Re: More on CSM

January 23, 2008

Here's something from a gastrointestional doctor's website about

cholestyramine's binding action that may help to convince a doctor to

Rx CSM. I asked my doctor for it before for 'itching', he said okay

and then after looking up prescribing info decided against it since he

didn't see anything about it being for itching, so I'm going to try

showing him this.

http://www.gicare.com/pated/cholestyramine.htm

>

> Incidentally,

>

January 23, 2008

What are your symptoms?

You should tell them what is really bothering you and what its for.

Its not some controlled substance or something.. You are paying them,

they treat you, you are not some kind of criminal.

On Jan 23, 2008 11:48 PM, barb1283 <barb1283@...> wrote:

>

January 24, 2008

I *did* just post to this group what you are asking me: It solves in

me itchy skin which I have right now. Doctor said okay, asked for

spelling of medicine and said he would order it. However he never

called it in. I asked and his assistant said they didn't see anywhere

in description of drug that it was diagnosed for itchy skin so doctor

will have some other suggestions for me. Do you ever go to a doctor??

They prescribe medicine based on what the drug books say it is for.

It also has resolved for me wrist rashes and swollen wrists but *I

don't have those now...symptoms of toxins in body. He won't Rx for me

a medicine for to solve something I don't have now.

I've already posted here that I tried to get it for 'detoxing my liver'

to alternative doctors but they have their own ideas on how to do that,

sauna, milk thistle, etc, etc. Most doctors do not do something

because another 'equal' (in their eyes...another doctor is their equall

and not more authoritative than their books) does it. They want to do

what they have researched and decided on. If they are a *traditional

doctor* they do only what is in drug book or Merck manual,

following " standards of care " , written up by lawyers and insurance

companies.

Merck manual says cholestyramine can be used to treat itching caused by

jaundice but I don't have jaundice. Even if you have jaundice, Merck

says to first do test to determine cause of jaundice and if it is

blocked bile duct, doctor can give cholestyramine to resolve itching.

I'd like to know what your experience with getting CSM?

Perhaps I can do exactly what you have done.

> >

>

January 24, 2008

Have you gotten Dr. Shoemaker's time series paper? Its on his web site.

That can show them pretty clearly the rationale behind cholestyramine.

Tell them that he has been treating thousands of patients with it and it works.

January 24, 2008

Where on the web site it the time series paper about CSM. I need to print it

for a friend who is trying to talk to her Dr. about it. The Dr. isn't

interested in listening and says it's all a bunch of junk.

Thanks, Sue

Have you gotten Dr. Shoemaker's time series paper? Its on his web site.

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

January 24, 2008

Both times I have told them that mold exposure made me ill. The first

time I said that people had told me that cholestyramine would help.

The second time I was basically just changing doctors because I had

moved. Both doctors have received a lot of the stuff I find here and

both were interested in it, considering how busy they are. Its also in

my file.. stuff like that Toxicological Sciences preprint.

They can see I'm not a nut, but it did take a little while. The first

time I was really frantic because at that time I was still living i

the moldy apt and I had SO many health issues and I was really a wreck

as we were trying to move. Later it was better because I just have the

less dramatic but still very debilitating issues with mold I have now.

I am still looking for another doctor for some still unaddressed stuff

but I don't know who I will go to. I can't travel like many here, and

I don't want to spend money when money is not coming in the way it

used to.

Perhaps I have an advantage in that I have read a lot about it.

I think that at this point they really do appreciate the info Ive

given them. My more recent doctor has another patient who has similar

mold issues and evidently she (the patient) is also active on

" Internet chat groups " and knows about cholestyramine. I also gave my

most recent doctor a copy of Dr. Shoemaker's NTP presentation which

has a LOT of stuff in it.

At this point they realize that this is a controversial subject but

that there is a strong likelihood that people like us are right. I

think that is always their main concern, being sure that there is a

good basis in science for whatever they do. I'm like that too, so I

think we communicate okay.. when they have the time to.. (its rare

that they have time, thats the big frustrating issue for me, the lack

of time..)

On Jan 24, 2008 12:18 PM, barb1283 <barb1283@...> wrote:

>

> I *did* just post to this group what you are asking me: It solves in

> me itchy skin which I have right now. Doctor said okay, asked for

> spelling of medicine and said he would order it. However he never

> called it in. I asked and his assistant said they didn't see anywhere

> in description of drug that it was diagnosed for itchy skin so doctor

> will have some other suggestions for me. Do you ever go to a doctor??

> They prescribe medicine based on what the drug books say it is for.

> It also has resolved for me wrist rashes and swollen wrists but *I

> don't have those now...symptoms of toxins in body. He won't Rx for me

> a medicine for to solve something I don't have now.

> I've already posted here that I tried to get it for 'detoxing my liver'

> to alternative doctors but they have their own ideas on how to do that,

> sauna, milk thistle, etc, etc. Most doctors do not do something

> because another 'equal' (in their eyes...another doctor is their equall

> and not more authoritative than their books) does it. They want to do

> what they have researched and decided on. If they are a *traditional

> doctor* they do only what is in drug book or Merck manual,

> following " standards of care " , written up by lawyers and insurance

> companies.

> Merck manual says cholestyramine can be used to treat itching caused by

> jaundice but I don't have jaundice. Even if you have jaundice, Merck

> says to first do test to determine cause of jaundice and if it is

> blocked bile duct, doctor can give cholestyramine to resolve itching.

> I'd like to know what your experience with getting CSM?

> Perhaps I can do exactly what you have done.

>

> > >

> >

>

January 24, 2008

Live, have you actually got a doctor to read this stuff and listen to

you?

--- In , LiveSimply <quackadillian@...>

wrote:

>

> Have you gotten Dr. Shoemaker's time series paper? Its on his web

site.

>

> That can show them pretty clearly the rationale behind cholestyramine.

>

> Tell them that he has been treating thousands of patients with it and

it works.

>

January 24, 2008

Yeah, Barb, your situation is totally typical... Sorry.

There are a handful of doctors in the country who understand mold illness and

who use the Shoemaker protocol with CSM. You may need to see one of them to get

the prescription or to have them write to your doctor to explain why he should

use it with you... while there are very limited 'standards of care' for using

drugs, so-called 'off-label' uses happen with many of them. Since your guy

doesn't have experience with what you're telling him to observe, he wants to

cover his butt and not do anything outside of his comfort zone.

THIS is why our situation is political... the insurance industry has been very

effective at denying our health situations, and they have kept doctors from

believing there is anything that needs to be learned.

~Haley

barb1283 <barb1283@...> wrote: I *did* just

post to this group what you are asking me: It solves in