Re: thoroscopy-surgery for bronchiectasis

[Guest guest]

Hi Thereza,

So good surgery worked well for you – like many things, it is dependent on many factors whether suitable or effective.

And a full and active life...! Wish!!

Thx for your encouragement for Abraham – it is a big decision.

joy

[Guest guest]

Hi Barbara, Thereza

Just like to make a comment re web-searching information. I have learnt more via internet in 2 yrs, than in 55 yrs with this disease being told nothing.

For eg, despite being hospitalised for coughing up large amts blood (25 yrs ago), I was never told haemoptysis can be part of bronch...

There are many ways to learn, but always cross-reference any info from other sources. I have been given misleading or mis-information by doctors and specialists in my life, have had questions avoided, trivialised, fobbed off - and others on this site I know would agree this can happen.

It is good to hear of successful treatment, you lucky guys!!! May you continue in good health and energy,

Bless you

joy

[Guest guest]

Hi Joy,

So it is a risk if iam not undergoing surgery, because more

infections can cause more damage.

I think may be thats the reason DR is advicing for the surgery..

but can u advice which is the best center for the thoroscopy

surgery..iam located in india..

Is there any site or good material available in the site that you can

advice for me to further resaerch??

Thanks a lot.

-- In bronchiectasis , joy hensby

wrote:

>

> Hi Abraham,

> Bronchiectasis begins due to some kind of damage to a part of lung

tissue,

> this increases chance of infections, more infections cause more

damage, so

> the bronchiectasis very slowly and gradually spreads through the

lung.

>

> I have noticed while doing websearches that ONE of the causes of

> bronchiectasis CAN be (not always) of bronchiectasis. Remember,

surgery

> costs big $$$, and surgeons get most of the $$, so it is in their

own

> interest to operate. Surgery can be very hard on the body, for

recovery and

> afterward, for possible infection.

>

> So my email was really to encourage you to research as much as you

can...

> I, and others on this site, have experience of doctors not always

being 100%

> correct. If your bronchiectasis is in just one only small area

then it

> could be the best thing for you....

>

> are you able to do research using the internet?

>

> Best wishes

> Joy

>

[Guest guest]

> Hi joy,

> Thanks for ur comments..

> My name is Abraham samuel. what you mean by Bronch does slowly

> degenerate....?? i heard from chest seminars that if u do the

surgary

> for removing the lower lobe, then there is a chance for the lungs

> normal area to expand itself and fill the gap slowly...how ever iam

not

> sure..

>

> > Name??? Re surgery,

> >

> > Can you check websites, get some info b4 you go ahead. Some

indicate

> > surgery as CAUSE of bronchiectasis, so be informed first.... But

if

> your

> > bronch is localised it may be just the thing to give you a much

> better life

> > while you have the chance. Bronch does slowly degenerate.... Key

> is to

> > find out everything you possibly can.,

> > Good luck

> > joy

> >

>

>

>

>

>

>

> ---------------------------------

> OMG, Sweet deal for Yahoo! users/friends: Get A Month of

Blockbuster Total Access, No Cost. W00t

>

[Guest guest]

Hi Abraham,

ANY surgery is a risk, often understated. But, as Thereza and Barbara attest, they had great results w ability to lead a pretty good life. Yes, bronch does slowly degenerate, but that can depend on many things too. I had from early childhood, many people aren’t affected til they’re 40-50 yrs old...so, very variable how it affects your life.

Success for surgery would depend most on:

Extent of the bronchiectasis – I can’t remember if you said bronch was localised or bilateral, scattered. Would have to be localised.

Duration you’ve had bronch - I’d think for surgery you would be not have had for long... By that I don’t mean the diagnosis – you may have had bronch for many years before dx (=diagnosis) was made. I mention this because you mention lots sputum, easy infx and fever – have you had chest infx a long time?

It is hard to know what to advise for another country, but will give you some websites to check out (below), then at least you can go back to your doctor or specialist with good questions. I can send pdf articles as attachments to your private email, if you wish me to do that, am happy to do so.

www.australiandoctor.com.au/ htt/pdf/AD_HTT_031_038___MAY20_05.pdf

http://www.pharmaxis.com.au/pharmaxis/index.cfm?632E8A2E-F204-5857-331E-A49C83585072

lungdiseases.about.com/od/ bronchiectasis/a/treat_bronchiec.htm -

http://www.lung.ca/diseases-maladies/a-z/bronchiectasis-bronchiectasie/index_e.php

http://www.patient.co.uk/showdoc/23069038/

http://www.nlm.nih.gov/medlineplus/ency/article/000144.htm

http://www.lung.ca/diseases-maladies/a-z/bronchiectasis-bronchiectasie/index_e.php

http://lungdiseases.about.com/od/bronchiectasis/a/bronchiectasis.htm

http://lungdiseases.about.com/od/termsdefinitions/f/Pneum_v_Bronch.htm

I do hope these are of help, please feel free to keep asking questions, the more you know, the better. General rule with web-searching, beware any put out my a company selling medications in particular. Usually US and UK government sites are reliable, and more likely to be taken notice of by your own doctor. If you can copy or print out relevant sections, esp if source is medical institution/hospital - your doctor can hardly say the info isn’t reliable then.

Best of luck, would really like to know how you go with this. I found it hard most of my life to get adequate information about a disease I was dx at 18 y old, is Australia. I get a feeling bronch is ‘new’ in India (in terms of being recognised) and have read one Indian site that stated bronch was not a serious illness and did not impact on quality of life, being easily treated by antibiotics. Unfortunately this is not entirely true – usually bronch is well advanced by the time a dx is made, and many ‘bugs’ are resistant to antibiotics ...

Enough for now!!!

Keep in touch

joy

[Guest guest]

dear Joy,

many thanks for your inputs..

though i am following the remedy measures and taking antibiotics as

per the DR advice right from my childhood, these things really dont

help me much now.. the only alternative infront of me is undergoing a

surgery and wait for the results and as u said that may be a risk as

well.

now as per the pharmaxis.com website , i have seen the Bronchitol

(inhaler) , i would like to know how far is this medicine good for

the bronchiectasis . Will it really helpfull to get rid of the mucus

(sputum) easily ?? could you advice ??

as of now i have to take chest physiotherapy daily myself to clear

out the mucus and keep myself from infections..is there any good

medicines u are aware to clear out mucus easily with out any manual

methods..

And to just let u know that we have lot of ayurvedic treatments

avaiilable in India but these treatment are helpful for only mild

broch.. patients and not meant for chronic bronch patients..and i

dont think most of the hospitals here have done enough researches in

this feild..

Thanks in advance,Abraham

>

> Hi Abraham,

> ANY surgery is a risk, often understated. But, as Thereza and

Barbara

> attest, they had great results w ability to lead a pretty good

life. Yes,

> bronch does slowly degenerate, but that can depend on many things

too. I

> had from early childhood, many people aren¹t affected til they¹re

40-50 yrs

> old...so, very variable how it affects your life.

>

> Success for surgery would depend most on:

> Extent of the bronchiectasis ­ I can¹t remember if you said bronch

was

> localised or bilateral, scattered. Would have to be localised.

>

> Duration you¹ve had bronch - I¹d think for surgery you would be not

have had

> for long... By that I don¹t mean the diagnosis ­ you may have had

bronch for

> many years before dx (=diagnosis) was made. I mention this because

you

> mention lots sputum, easy infx and fever ­ have you had chest infx a

long

> time?

>

> It is hard to know what to advise for another country, but will

give you

> some websites to check out (below), then at least you can go back

to your

> doctor or specialist with good questions. I can send pdf articles

as

> attachments to your private email, if you wish me to do that, am

happy to do

> so.

>

> www.australiandoctor.com.au/ htt/pdf/AD_HTT_031_038___MAY20_05.pdf

> http://www.pharmaxis.com.au/pharmaxis/index.cfm?632E8A2E-F204-5857-

331E-A49C

> 83585072

> lungdiseases.about.com/od/ bronchiectasis/a/treat_bronchiec.htm -

> http://www.lung.ca/diseases-maladies/a-z/bronchiectasis-

bronchiectasie/index

> _e.php

> http://www.patient.co.uk/showdoc/23069038/

> http://www.nlm.nih.gov/medlineplus/ency/article/000144.htm

> http://www.lung.ca/diseases-maladies/a-z/bronchiectasis-

bronchiectasie/index

> _e.php

> http://lungdiseases.about.com/od/bronchiectasis/a/bronchiectasis.htm

>

http://lungdiseases.about.com/od/termsdefinitions/f/Pneum_v_Bronch.htm

>

> I do hope these are of help, please feel free to keep asking

questions, the

> more you know, the better. General rule with web-searching, beware

any put

> out my a company selling medications in particular. Usually US and

UK

> government sites are reliable, and more likely to be taken notice

of by your

> own doctor. If you can copy or print out relevant sections, esp if

source

> is medical institution/hospital - your doctor can hardly say the

info isn¹t

> reliable then.

>

> Best of luck, would really like to know how you go with this. I

found it

> hard most of my life to get adequate information about a disease I

was dx

> at 18 y old, is Australia. I get a feeling bronch is Œnew¹ in

India (in

> terms of being recognised) and have read one Indian site that

stated bronch

> was not a serious illness and did not impact on quality of life,

being

> easily treated by antibiotics. Unfortunately this is not entirely

true ­

> usually bronch is well advanced by the time a dx is made, and many

Œbugs¹

> are resistant to antibiotics ...

> Enough for now!!!

> Keep in touch

> joy

>

[Guest guest]

Iam scared of getting the cold climate. also i cannot sleep in an AC

room or sleep with the table fan on.

me and my wife have indifference on this many times.

is any body of you having the same problem ??

coughing up the sputum 2 to 3 times in a day is very diificult when

the sputun is very hard and sticky, some times even with postral

drainage technique its difficuly to cough out.

Abraham

> >

> > Just read that Spiriva can cause an increase in stroke risk.

It's

> a new med, relatively, so they are still finidng out things about

> it's long term effects. My pulm docs speak highly of it, too.

Don't

> know what will come of this new stroke risk fact.

> > Kay

> >

> > -------------- Original message --------------

> > From: Mmanow1@

> > I live in the United States, and don't know if this medication is

> available in other countries, but my pulmonary doctor put me on

> Spireva, a capsule that you puncture with a special piece of

> equipment, and inhale the contents, the generic name is

titiatropin.

> It has really made a change in the number of infections etc, that I

> get. I still have lots of heavy coughing, phlegm, but NO

infections.

> > Marilyn

> >

> >

> >

> >

> >

> >

> > Planning your summer road trip? Check out AOL Travel Guides.

> >

>

--- End forwarded message ---