Re: Now what?/mabesser

[Guest guest]

Hi,

We can surely use you here to help others with frustrations and questions, but

have you thought of being a volunteer for the LBDA and help spread awareness of

LBD in communities?

http://www.lewybodydementia.org/vol/

mabesser wrote:

So my father's battle with LBD is over, but I find I want to continue

learning about this disease and helping others. Any suggestions from

the group?

Welcome to LBDcaregivers.

[Guest guest]

Oh, yes, Janet. Forgot about that idea. That was what I did first

with LBDA to get my feet wet so to speak... That too is quite

gratifying and people are so responsive to learning about LBD. When I

did that (actually could still do a ton more of this in my area - but

no time) I'd email a personalized letter and include a link to the

LBD brochure. Then I'd ask if they'd be willing to display LBD

brochures at their facility and if so, send the request to LBDA to

mail brochures to the facility. My goal was getting them into

doctor's waiting rooms - b/c it's quite often the caregiver who

figures out LBD before the doctors... I'd send this introductory

letter + link to the brochure to local memory clinics, geriatric

doctor's offices, ALFs, senior centers, etc. Towards the end of my

run doing this project I was also sending as an attachment a flier

about the local support group meeting... Once I finish this 'find LBD

specialists' project I'll go back to do this again... there's so many

more places to send the info too...

>

> Hi,

> We can surely use you here to help others with frustrations and

questions, but have you thought of being a volunteer for the LBDA and

help spread awareness of LBD in communities?

> http://www.lewybodydementia.org/vol/