Re: Need urgent information before Sat. Jan19,2008/CO Caregiver

[Guest guest]

Hello Caregiver in Colorado,

You have come to the right place and some of the information you hear from me

you will hear from others and also you will get a lot more information, but here

is a start. What you are experiencing is not uncommon with LBD. In my opinion,

your resident should not go to a lock up Psych Ward. Haldol and Ativan are

detrimental to an LBD person. Please make sure he is NOT given Haldol or Ativan

to calm him, because they can cause adverse reactions and the patient can become

worse than they are now. With some, Ativan can turn them more confused and out

of control, instead of calming them and they never seem to bounce back to their

normal behaviors if they were ever calm. Some LBD people can tolerate Ativan. If

it is taken, a low dosage is recommended. Haldol can cause the patient to go

Comatose. Psych Wards are known for issuing these meds, so be very careful and

copy all papers here about meds compatible with LBD and bring them to the

doctor.

When an LBD patient is aggressive and out of control it can mean they have a

Urinary Track Infection and this is a common behavior that you are describing

when an LBD patient has a Urinary Track Infection and the patient should be

tested for a UTI or any Infection can cause this type of behavior such as;

Pneumonia. It is the first thing that should be tested for this behavior,

because it can be as simple as that. Or the medications the patient is already

on may need adjusting, some tend to lose their effect after awhile.

Seroquel can help with aggression. Seroquel is one of the common Antipsychotic

drugs that an LBD patient can usually tolerate. most Antipsychotic drugs are on

the LBD bad list and have adverse reactions. Not all LBD patients can tolerate

Seroquel, but most can.

I am sorry the family and you have to go through this, it is one of the worst

things to go through with an LBD Loved One. We can surly relate to you here.

I hope you can find some comfort and answers here.............Jan

jojowood53 wrote:

Help! Im a caregiver and my resident has LBD and has had violent

episodes where he was out of control and out of his restraints and

swinging and had the strength of an ox. I finally had to get him

under control called 911 and the sherriffs dept and emts came in

after I had him calmed and they took him to the Hosp for a med

evaluation. The Dr. is fearful to send him back for my saftey and

his to my private home. I am a C.N.A. and have had 38 yrs exper.

with alzheimers and other non related LBD diagnosis. My prob. is the

Dr. wants to place him in a locked psch. ward. The nursing home has

already dismissed him as he would crawl out of bed and fall and not

stay in one place. Dr. ordered restraints but as I was transferring

him without any clue of aggitaion he started swinging and ran thru

the house (now he can hardly walk at times stutter steps) and I mean

run frantically from room to room and tried to get outdoors. He was

shouting he wanted to kill me. My concern or question is does anyone

know of any medications that would keep him calm so he could come

back to my small Assisted Living. I only have him so it would be one

on one. I cant imagine that a psch. ward would not medicate him and

if so why couldnt he be medicated here. Anyone know of any meds for

violent behavoir that could be used. Has anyone experienced this with

LBD? The family does not want him in a psch ward and wants him to

return here safely if possible. Would appreciate input as we have a

meeting with Dr. on Sat. and some informative info would be helpful.

Thanks caregiver in Colorado.

Welcome to LBDcaregivers.

[Guest guest]

Janet, Thanks for the info. I am still trying to find the list of good meds

bad meds. Do you know where I can find this before tomm. Joan

Janet Colello wrote: Hello Caregiver in

Colorado,

You have come to the right place and some of the information you hear from me

you will hear from others and also you will get a lot more information, but here

is a start. What you are experiencing is not uncommon with LBD. In my opinion,

your resident should not go to a lock up Psych Ward. Haldol and Ativan are

detrimental to an LBD person. Please make sure he is NOT given Haldol or Ativan

to calm him, because they can cause adverse reactions and the patient can become

worse than they are now. With some, Ativan can turn them more confused and out

of control, instead of calming them and they never seem to bounce back to their

normal behaviors if they were ever calm. Some LBD people can tolerate Ativan. If

it is taken, a low dosage is recommended. Haldol can cause the patient to go

Comatose. Psych Wards are known for issuing these meds, so be very careful and

copy all papers here about meds compatible with LBD and bring them to the

doctor.

When an LBD patient is aggressive and out of control it can mean they have a

Urinary Track Infection and this is a common behavior that you are describing

when an LBD patient has a Urinary Track Infection and the patient should be

tested for a UTI or any Infection can cause this type of behavior such as;

Pneumonia. It is the first thing that should be tested for this behavior,

because it can be as simple as that. Or the medications the patient is already

on may need adjusting, some tend to lose their effect after awhile.

Seroquel can help with aggression. Seroquel is one of the common Antipsychotic

drugs that an LBD patient can usually tolerate. most Antipsychotic drugs are on

the LBD bad list and have adverse reactions. Not all LBD patients can tolerate

Seroquel, but most can.

I am sorry the family and you have to go through this, it is one of the worst

things to go through with an LBD Loved One. We can surly relate to you here.

I hope you can find some comfort and answers here.............Jan

jojowood53 wrote:

Help! Im a caregiver and my resident has LBD and has had violent

episodes where he was out of control and out of his restraints and

swinging and had the strength of an ox. I finally had to get him

under control called 911 and the sherriffs dept and emts came in

after I had him calmed and they took him to the Hosp for a med

evaluation. The Dr. is fearful to send him back for my saftey and

his to my private home. I am a C.N.A. and have had 38 yrs exper.

with alzheimers and other non related LBD diagnosis. My prob. is the

Dr. wants to place him in a locked psch. ward. The nursing home has

already dismissed him as he would crawl out of bed and fall and not

stay in one place. Dr. ordered restraints but as I was transferring

him without any clue of aggitaion he started swinging and ran thru

the house (now he can hardly walk at times stutter steps) and I mean

run frantically from room to room and tried to get outdoors. He was

shouting he wanted to kill me. My concern or question is does anyone

know of any medications that would keep him calm so he could come

back to my small Assisted Living. I only have him so it would be one

on one. I cant imagine that a psch. ward would not medicate him and

if so why couldnt he be medicated here. Anyone know of any meds for

violent behavoir that could be used. Has anyone experienced this with

LBD? The family does not want him in a psch ward and wants him to

return here safely if possible. Would appreciate input as we have a

meeting with Dr. on Sat. and some informative info would be helpful.

Thanks caregiver in Colorado.

Welcome to LBDcaregivers.