New here

[Guest guest]

Hi Jan,

I am kinda new here also...welcome. Sorry I don't have any answers to any of

your questions, but wanted to at least welcome you to the group.

Good luck with your situation!

Take care

Tam

Quoting Jan :

> Hello. I'm Jan and I live in Texas. I've been suffering with pain

[Guest guest]

Hi Jan -

Welcome to the list!

I take Kadian as well. When I started taking it a year ago I was on 50

mg twice a day, then 3 months later went up to 100 mg in the morning,

and 50 mg at night with no break through meds. For the last 3 months I

have been on 100 mg twice a day, then starting this week we just added

Norco 10/325, up to 10 tabs per day as needed for breakthrough. (never

have taken 10 in a day yet, 6 at the most)

The Kadian did not take a while to start working for me, it was working

withing 6 hours. Prior to Kadian I was using the Duragesic Patches, 200

mcg/hour, so I already had a pretty high tolerance for narcotics. I'm

sure my dosage now may seem high to some, but I have been on narcotics

for the pain for 6 years now, and my back has continued to cause me

major pain that has worsened in the last 6 months

I have DDD and Fibro and am facing surgery later this summer.

Generally (in my experience anyways) if the initial dose of a med is not

adequate, an adjustment needs to be made. My pain dr. has told me that

most of his Kadian patients do better with twice a day dosing rather

than once a day, and my insurance company even agreed with him on this.

Good luck!

Jami in OR

Jan wrote:

Recently I've found that the vicodin

> isn't helping much and he's put me on Kadian (a sustained release

> morphine)

[Guest guest]

Thanks for the reply Jami.

I hope your surgery goes well.

Jan @->--

[Guest guest]

Thanks for the welcome Tam.

Jan @->--

[Guest guest]

Welcome kelly,

Gosh I remember my first forays into the net and a computer. I was

scared to death i would kill the computer... lololol.. So far I

havent, but I have threatened to chuck it out the window a few times.

Go ahead and ramble. I am failry new to this list as well, but it

seems like an awful nice bunch of folks. Like you I am an old timer

with the chronic pain.. 12 years now.. I had a bad car accident right

after a back surgery and have had 6 so far.... sigh. But I keep on

trucking, and am squeezing every bnit of joy and life I can out of

this time around.

[Guest guest]

Welcome to the group !

Hugs,

Sent: Friday, July 15, 2005 4:44 PM

To: chronic_pain

Subject: New Here

Hello Everyone!

My name is Ann (mostly called though)and believe it

or not, after 11 yrs. of CHRONIC PAIN in my life, this is the 1st

support group I've ever joined.

[Guest guest]

Hi Jan,

Sounds like you have been through the mill and back. I so sorry you hurt so

bad. I wish there was help for all of us.

I don't take the drug you talk about but I do take oxy. They just came out with

a generic brand called oxycodone RS and it works so much better than the oxy. I

can't believe the difference. You might try this drug if the others don't help

you.

Welcome to the group.

donna

[Guest guest]

Welcome, , you will love this group! I am sorry you are in pain but I am

glad you found us! Gwen

Ann wrote:Hello Everyone!

My name is Ann (mostly called though)and believe it

or not, after 11 yrs. of CHRONIC PAIN in my life, this is the 1st

support group I've ever joined.

[Guest guest]

Thanks for the info and the welcome Donna. I hate taking any of the pain meds,

but sometimes you just have to do it to live a somewhat normal life. So far this

new medication hasnt helped at all. I may talk to the Dr about the one you

suggested. I have NO experience in this department, so you all have been so

helpful.

Jan @->--

[Guest guest]

I can help you there, and believe me I am completely illiterate when it comes to

computers! If you get a message at the top and it says from c_p and you hit

reply it will go to the whole group. On my computer if I want it to go to the

individual you must either copy the address from the one that is at the top

under the chronic pain address and then paste it into the to box when you

compose the e-mail you are going to send or : you can type it in after you copy

it on a piece of paper by using the old fashioned way of writing it down by pen

and pencil. Did any of that make sense? If not just tell me and I will try

again. I was so confused at first my then 5 year old grandson helped me, and

that is pretty sad because I am a college graduate! Gwen

Ann Sudduth wrote:Thank You Gwen,

People are very nice here and I'm sure it's going to be very helpful for me.

The one problem I'm having at the moment is answering emails...I'm unsure

whether to just hit REPLY or to email their address that's listed.

[Guest guest]

Welcome to the group ! Your story sounds so scary. I bet you were scared to

death when you where delivering your child. Is it neurological pain you are

suffering from(sorry to be nosey)? I'm sorry you had to go through all that but

glad you are starting to get you life back.

Take care,

Caitlin

Ann wrote:

Hello Everyone!

My name is Ann (mostly called though)and believe it

or not, after 11 yrs. of CHRONIC PAIN in my life, this is the 1st

support group I've ever joined.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi Everyone My name is and I'm from Wisconsin. I am 28, married almost 4

years and we have an almost 4 year old daughter. Almost a year ago in October,

I was sitting on the floor working at taking out tacks from some carpeting that

we just pulled off. And I started to notice that my butt and thighs were going

numb thought i would stand up and take a break. Except that when i stood i

heard a very loud POP didn't have alot of pain right away so i went and layed

down 3 hours later i couldnt even get myself off the couch. I have never felt

such pain in my life and i went throught 5 days of labor. Any ways got to the

hospital took xrays didnt see anything, then they did an MRI it showed 2

herniations 1- at L4L5 and the other at L5S1. I had my first Lami/Diskotomy on

L4L5 in Feb 2005. Reherniated, changed doctors because the first one didn't

believe my pain and that it was in my head so i found another doctor who is so

wonderful, after talking to him in lenght about

everything i finally decieded for another surgery in May 2005 for a

Re-Lami/Diskotomy on L4L5 and a Lami/Diskotomy at L5S1. After the second

surgery I finally started realizing just how bad this is (thanks to a wonderful

PT, who also has back problems), and that i cannot do anything " stupid " but

ironicaly the " stupid " things just seem to be happening to me. 3 months ago i

sneezed and since then i havent been the same. Not to mention my mothers

boyfriend threw ice cold water at my back to be funny, and then 2 weeks ago i

took a tumble in the shower and twisted it i felt something slip. but since the

water incident happened ive been noticing more pain in my tailbone and shooting,

piercing pain down my right leg. Not to mention my left leg is numb all the

time since the second surgery, the doc found disk matter inbedded in my nerve.

we dont know if the feeling will ever come back. so here i am today, contantly

in pain, on all types of pills and the TENS unit to try and help.

and in the process trying to have a 3 year old understand why mommy just cant

do certain things anymore, like going to the park or even some days being able

to take a walk and forget doing any type of stairs, they will put me out for a

week. so I started the begining process for disablity. Well thats my story and

why it has brought me here. I thank you for listening, i've been watching the

group for a little bit now, and you all are very caring people. Who like myself

are living in pain.

in Wisconsin

ps sorry if some of the wording seems off, it has been a bad day

" You must do the things you think you cannot do " -Eleanor Roosevelt

" Be who you are and say what you feel because those who mind don't matter, and

those who matter don't mind " -Dr. Seuss

__________________________________________________

[Guest guest]

Re: New Here

Hi Everyone My name is and I'm from Wisconsin.

Hi ,

Welcome to the Group!!1

Ron in Dallas

[Guest guest]

Hello ,

Welcome to the group. I am 35 and have a 5 yr. old and know the pain and guilt

of having to explain to your child about not being able to do the things you

once could. It is REALLY hard. I was in a car wreck when my child was 9 months

and then proceeded to have four surgeries on my ankle/leg and was in a cast or

boot for almost 3yrs. Even though I have not had problems with my leg for a year

or so(except a few times of it " going out " ), my daughter still refers to my " bad

leg " .

Since I also have Fibro, arthritis, cysts in my shoulders, and

protruding/leaking discs in the same place you do and in my Thoracic region, she

is now starting to say things like " mom, you hurt all over all the

time " (recentful?) or " mom, why do you have so many aches and pains? " . Try

explaining that to a 5 yr. old. Not an easy task. I try very hard not to

complain or even talk about my pain with her but when she is monkeying on my

back or something of the sort, I have to put a stop to it.

Anyway, just wanted to say hello and tell you I can relate on that level for

sure. I'm sorry that you are in so much pain. Does your TENS unit help? Mine did

at first but now its starting to loose steam, unfortunetly. Good luck with

disability and hope all goes well.

Caitlin

wrote:Hi Everyone My name is and I'm from Wisconsin. I am 28,

married almost 4 years and we have an almost 4 year old daughter. and in the

process trying to have a 3 year old understand why mommy just cant do certain

things anymore,

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi Caitlin and Thank you for the warm welcome ive been trying to not say

anything to my duaghter about my pain but she knows by the end of the day that

mommy is cranky and short tempered, shes sweet tho shell ask if i want my back

rubbed.. and of course i say yes LOL i figure its pay back at night i have to

rub her back for at least 10mins. Where abouts are you located? Talk to you

soon

in Wisconsin

Caitlin Kennedy wrote:

Hello ,

Welcome to the group.

[Guest guest]

Thank you Ron

LORIANN V BANGAN wrote: Re: New Here

Hi Everyone My name is and I'm from Wisconsin.

Hi ,

Welcome to the Group!!1

Ron in Dallas

[Guest guest]

Hello all,

I am happy to have found this group. I wrote my details in the " Introduction "

section of files on the home page, called " My Challenges... "

It is amazing to me to find so many people with such severe daily pain that can

still offer a smile and words of encouragement. Some of our experiences are

absolutely horrific.

My ability to cope varies. I don't have to explain here how pain impacts every

comment, relationship, activity and thought. I am doing better lately and had

two days this past week that were good (pain was mild and I could move fairly

easily - still with medication, but getting up and out of bed, starting my day,

was much better). I haven't used a cane in some months and understand the

reluctance. Being a recovering alcoholic and addict, I also went for years

without and then under - medicated.

I now realize that I am open to doing whatever I need to in order to have some

semblance of a life and the hope for joy on a daily basis. I suffer enough for

me and don't need to willingly invite more. Partly, this has to do with self

esteem issues and, I know, is best discussed with a therapist. I am following

behavior mod or the concept of " act as if... "

I have yet to find a pain doc that is proactive with me. I'd also like to find a

local pain support group and meet with people in person. Comparatively speaking,

I feel fortunate for what I've been dealt - that it isn't worse (although it is

worsening as I age) - and sometimes need to remind myself that I qualify for

these services. I don't necessarily look like I have difficulties and then when

I do need a cane, people react with catastrophizing comments ( " what happened to

YOU??). *sigh* Very tiresome to explain... again (I usually just say that I

sometimes have difficulty getting around and need some help, adding that it will

pass).

I have discovered that Darvocet sometimes make me moody. I have double

depression and have meds that - so happily! - work, but also know that it is all

related. This can best be described as a kind of " break through " depression

where I get highly irritated with everyone/thing, which is related to one type

of depression I have (learning about the concept of " break through " pain here

has been helpful).

I believe that I can lessen the pain by cleaning up my diet, staying away from

inflammatory foods, for example, and routinely practicing yoga and meditation. I

need to lose weight to lessen the burden on my body. This is not as simple as it

reads - I don't do these things and wonder about my emotional attachment to my

limitations. I'd love to hear some thoughts on this. Please let me be clear:

I have daily pain. It is real. I have been through periods of surrendering to it

completely and have been unable to get out of bed. I am often unsure of what I

can and cannot do, how active I can be. I am often unsure in the moment of when

I am doing too much or of what is causing an increase or decrease in level of

pain. There are times when I consciously choose not to be aggressive in my own

treatment. I get emotionally tired too.

I would like to come to a place where this is all okay. I am moving in that

direction. This is a crazy making experience as my pain changes, sometimes

moment to moment - in location, severity, etc.

I am happy you are all here and write so frequently.

Please feel free to contact me off list: RKSlavin@...

peace,

Robin

---------------------------------

Yahoo! for Good

Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

Welcome to the group Robin and all the other new members. I hope we can help

your lives be a bit better.

Kaylene

Moderator

[Guest guest]

hi kaylene,

my name is Beth still waiting on you to decide whether i can join a great bunch

of peeps cause i just sent the application letter to you last night and i

haven't gotten a confirmation says " waiting for moderator " so. ... kaylene

waiting patiently lol

i told my husband i got 14 emails already this morning. i have had this monster

in my body and all the dommino effects for 16 years and i just thank fo remember

somewhere,somehow,someone will FIND A WAT TO PUT OUT THE FIRE!

Thanks again for responding.lots more to talk about and listen to in this site i

look so forward to that. a fellow rsder.

Beth

[Guest guest]

Hi all,

I just want to introduce myself. My name is Lauri. I've been dabbling

with The Work for a couple years now, sometimes I completely avoid it

because, well, I guess my Ego mind just wants to be right, or for some

ungodly reason I'm hanging onto my own discomforts.

That Ego mind can be so loud at times. OF COURSE ITS ABSOLUTELY TRUE!

Look forward to being part of this group. I've enjoyed reading the

posts and the feedbacks seem extremely helpful.

Lauri