Re: The disease

[Guest guest]

GEEEEEZ

The lady I was talking about, the hospice person, from the

way I worded the post it sounded like she had the disease.

It was my sister I was referring to about getting help for.

Hope this clears up any questions one may have had.

That is the reason I don't post much to the group.

Jayn

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

It is the disease, and it is hard to remember.

We probably need a slogan for this disease, and a few campfire songs

to the tune of popular nursey rhymes.

We are really taking shots at the disease when we vent, i think,

but it is hard not to put the LO's face in the place of the disease.

None of us mean any disrespect to the LO, and here more than any

place in the world, we need to remember it is the disease, and not

judge the writers as they vent.

Venting is really the letting off of negative emotions, and the

prevention of letting them off on the person with the disease.

This is such a drainer of emotions, and physical strenght. Always

know we are so much better off to put it down here, than to lay it on

a LO who isn't even aware.

This of all places should be the safe house for caregivers.

Frustration leaks out in our words, but I know that none of us means

disrespect to the LO or the LO of other readers.

Lewy Bodies are not known to bring out the best in any of us.

Carol

>

> Ladies & Men too,

> We have to remind ourselves ITS THE DISEASE and

> God bless them they can't help it.

> I have found myself dong the same things you have

> posted.

> One thing you may or may not know.

> Hospice will come in and help with baths and too,

> they stay 3 hours on Wed for me to have respite care.

> I didn't think I could get help from them but the

> lady told me she had an incurable disease and was

> dying even tho it may take more than 6 months and

> that they had one patient they had been seeing

> for over a year and another one over 2 years. They

> have been seeing Ruth (my sister) 3 days a week,

> Mon and Fri they do the bathing thing and wipe down

> the bath room, on Wed they change the linens, vacuum, clean

> the bath room, dust, the bath, do her laundry and mop,

> so she is here 3 hours

> A nurse comes once a week to check her BP and in general

> find out how she is doing.

> I too had to address the eating problem. The nurse said that

> was part of the dying process, not meaning she would die

> in the next month but a part of dying. She has lost about

> 5 lbs in the last 6 weeks, but that is ok, she weighted 204.

> I was told if she only ate one meal a day that was ok, but

> to keep things out where she could get to it, and wanted to

> snack (sp) now I can't spell She loves oranges, so we try

> and keep those out, she likes ice cream, so I offer that,

> and then there is always insure plus. I think now they have

> other stuff that taste better. One could always offer that

> in ice cream as a milk shake.

> I have about come to conclusion to let them have whatever

> they want, these people are not going to live long and my sister

> is 90. I say that and yet I know if she goes to the hospital

> I will be the one having to stay with her, so I do try and

> get her to eat good food, but I am not going to battle over it.

> We just have to pick and choose our battles. Those like

> bathing I will battle over that, for sure I don't want anyone

> smelling her, but then in the scheme of life what does

> it really matter?

> Oh well, just some thoughts that has worked for me.

>

> Jayn

> in S GA

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> **************Start the year off right. Easy ways to stay in

shape.

> http://body.aol.com/fitness/winter-exercise?

NCID=aolcmp00300000002489

>

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