Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Hello, is it Alan or Dirk? My apologies for not knowing your name right away. Thank you for your endearing e-mail, for I admire your courage and fortunate to have someone with LBD to share and help educate us from a different perspective. If you do not mind me asking and you can just let me know if I am being too nosy, but when were you diagnosed with LBD? How do you feel with your loved ones and environment around you has changed? I have to run, but will write to you more later and look forward to getting to know you better. Thank you again and please let me know if you need anything. Hugs, ~beth~ Alan scott wrote: beth welcome to our group. We are glad you are here. You will find alot of selfless caregivers such as yourself with a wealth of information and experience. Some have been all the way through the process and still selflessly give of themselves to stay on here with us. There are a few of us such as myself who actually have the Lewy Body Disease. I will be happy when appropriate to share my experiences from my perspective as one who is afflicted. Again welcome hope to hear from you. Dirk __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Good Girl! Give it a whirl Imogene In a message dated 5/21/2006 11:42:04 PM Central Daylight Time, calico_rose2000@... writes: -Hi Imogene, Thank you for your response. It has been harder the last several weeks than it has been the last seven years trying to deal with this LBD. LO has always been fairly easy to deal with after Dr. put him on Seroquel. I said it was a GOD send for us. I sure do pray that a prevention or a cure will be found in the near future for the others to come along behind us. It will be to late for us. The Dr. said I would have to put LO in NH but I have been able to keep him home & still work up until this week. I am on FML from work for now. I do not know if I can help anyone else but I would be glad to try to see if I could. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 -Hi Imogene, Thank you for your response. It has been harder the last several weeks than it has been the last seven years trying to deal with this LBD. LO has always been fairly easy to deal with after Dr. put him on Seroquel. I said it was a GOD send for us. I sure do pray that a prevention or a cure will be found in the near future for the others to come along behind us. It will be to late for us. The Dr. said I would have to put LO in NH but I have been able to keep him home & still work up until this week. I am on FML from work for now. I do not know if I can help anyone else but I would be glad to try to see if I could. Laurie -- In LBDcaregivers , Iward27663@... wrote: > > Welcome Laurie, If I didn't say so before. I can't remember who I said hello > to and who I didn't. But a big welcome to one and all. > > This List has helped me tremendously. You can help, by sharing your > experiences and what you have found to work for you. > > Glad you are here, but sorry it is for the unpleasant reason it has to be > for you. > > Imogene > Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with > Parkinsonism, and Frontal Lobe Disease with Apathy, And AD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Welcome to all the new members that have joined over the past few weeks! You have come to the right place for you and your loved ones. This message board is WONDERFUL! Much Peace to you on your journey through LewyVille, Stevie Stevie in So. California LO - Mr. B (Uncle) 82 yrs. Lives in my home - 3 yrs. DX Parkinson's 1993 DX LBD 2003 - probably has PDD Is on Hospice. End stage. * * * * * > > Welcome Laurie, If I didn't say so before. I can't remember who I said hello > to and who I didn't. But a big welcome to one and all. > > This List has helped me tremendously. You can help, by sharing your > experiences and what you have found to work for you. > > Glad you are here, but sorry it is for the unpleasant reason it has to be > for you. > > Imogene > Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with > Parkinsonism, and Frontal Lobe Disease with Apathy, And AD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi Sinead: Welcome to our family! My name is Eckhart and I am IMDSA's national vice president. I assist Kristy with various projects. Currently, I also assist with our public relations...writing and sending articles to newspapers, networking with other groups, etc. My son, Henry, is 4 yrs. old (MDS). I also have a 2yr. old daughter, Callie. I'm married and live in Michigan, USA. --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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