the setting isn't beneficial

to someone who needs order and routine. My poor mother was stuck in a

place with various types of patients, not just those with dementia,

including a prisoner. She was assaulted by another patient and the

nurse lied to us about it... It was THE worst place to put a LO in, I

wouldn't recommend the place to my worst enemy! Here I go again...

>

> Thanks for your replys. The latest is Dr. is still pushing for a

> locked unit for this resident. Oh and low and behold I just asked

the

> nurse today and he did have a U.T.I. This could have been the

reason

> for the violent episode also. I am still looking for info. on the

good

> meds bad meds list. Can anyone direct me to this site. Now the

Hosp.

> has informed family that no locked units are avaialble locally and

they

> might have to place him more than 100 miles away from family. What

> next? I went to see him today and my resident gave me the biggest

hug

> with tears in his eyes and told me he was so sorry for the

episode. I

> told him he neednt worry it was not his fault. The hug was worth

all I

> and the family are fighting for. It just breaks your heart to see

them

> so out of controll and so remorseful. We meet with the Dr. tomm.

but I

> doubt we can change his mind and he still will not release him to

my

> private home. We asked for a second opinion and the Dr. we sought

does

> not practice at that hosp. We are up against a brick wall.

> Caregiver in Colorado.

>

[Guest guest]

Psyche ward, and dementia wing of a facility are quite different.

Make sure you understand what the doctor is suggesting.

The dementia unit of a nursing home just limits the roaming of

patients. We found when Millie was in a nursing home for a short

while, that there were more staff on the locked unit, and Millie was

allowed to wander the whole wing, but couldn't get out to the regular

population and attempt escape.

My rub is that sometimes staff doesn't pay attention to the

difference Of ALZ and Lewy Body. Our LO wa pushing and bullying the

ALZ patients and easily could have caused a broken hip. We pulled

her out of assisted living because we knew she could take out the

weaker and less capable ALZies.

Once again, when the nursing home doctor takes over the case, you

will have to be very involved to protect against your Lewy Love being

medicated like an ALZ rather than the peculiarities LBD.

Carol

> >

> > Thanks for your replys. The latest is Dr. is still pushing for a

> > locked unit for this resident. Oh and low and behold I just

asked

> the

> > nurse today and he did have a U.T.I. This could have been the

> reason

> > for the violent episode also. I am still looking for info. on

the

> good

> > meds bad meds list. Can anyone direct me to this site. Now the

> Hosp.

> > has informed family that no locked units are avaialble locally

and

> they

> > might have to place him more than 100 miles away from family.

What

> > next? I went to see him today and my resident gave me the biggest

> hug

> > with tears in his eyes and told me he was so sorry for the

> episode. I

> > told him he neednt worry it was not his fault. The hug was worth

> all I

> > and the family are fighting for. It just breaks your heart to

see

> them

> > so out of controll and so remorseful. We meet with the Dr. tomm.

> but I

> > doubt we can change his mind and he still will not release him to

> my

> > private home. We asked for a second opinion and the Dr. we

sought

> does

> > not practice at that hosp. We are up against a brick wall.

> > Caregiver in Colorado.

> >

>

[Guest guest]

Yes he has a POA but the Hosp wasnts to release him and the Dr. wont release him

anywhere but to a locked ward. Its a catch 22. they is another Dr. that goes

to this Hosp but only one. Great. Joan

June Christensen wrote: First, welcome to

the site. I won't add any advice,

because you already have gotten some good advice.

Does this person have a relative or someone with POA

that determines what and where his medical needs will

be met? Otherwise, I don't think a hospital can keep

him or direct where he is to go if there is someone

who is responsible for him. You might check with an

ombusdman for elderly care. Where in Colorado are

you? Are you close to Denver? If so, I would think

there might be one there. In years past, a doctor

could determine what happened to a patient, but I

believe now the patient themselves (if able) can

determine what medical care s/he receives, and if not,

the closest family member or someone with a POA

determines the outcome. You do mention family, so I

assume he has some family members there.

As for the list of meds, go to the bottom of the posts

and click on Files. There should be a list there.

Otherwise, if you go to the LBDA site, there is a list

there as well.

June Christensen

--- jojowood53 wrote:

> Thanks for your replys. The latest is Dr. is still

> pushing for a

> locked unit for this resident. Oh and low and

> behold I just asked the

> nurse today and he did have a U.T.I. This could

> have been the reason

> for the violent episode also. I am still looking

> for info. on the good

> meds bad meds list. Can anyone direct me to this

> site. Now the Hosp.

> has informed family that no locked units are

> avaialble locally and they

> might have to place him more than 100 miles away

> from family. What

> next? I went to see him today and my resident gave

> me the biggest hug

> with tears in his eyes and told me he was so sorry

> for the episode. I

> told him he neednt worry it was not his fault. The

> hug was worth all I

> and the family are fighting for. It just breaks

> your heart to see them

> so out of controll and so remorseful. We meet with

> the Dr. tomm. but I

> doubt we can change his mind and he still will not

> release him to my

> private home. We asked for a second opinion and the

> Dr. we sought does

> not practice at that hosp. We are up against a

> brick wall.

> Caregiver in Colorado.

>

>

June

Wife of Darrell, dx'd Alzheimer's in 1999, Aricept started, added Celexa 2003

for depression; probable dx of LBD 2006; died at age 75 in November 2006.

Autopsy confirmed LBD and AD.

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

---------------------------------

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[Guest guest]

Very good point Carol!

And I understand that 'lock down' is a scary phrase. And it should be

a different phrase. You picture your LO locked in their room w/ maybe

some chains. It's not the case at all for NHs w/ a dementia wing.

They have an electric devise at the exits that alerts the CNAs when

the LO is too close to the exits - that is all, that is what 'lock-

down unit' is.

For example, mom's nursing home has an entire floor for the dementia

residents. 49 beds. They have access to every area of that floor. If

they are wanderers they just walk around the halls, go into the

common room, go into the TV room, go into other resident's room

(which can be both good & bad) but if they wander towards the

elevator and try to cross into the elevator, the alarm goes off and a

CNA comes and guides them away from the elevator. It's for the LOs

protection and is not anything negative at all... Wish they would

rephrase it b/c it makes you think of negative things...

But on the other hand, the geriatric psych unit my mother was in at

the hospital was different... They had a floor for all of the

patients... But the exit door was actually locked. When we visited we

had to wait for someone to unlock and open the door. We couldn't

freely go in & out. They didn't have an electrical devise that would

just alert the workers that a person was too close to the exit. They

had a locked door with a window - so the poor residents would see out

to their freedom but couldn't open the door. And then think about the

time when we're standing there trying to get in to visit my mother

and there was no worker to open the door right away, instead a

resident looking at us through that window - we're wanting to get in,

she's wanting to get OUT. Ugh! These memories are better off

forgotten!!

>

> Psyche ward, and dementia wing of a facility are quite different.

>

> Make sure you understand what the doctor is suggesting.

>

> The dementia unit of a nursing home just limits the roaming of

> patients. We found when Millie was in a nursing home for a short

> while, that there were more staff on the locked unit, and Millie

was

> allowed to wander the whole wing, but couldn't get out to the

regular

> population and attempt escape.

>

> My rub is that sometimes staff doesn't pay attention to the

> difference Of ALZ and Lewy Body. Our LO wa pushing and bullying

the

> ALZ patients and easily could have caused a broken hip. We pulled

> her out of assisted living because we knew she could take out the

> weaker and less capable ALZies.

>

> Once again, when the nursing home doctor takes over the case, you

> will have to be very involved to protect against your Lewy Love

being

> medicated like an ALZ rather than the peculiarities LBD.

>

> Carol

[Guest guest]

Jojo,

I don't think they can legally move a patient 100 miles from their family. And

as a family I would not let them do it no matter what they want.

As if you haven't have enough information already, I had my Mom in the Psyc unit

of a hospital for 20 days and it nearly killed her. Even putting her in a nh

home after she got released from the hospital, I fought with the MD there to get

her off the drugs they had put her on in the hospital. It took close to 4

months to get it done.

The family does have a say. And if they need a lawyer to answer for them, get

one! Although the Ombudsman should be of help also. It is fear and pain you

are dealing with, and you really may need another MD that knows what they are

doing. I didn't have and didn't know it.

Good luck and hope you have gotten some resolution already today.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Still need more information this weekend

Thanks for your replys. The latest is Dr. is still pushing for a

locked unit for this resident. Oh and low and behold I just asked the

nurse today and he did have a U.T.I. This could have been the reason

for the violent episode also. I am still looking for info. on the good

meds bad meds list. Can anyone direct me to this site. Now the Hosp.

has informed family that no locked units are avaialble locally and they

might have to place him more than 100 miles away from family. What

next? I went to see him today and my resident gave me the biggest hug

with tears in his eyes and told me he was so sorry for the episode. I

told him he neednt worry it was not his fault. The hug was worth all I

and the family are fighting for. It just breaks your heart to see them

so out of controll and so remorseful. We meet with the Dr. tomm. but I

doubt we can change his mind and he still will not release him to my

private home. We asked for a second opinion and the Dr. we sought does

not practice at that hosp. We are up against a brick wall.

Caregiver in Colorado.

[Guest guest]

Still sounds to me as if this doctor is trying to have

more power than he should. If, as some others write,

it is a locked ward in a NH, that is different. It is

locked just to keep the patients in, as most would be

trying to get away. My husbnd's NH had a numerical

code that you pushed to get out the door, but you had

to be careful that one of the residents wasn't trying

to get out with you. They want out!!! Who could

blame them? I still think the person with the POA

would have the final say.

--- joannie wrote:

> Yes he has a POA but the Hosp wasnts to release him

> and the Dr. wont release him anywhere but to a

> locked ward. Its a catch 22. they is another Dr.

> that goes to this Hosp but only one. Great. Joan

>

> June Christensen wrote:

> First, welcome to the site. I won't add any

> advice,

> because you already have gotten some good advice.

>

> Does this person have a relative or someone with POA

> that determines what and where his medical needs

> will

> be met? Otherwise, I don't think a hospital can keep

> him or direct where he is to go if there is someone

> who is responsible for him. You might check with an

> ombusdman for elderly care. Where in Colorado are

> you? Are you close to Denver? If so, I would think

> there might be one there. In years past, a doctor

> could determine what happened to a patient, but I

> believe now the patient themselves (if able) can

> determine what medical care s/he receives, and if

> not,

> the closest family member or someone with a POA

> determines the outcome. You do mention family, so I

> assume he has some family members there.

>

> As for the list of meds, go to the bottom of the

> posts

> and click on Files. There should be a list there.

> Otherwise, if you go to the LBDA site, there is a

> list

> there as well.

>

> June Christensen

>

> --- jojowood53 wrote:

>

> > Thanks for your replys. The latest is Dr. is still

> > pushing for a

> > locked unit for this resident. Oh and low and

> > behold I just asked the

> > nurse today and he did have a U.T.I. This could

> > have been the reason

> > for the violent episode also. I am still looking

> > for info. on the good

> > meds bad meds list. Can anyone direct me to this

> > site. Now the Hosp.

> > has informed family that no locked units are

> > avaialble locally and they

> > might have to place him more than 100 miles away

> > from family. What

> > next? I went to see him today and my resident gave

> > me the biggest hug

> > with tears in his eyes and told me he was so sorry

> > for the episode. I

> > told him he neednt worry it was not his fault. The

> > hug was worth all I

> > and the family are fighting for. It just breaks

> > your heart to see them

> > so out of controll and so remorseful. We meet with

> > the Dr. tomm. but I

> > doubt we can change his mind and he still will not

> > release him to my

> > private home. We asked for a second opinion and

> the

> > Dr. we sought does

> > not practice at that hosp. We are up against a

> > brick wall.

> > Caregiver in Colorado.

> >

> >

>

> June

>

> Wife of Darrell, dx'd Alzheimer's in 1999, Aricept

> started, added Celexa 2003 for depression; probable

> dx of LBD 2006; died at age 75 in November 2006.

> Autopsy confirmed LBD and AD.

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

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[Guest guest]

I have to read so quickly, I may have missed the boat on the psyche ward.

I guess I just can't believe that any sane medical person would even consider

throwing one of our Lewies in with the wolves!

But why should I be shocked? We as caregivers have educate our LO's doctors

on what they should and should not prescribe.

Now, if I couldn't prevent it, I would be sure to take a reporter with a

hidden camera, posing as a relative, and document the event. I spent 22 hours a

day with my dad after his stroke, and I would not agree to not being with my LO.

Now if I am a unrealistic here, it is because I just cannot believe the

profession is so behind on this disease.

I am thinking 20/20 or 60 Minutes, now!

Maybe some of these slick attorneys who advertise about nursing home abuse and

medical malpractice would love to jump on this!

I can't even imagine anybody fighting all of this crap!

I am on board with everybody else's righteous indignation.

Jail would be more humane for a LBD! At least the harm would be minimal.

I need to leave this topic, or I will never sleep!

Carol

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Thank you for your reply and disbelief!!!! Yes we met with the Dr. and he stood

his ground. The family and I I think have resolved we are going to bring him

back to my private home Assisted Living and get a new Dr. and new information

and give it another go around with another person full time with me. The family

looked at 2 locked wards and said they wouldn't put their worst enemy there.

We just have to figure out safety issues for myself and my resident. They took

him off all his Parkinson's meds and he seems to be doing better at the Hosp.

We now have extra time to fully make an informed decision not by Mon. but have a

few extra days. The Dr. will take himself off the case if he comes back to my

home because of liability but if he went to a locked ward he wouldn't be on the

case either. I will post our final decision but thanks for all your input. I

printed all your emails and gave them to the family today and they are so

grateful. Thanks caregiver in Colorado.

carol king wrote: I have to read so quickly, I

may have missed the boat on the psyche ward.

I guess I just can't believe that any sane medical person would even consider

throwing one of our Lewies in with the wolves!

But why should I be shocked? We as caregivers have educate our LO's doctors on

what they should and should not prescribe.

Now, if I couldn't prevent it, I would be sure to take a reporter with a hidden

camera, posing as a relative, and document the event. I spent 22 hours a day

with my dad after his stroke, and I would not agree to not being with my LO. Now

if I am a unrealistic here, it is because I just cannot believe the profession

is so behind on this disease.

I am thinking 20/20 or 60 Minutes, now!

Maybe some of these slick attorneys who advertise about nursing home abuse and

medical malpractice would love to jump on this!

I can't even imagine anybody fighting all of this crap!

I am on board with everybody else's righteous indignation.

Jail would be more humane for a LBD! At least the harm would be minimal.

I need to leave this topic, or I will never sleep!

Carol

---------------------------------

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