Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 I totally agree! I try to eat healthy and avoid as much junk as I can and avoid bad places. I started taking the flavored CSM in a can then switched to the packets without any problems. I was very sick 4 yrs. ago and don't know what I would do without it. I don't think we can totally get away from artificial stuff in our world. I just do the best I can, taking my CSM and feeling much much better. Sue Diane, Personally, I have always taken the stuff in the packets with the artificial flavor and aspartame, and I tell you, its been a godsend. If I am getting those toxins out of my system, I am not going to split hairs over some artificial flavor or color.. Do you know how much of that stuff we get in our food? Its virtually unavoidable.t **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 Diane, Personally, I have always taken the stuff in the packets with the artificial flavor and aspartame, and I tell you, its been a godsend. If I am getting those toxins out of my system, I am not going to split hairs over some artificial flavor or color.. Do you know how much of that stuff we get in our food? Its virtually unavoidable.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 CSM. I told him I did not want the one with aspartane but sugar was ok. this what all of you are taking? I was taking the CSM in packets but another mold victim told me about CSM from a compounding pharmacy in Massachusetts so now I am taking the compounded version without all the " extras " Contact Hopkinton Drug, Inc.,@ 508 425 4441 for more information. NFI From everything I've read about mold and sugars, sugars are not really okay for those with mold/fungal issues. Sugar feeds the mold/fungus right? Aren't we trying to get the mold OUT? Personally I avoid sugar and products with sugar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 LOL. That was my reaction too. I've been trying so hard to avoid unnecessary chemicals and all the artificial stuff to help my body to detox and it looked so unhealthy, but I got awful swollen and burning rashes on my wrists with exposure and before I got the CSM they lasted a very long time but when I used the CSM at first sign, rash went away, so I took it orange-color and sweetner and all, but would prefer the plain product. The yellow dye in it is an allergen to some too. I understand why commercial food companies sugar-fy and brightly color their foods but I don't understand why a pharmacy feels the need. Maybe next time your doctor can get the compounded product for you. --- In , " dianebolton52 " <dianebolton@...> wrote: > > Hi Folks: After some time I finally got my doctor here to prescribe > CSM. I told him I did not want the one with aspartane but sugar was Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2008 Report Share Posted February 2, 2008 I don't get that stuff in my food unless I eat out. --- In , LiveSimply <quackadillian@...> wrote: > > Do you know how much of > that stuff we get in our food? Its virtually unavoidable.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 I'm with you...I don't do artificial colorings or sweetener. I get mine compounded with no sweetener/flavorings at all. There is a pharmacy in CA that does it quite a bit cheaper than any other pharmacy I've checked. V --- In , " dianebolton52 " <dianebolton@...> wrote: > > Hi Folks: After some time I finally got my doctor here to prescribe > CSM. I told him I did not want the one with aspartane but sugar was ok. > However, I just picked my presription up at the drug store and it is > ORANGE flavored. (in a can) The pharmacist said is was all flavored. Is > this what all of you are taking? I was worried it was artificial > flavor and color. Also, thanks for all the info. about Vitamin D, I am > unable to reply from my hotmail account to the posts. Thanks again, > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Could you share the name of that pharmacy? I am allergic to aspartame and would like to cut my sugar/sucrose intake. In what do you mix the compounded CSM? Although I was puzzled when everyone said the regular rx is orange flavored (because I don't really detect a flavor), I checked the insert and it is! I'm thinking it might be very nasty in plain water if it isn't flavored. > > I'm with you...I don't do artificial colorings or sweetener. I get mine > compounded with no sweetener/flavorings at all. There is a pharmacy in > CA that does it quite a bit cheaper than any other pharmacy I've > checked. V Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 That sounds interesting. What are the specifics? (name of company, price, etc) On Feb 3, 2008 2:32 PM, maribob7 <myrv@...> wrote: > > > I'm with you...I don't do artificial colorings or sweetener. I get mine > compounded with no sweetener/flavorings at all. There is a pharmacy in > CA that does it quite a bit cheaper than any other pharmacy I've > checked. V > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 , you can put it in fruit juice. > > Could you share the name of that pharmacy? I am allergic to aspartame > and would like to cut my sugar/sucrose intake. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Another girl from a lyme forum mentioned this pharmacy that she used for compounded CSM. Dollar Drug-1055 West College Ave., Santa , CA 95401, 707-575-1313, 800-728-3173 for cholestyramine 480 grams. They use stevia if you want that, but I get it with no sweatener at all and it's not that bad. I mix it with water and a little lemon juice. To me it tastes a lot better than any artificial sweatner, which I can't stand. I am not taking it now, but when I did I was taking 4 grams twice daily or 8 grams daily, or 240 grams a month. Thus a 480 gram canister would last me about 2 months. It was about $106.00 plus $1.50 shipping, and my insurance covered about 1/3 of it as it was considered a 3rd tier drug. Any other pharmacy I contacted wanted a lot more, in fact tuns more. Evidently there is a lyme doctor near there, and they sell quite a bit of it and get a good deal from the supplier. At least that's what the pharmacist told me. Mine was mixed with just cellulose as a binder and that was it. I didn't like taking the regular prescription of CSM as it has aluminum in it. Why on earth they have to put that in there I'll never understand, but it's in there folks....D & C Yellow #10 aluminum lake, and FD & C Yellow #6 aluminim lake. Besides that it has propylene glycol, sorbitol, sucrose, natural and artifical orange flavor. http://www.parpharm.com/pdf/product/0936.pdf Any more questions...feel free to ask. V > > > > I'm with you...I don't do artificial colorings or sweetener. I get mine > > compounded with no sweetener/flavorings at all. There is a pharmacy in > > CA that does it quite a bit cheaper than any other pharmacy I've > > checked. V > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 i thought that about mold & sugars as well. when i ran it by Dr Shoemaker (back in 2004) and inquired if i should continue limiting my sugar intake, he acted as if sugar wouldn't really exacerbate my mold issues. i've been through at least half a dozen no-sugar/low-carb diets during the past several years. i've never really been a soda drinker & water is my drink of choice. once u detox like i have (seeing is believing), occasionally having sugar isn't a big concern. > > > From everything I've read about mold and sugars, sugars are not really > okay for those with mold/fungal issues. Sugar feeds the mold/fungus > right? Aren't we trying to get the mold OUT? Personally I avoid sugar > and products with sugar. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2008 Report Share Posted February 5, 2008 I've been taking CSM since Dec. 2003 and never had any diet restrictions. I do however watch what I eat and I don't drink alcohol of any kind. I don't eat many sweets or bread. Mainly I stick to veggies, meats and if I eat bread it's usually wraps or natural breads.Breakfast is cheerios, flaxseed, blueberries or bananas wiith soy milk,. I stick to water, decaf tea and an occasional diet coke. Sue i thought that about mold & sugars as well. when i ran it by Dr Shoemaker (back in 2004) and inquired if i should continue limiting my sugar intake, he acted as if sugar wouldn't really exacerbate my mold issues. i've been through at least half a dozen no-sugar/low-issu diets during the past several years. i've never really been a soda drinker & water is my drink of choice. once u detox like i have (seeing is believing), occasionally having sugar isn't a big concern. **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I once ordered the compounded CSM, then let it sit in the plastic container and when I finally opened it, it smelled fishy and I couldn't use it. I use the packets (the ones sweetened with sucrose, not aspartame). I have to take it in food; if I put it in water and drink it, it burns my throat. It's pretty tasty with a little baby food, like organic sweet potatoes! Beth **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Has anyone had trouble with compounded CSM going bad easier than regular? I had the orange stuff and I had it for a year and it was okay, or perhaps with all the artificial stuff couldn't tell it was bad. Maybe keep it in cool, dry place? Last time I finished can in less than a couple months though. > > I once ordered the compounded CSM, then let it sit in the plastic container > and when I finally opened it, it smelled fishy and I couldn't use it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Re: Dr Shoemaker and sugar question. Dr Shoemaker addresses toxic conditions and he doesn't address fungal infection issues as far as my experiences. I don't think sugar is bad if you are ill with mold toxins. However if you have " fungal infection " , sugar definately should be avoided or used very sparingly. --- In , " xhannahx24 " <xhannahx24@...> wrote: > > i thought that about mold & sugars as well. when i ran it by Dr > Shoemaker (back in 2004) and inquired if i should continue limiting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 With all kinds of vitamins, its important to keep them tightly sealed, in a clean, cool and dry place. Never leave a bottle or can open.. that is asking for trouble.. Some, like active probiotic cultures (super yoghurts, kefir, etc, basically) should be refrigerated.. But make sure the lids are tight or they are double packed or they might pick up smells from other foods? On Feb 10, 2008 9:41 PM, barb1283 <barb1283@...> wrote: \ > > Has anyone had trouble with compounded CSM going bad easier than > regular? I had the orange stuff and I had it for a year and it was > okay, or perhaps with all the artificial stuff couldn't tell it was > bad. > Maybe keep it in cool, dry place? Last time I finished can in less > than a couple months though. > > Quote Link to comment Share on other sites More sharing options...
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