Re: Back from the nursing home-venting

[Guest guest]

Oh, (((((HUGS))))), Donna This disease is so darn hard. Sometimes,

their perception of things is so skewed that they actually believe some of

what they say that we know is not true. I also believe they get phantom

pains which are real to them but don't actually exist. Kind of like " pain

hallucinations " . Does that make any sense? Their brain is telling them

they hurt but they aren't actually?

Did her eyes look dry? Is that a known side effect of any of the

medications, she's on.

When Mom has a down day, I've learned I just have to try to ignore it. I

nod, hold her hand, tell her I love her and that I wish I could fix it, but

I can't. Then I have to let it go.

Our loved ones are on a roller coaster I would never want to ride and the

truth is that while they try to take us on the ride with them, we can NOT go

If we ride it with them, none of us will survive the trip and they need us

to survive and stay strong.

Gladys

-- Back from the nursing home-venting

Went to the NH to talk with mom about her meds. She was complaining

that her eyes were dry. She says that she's over medicated. Even

though she says the Darvocet is a 'God send'. She needs the neurotin

too. Oh and the tylenol and the 81mg aspirin. That doesn't include

the Risperdol and Aricept. Throw in a Zoloft. Then there is the

Pepcid, Colace, Multivitamin, Pyridium for occasional bladder spasms,

Vitamin D and a monthly B12 injection.

She was laying in bed with her eyes closed. Then she had to go to the

bathroom and wanted me to help her get up. Then get her walker. She

tiptoed to the bathroom, stopping occasionally with a slight tremor.

Then she said she couldn't hold it and went in her depends. She

toddled onward toward the bathroom. Made it in there okay. Any time

she doesn't want to talk about anything she has a pain(hurting eyes

today) or is incontinent and has to go to the bathroom.

She complained about the blinds, the tv that's too loud, it's too

hot, she's claustrophobic, she wants to go home....crying, she's

wasted a year of her life here, she wants to die, just kill me, I

don't care what you do (but she's not signing the guardianship

papers). Nobody cares.....etc.

The nurses say shes faking it. The drama makes me think so. But the

tremors I question. They say she walks down the hall fine until she

sees one of them and then she gets needy and slow. She manages the

bathroom by herself at night. She can really put on a show for the

doctor. That's why she's on all the meds.

I left the info on LBD and Risperdol with the head nurse. Already

sent a copy to the psychologist.

All the lying, manipulation and backstabbing are getting to me. I

want to quit. I'm tired of being the bad guy. I'm tired of making

decisions. Think I'll take a knitting and catalog break:)

Donna Jean

Welcome to LBDcaregivers.

[Guest guest]

Donna - I'm sorry you had such an upsetting day... My mother

would also cry a lot (definitely as a symptom to LBD b/c she wasn't

the crier type) She did really well w/ Celexa (antidepressant) - she

was still teary, but not as weepy...

It sounds like your mom is on a lot of meds. And the dry eye could be

a side effect... and also keep in mind that she may say 'dry eye' but

might mean something else regarding the eye area - e.g. with LBD it's

difficult for them to remember the exact words to use... just

something to think about...

Darvocet was recently discussed - it's another one of those meds to

keep an eye on. Here's a link to the recent message regarding it:

http://health.groups.yahoo.com/group/LBDcaregivers/message/71426

http://health.groups.yahoo.com/group/LBDcaregivers/message/71427

What are you knitting?

>

> Went to the NH to talk with mom about her meds. She was complaining

> that her eyes were dry. She says that she's over medicated. Even

> though she says the Darvocet is a 'God send'. She needs the

neurotin

> too. Oh and the tylenol and the 81mg aspirin. That doesn't include

> the Risperdol and Aricept. Throw in a Zoloft. Then there is the

> Pepcid, Colace, Multivitamin, Pyridium for occasional bladder

spasms,

> Vitamin D and a monthly B12 injection.

>

> She was laying in bed with her eyes closed. Then she had to go to

the

> bathroom and wanted me to help her get up. Then get her walker. She

> tiptoed to the bathroom, stopping occasionally with a slight

tremor.

> Then she said she couldn't hold it and went in her depends. She

> toddled onward toward the bathroom. Made it in there okay. Any time

> she doesn't want to talk about anything she has a pain(hurting eyes

> today) or is incontinent and has to go to the bathroom.

>

> She complained about the blinds, the tv that's too loud, it's too

> hot, she's claustrophobic, she wants to go home....crying, she's

> wasted a year of her life here, she wants to die, just kill me, I

> don't care what you do (but she's not signing the guardianship

> papers). Nobody cares.....etc.

>

> The nurses say shes faking it. The drama makes me think so. But the

> tremors I question. They say she walks down the hall fine until she

> sees one of them and then she gets needy and slow. She manages the

> bathroom by herself at night. She can really put on a show for the

> doctor. That's why she's on all the meds.

>

> I left the info on LBD and Risperdol with the head nurse. Already

> sent a copy to the psychologist.

>

> All the lying, manipulation and backstabbing are getting to me. I

> want to quit. I'm tired of being the bad guy. I'm tired of making

> decisions. Think I'll take a knitting and catalog break:)

>

> Donna Jean

>

[Guest guest]

My Dad took sick on Dec 11 and had a terrible 2 week

stay at a area hospital. I'm a Lpn at an area rehab

hospital and tried to get my dad at my hospital. He

was so snowed with risperdol and zeprexa that he

couldn't eat or talk. was having hallucinations

anyway i decided to stay over night at the hospital

and couldn't believe what i was seeing. anyway to make

story short i was able to talk to one of our rehab

doctors who did a consult on my dad and he told me yes

we will take your dad. he spend 18 days at my

hospital. he is now home and tonite looks like his chf

is acting up sob and lots of edema in his legs, gave

him extra dose of his lasix and doctor is coming to

the house to see him tomorrow. the rehab dr said dad

has lbd , i wonder why no one was able to see this at

the first hospital. Gladys I just wanted to say

Semper Fi to you, when I was reading my emails i had

to do a double take, my eyes teared up and i said omg

its Gladys (I'm so glad I found this group)Hugs to

everyone K Audubon NJ

--- Gladys Stefany wrote:

> Oh, (((((HUGS))))), Donna This disease is so

> darn hard. Sometimes,

> their perception of things is so skewed that they

> actually believe some of

> what they say that we know is not true. I also

> believe they get phantom

> pains which are real to them but don't actually

> exist. Kind of like " pain

> hallucinations " . Does that make any sense? Their

> brain is telling them

> they hurt but they aren't actually?

>

> Did her eyes look dry? Is that a known side effect

> of any of the

> medications, she's on.

>

> When Mom has a down day, I've learned I just have to

> try to ignore it. I

> nod, hold her hand, tell her I love her and that I

> wish I could fix it, but

> I can't. Then I have to let it go.

>

> Our loved ones are on a roller coaster I would never

> want to ride and the

> truth is that while they try to take us on the ride

> with them, we can NOT go

> If we ride it with them, none of us will survive

> the trip and they need us

> to survive and stay strong.

>

> Gladys

>

> -- Back from the nursing

> home-venting

>

> Went to the NH to talk with mom about her meds. She

> was complaining

> that her eyes were dry. She says that she's over

> medicated. Even

> though she says the Darvocet is a 'God send'. She

> needs the neurotin

> too. Oh and the tylenol and the 81mg aspirin. That

> doesn't include

> the Risperdol and Aricept. Throw in a Zoloft. Then

> there is the

> Pepcid, Colace, Multivitamin, Pyridium for

> occasional bladder spasms,

> Vitamin D and a monthly B12 injection.

>

> She was laying in bed with her eyes closed. Then she

> had to go to the

> bathroom and wanted me to help her get up. Then get

> her walker. She

> tiptoed to the bathroom, stopping occasionally with

> a slight tremor.

> Then she said she couldn't hold it and went in her

> depends. She

> toddled onward toward the bathroom. Made it in there

> okay. Any time

> she doesn't want to talk about anything she has a

> pain(hurting eyes

> today) or is incontinent and has to go to the

> bathroom.

>

> She complained about the blinds, the tv that's too

> loud, it's too

> hot, she's claustrophobic, she wants to go

> home....crying, she's

> wasted a year of her life here, she wants to die,

> just kill me, I

> don't care what you do (but she's not signing the

> guardianship

> papers). Nobody cares.....etc.

>

> The nurses say shes faking it. The drama makes me

> think so. But the

> tremors I question. They say she walks down the hall

> fine until she

> sees one of them and then she gets needy and slow.

> She manages the

> bathroom by herself at night. She can really put on

> a show for the

> doctor. That's why she's on all the meds.

>

> I left the info on LBD and Risperdol with the head

> nurse. Already

> sent a copy to the psychologist.

>

> All the lying, manipulation and backstabbing are

> getting to me. I

> want to quit. I'm tired of being the bad guy. I'm

> tired of making

> decisions. Think I'll take a knitting and catalog

> break:)

>

> Donna Jean

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Donna

I was just rereading your message and that sure sounds like your Mom might know

what she is talking about. It sounds like an awful lot of meds to me. And

problems with meds are one of the things LBD patients have. And you haven't

even talked about how much of each she is getting. She may be right.

I spent months at the nh trying to get Mom off meds she had gotten put on in the

hospital. As she came off meds she did better and better.

I think because MDs don't always know about LBD they use the same drugs for all

dementia. 's article about to much drugs, is certainly true for our

LOs.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Back from the nursing home-venting

Went to the NH to talk with mom about her meds. She was complaining

that her eyes were dry. She says that she's over medicated. Even

though she says the Darvocet is a 'God send'. She needs the neurotin

too. Oh and the tylenol and the 81mg aspirin. That doesn't include

the Risperdol and Aricept. Throw in a Zoloft. Then there is the

Pepcid, Colace, Multivitamin, Pyridium for occasional bladder spasms,

Vitamin D and a monthly B12 injection.

She was laying in bed with her eyes closed. Then she had to go to the

bathroom and wanted me to help her get up. Then get her walker. She

tiptoed to the bathroom, stopping occasionally with a slight tremor.

Then she said she couldn't hold it and went in her depends. She

toddled onward toward the bathroom. Made it in there okay. Any time

she doesn't want to talk about anything she has a pain(hurting eyes

today) or is incontinent and has to go to the bathroom.

She complained about the blinds, the tv that's too loud, it's too

hot, she's claustrophobic, she wants to go home....crying, she's

wasted a year of her life here, she wants to die, just kill me, I

don't care what you do (but she's not signing the guardianship

papers). Nobody cares.....etc.

The nurses say shes faking it. The drama makes me think so. But the

tremors I question. They say she walks down the hall fine until she

sees one of them and then she gets needy and slow. She manages the

bathroom by herself at night. She can really put on a show for the

doctor. That's why she's on all the meds.

I left the info on LBD and Risperdol with the head nurse. Already

sent a copy to the psychologist.

All the lying, manipulation and backstabbing are getting to me. I

want to quit. I'm tired of being the bad guy. I'm tired of making

decisions. Think I'll take a knitting and catalog break:)

Donna Jean