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Dear Vee,

My name is Kathy and I had surgery with Dr. Levin on October 8th, 3 weeks ago

today. A little about myself, I am 32 years old, my hubby is 35 and we have 2

wonderful children. I decided on a tubal ligation because of pregnancy

complications. I have Type I diabetes and have for 26 years. The doctor thought

it would be best and my hubby and I agreed. At the beginning of this year, I had

such a desire for another child. After lots of praying and lots of tears, I

found Dr. Levin. He is absolutely everything that you have read and then some.

He agreed to my surgery, even though I am over weight and a diabetic. He had

someone watching my blood sugar during surgery and I have received email and

phone calls from him since then. He doesn't just drop you after he gets paid. He

is a caring and wonderful doctor. I have never met a doctor like him. I am not

sure about the procedure that you had. My reports said that I had a pomeroy

method. He went in and found that the doctor had not cut in the middle but off

to the side. Only the fingers were left on the right side. He cut a hole in it

and connected it. Then on the left side he found that it had grown towards my

pelvic bone and attached itself to fatty tissue. There was also a cyst on it. He

removed the cyst and the tube from where it was and attached it to where it was

supposed to be. Hopefully all is healing well. It hasn't been long enough for me

to say whether I will get pregnant or not. I can tell you that I feel complete

again. It came over me a few days ago. It was like a part of me had died and it

was resurrected again. I am so thankful to the Lord for sending Dr. Levin my way

and putting me back together again. I feel like a new woman. I can't even put

into words the entire way that I feel. My suggestion was that you email Dr.

Levin or call him and ask about the procedure that you had. He has been totally

honest with me and didn't just tell me what he thought I wanted to hear. If you

have any questions and would like to email me personally, feel free to do so.

Kathy

new to the group

Hi everyone, I am new to the support group. I don't do any online

communicating, except e-mail, so I've been trying to figure out for

about a week how to get on-line so I can learn how to join in on

being supportive. I am looking for help from Dr. Levin. I guess

this is his support group. I have read his info over the net and

just received some literature from him in the mail. I want to have a

baby, carry a baby, be able to lie down with my fiance and know that

thier is a chance that we will be able to become pregnant. And I

have been searching for answers for over ten years now. I'd like to

hear some of the experiences some of you may have had with Dr.

Levin. Is he as good as it all reads? Has he really helped all of

these women become " whole " again? I don't know much about statistics

and all of that, I just want to know is it worth getting my hopes

up. This would be the ultimate dream come true to be able to have

children again. I am tired of being depressed and feeling jealous

when I see a pregnant woman or a newborn child. I want my own, and I

know that God does not condone these negative feelings. I had

inquired about a the operative procedure performed by my surgeon, he

states in his return letter that the procedure he used is

lapaposcopic bipolar tubal fulgeration. That sounds scary and

irreversable, I do not even see where Dr. Levin describes this in his

literature. Is anyone out there familiar with this type of surgery?

If so please respond to me, I am very afraid and becoming discouraged

again. Thanks to you all for letting me join in and God Bless you

all and good luck!

Vee

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Hi Vee,

My name is Ramona but everyone calls me Moe. Dr. Levin is very caring and

down to earth. He explains things so that even I (a country hillbilly) can

understand what it means. If you send him a copy of your path and op

reports he will call or email you and let you know if he thinks it can be

reversed. I am sure that things will work out for you.; IF you need any

thing or I can help you in any way just holler.

love ya,

moe

Re: new to the group

> Welcome to the group Vee. My name is Donna, I'm 34

> years old and my husband is 33. WE don't have any

> children together YET but he has done a great job

> helping to rause my 3 children. I had my TR done on

> 8-20-01. I'm not PG yet but I do feel whole again.

> Now when I look at them PG women I feel differently.

> I look at them and think that's going to be me

> someday. :-) If you talk to Dr Levin he will be able

> to explain your operative report better. He explains

> things so that you can understand them. You'll find a

> lot of support here at this group. If I can help just

> let me know, Donna

> --- shazeon01@... wrote:

> > Hi everyone, I am new to the support group. I don't

> > do any online

> > communicating, except e-mail, so I've been trying to

> > figure out for

> > about a week how to get on-line so I can learn how

> > to join in on

> > being supportive. I am looking for help from Dr.

> > Levin. I guess

> > this is his support group. I have read his info

> > over the net and

> > just received some literature from him in the mail.

> > I want to have a

> > baby, carry a baby, be able to lie down with my

> > fiance and know that

> > thier is a chance that we will be able to become

> > pregnant. And I

> > have been searching for answers for over ten years

> > now. I'd like to

> > hear some of the experiences some of you may have

> > had with Dr.

> > Levin. Is he as good as it all reads? Has he

> > really helped all of

> > these women become " whole " again? I don't know much

> > about statistics

> > and all of that, I just want to know is it worth

> > getting my hopes

> > up. This would be the ultimate dream come true to

> > be able to have

> > children again. I am tired of being depressed and

> > feeling jealous

> > when I see a pregnant woman or a newborn child. I

> > want my own, and I

> > know that God does not condone these negative

> > feelings. I had

> > inquired about a the operative procedure performed

> > by my surgeon, he

> > states in his return letter that the procedure he

> > used is

> > lapaposcopic bipolar tubal fulgeration. That sounds

> > scary and

> > irreversable, I do not even see where Dr. Levin

> > describes this in his

> > literature. Is anyone out there familiar with this

> > type of surgery?

> > If so please respond to me, I am very afraid and

> > becoming discouraged

> > again. Thanks to you all for letting me join in and

> > God Bless you

> > all and good luck!

> > Vee

> >

> >

>

>

> =====

> Donna Fannin 34

> DH Kenny 33

> DD's Angie & 15 & 16

> DS (bubby)14

> TL 3-15-93 TR 8-20-01

>

> __________________________________________________

>

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  • 6 years later...

Hi to everyone, my name is Holly and I'm new to the group. I've heard

such great things about this group and I am seeking some advice. My

situation is a bit different thou, I am not a direct caregiver. I

have fallen in love with someone who is a caregiver. Someone that

spends all day, every day in the same four walls. He receives no help

from friends or family, just me and most of the time I don't know what

I can do. I always feel so helpless. We talk about LBD from time to

time, but he mostly talks with all of you, and I am ok with that. In

fact, I am thankful for this group and giving him other people that

can relate to him better than I. But what really concerns me is him

and his condition. While he says he isn't stressed out, the stress is

taking its toll physically on him. All sorts of things are started to

go wrong or pop up. I think he feels no one understands him (excluding

the group). That he is going stir crazy being inside all day, every

day. He gets no relief, so he can't get out at all. I even feel that

he doesn't think I understand. I feel I do understand, I just don't

go thru the same exact experiences he does. I have the freedom to

come and go. And I don't know how I can help him. When I can, I help

with his loved one, or I will help with house work. But my main

concern is for him. He is the love of my life and I want to spend the

rest of my life with him. I'm just afraid that there may be nothing

left of him by the time this is over. In a couple of years, I may

have to be his caregiver. What can I do to help him? Thank you Holly

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Welcome Carla,

How lucky your Dad is to have you for his caregiver. While many LBDers have ups

and downs as you well know, they can go on for quite some time. While I am

sure you have a lot of mixed feelings, both that you don't want to lose him and

yet, you are questioning his quality of life.

Many of us have been down that road. I am sure you will have many responses as

people read your email, who have been or are in the same situation you are in.

While he may be having many struggles in life, he may have a physically strong

body at the same time.

I hope we can help you come to terms with what ever you need to come to.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

New to the Group

Hello and Good Evening;

My name is Charla and I am 45 years old. My father has LBD and PSP. He was

diagnosed a little over a year and a half ago. My husband and I sold our

house which was 2 1/2 hours away from my home town and moved in with my dad

to take care of him because I was not going to put him in a NH. His disease

has progressed and the last few days he has been sleeping a lot. I have

told him it is okay to let go and I asked him if he was holding on for me

and he shook his head yes. I told him not to. I love my dad very much and

this has been a up and down roller coaster ride from the beginning. I'm

really not ready to say goodbye, but he has no quality of life anymore as he

is totally incontinent and has been for months and can no longer walk or

stand on his own. I just wish he still had his mind. He has worked so hard

all of his life and next week he will be 78 years old. He is a strong man

and a fighter which shows as last October the Neurologist said he had 3

months to live if he was lucky, he has surpassed that by far and although he

has had bad days before; this seems different. He has aspirated more and he

has to have all food pureed and liquids thickened to honey consistency.

Hope to gain some peace through all of this.

Blessings,

Charla

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