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Vee,

Hi, Welcome to the group. Yes, Dr. Levin is a wonderful doctor. I had

my surgery with him in Dec, 2000. He gave me a 75% chance to concieve and I

concieved in July but unfortantely I miscarried. So I know his surgery for

me was successful. If you have any questions please ask!

26

Misty 30

Ricky 9

Shelby 8

TL 8-27-93 done by a surgeon dumb enough to listen to me *lol*

TR 12-18-00 - Dr. Levin

Baby Fenton (Angel in Heaven)

>From: shazeon01@...

>Reply-To: TubalLigationReversal

>To: TubalLigationReversal

>Subject: new to the group

>Date: Mon, 29 Oct 2001 23:34:21 -0000

>

>Hi everyone, I am new to the support group. I don't do any online

>communicating, except e-mail, so I've been trying to figure out for

>about a week how to get on-line so I can learn how to join in on

>being supportive. I am looking for help from Dr. Levin. I guess

>this is his support group. I have read his info over the net and

>just received some literature from him in the mail. I want to have a

>baby, carry a baby, be able to lie down with my fiance and know that

>thier is a chance that we will be able to become pregnant. And I

>have been searching for answers for over ten years now. I'd like to

>hear some of the experiences some of you may have had with Dr.

>Levin. Is he as good as it all reads? Has he really helped all of

>these women become " whole " again? I don't know much about statistics

>and all of that, I just want to know is it worth getting my hopes

>up. This would be the ultimate dream come true to be able to have

>children again. I am tired of being depressed and feeling jealous

>when I see a pregnant woman or a newborn child. I want my own, and I

>know that God does not condone these negative feelings. I had

>inquired about a the operative procedure performed by my surgeon, he

>states in his return letter that the procedure he used is

>lapaposcopic bipolar tubal fulgeration. That sounds scary and

>irreversable, I do not even see where Dr. Levin describes this in his

>literature. Is anyone out there familiar with this type of surgery?

>If so please respond to me, I am very afraid and becoming discouraged

>again. Thanks to you all for letting me join in and God Bless you

>all and good luck!

>Vee

>

_________________________________________________________________

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Welcome to the group. I'm new too. I just joined over the weekend, so

everything is still new to me, as well. I can say that these ladies have

really been caring and concerned about each of us. It is a loving group and I

think you'll like it here. I do!

Amethyst

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Welcome to the group qtepy. What's your name?

Congrats on your phone consult! You'll feel much

better after talking to Dr Levin. It makes it all

seem more real. If I can help ya out just

hollar,Donna

--- qtepy4ever@... wrote:

> Just wanted to say that I am new to the group. I am

> trying to raise

> funds for my TR. My phone consult is 11/9. Does

> anyone have any

> ideas. Just a note, this group thing is very new to

> me and I will

> have to train myself on it so please be patient with

> me.

>

> Oh, and just an overview...I am 32 with one child.

> I had a TL at the

> age of 22 after the birth of my daughter. I have

> raised her alone

> since day one and have met my soul mate of two years

> now and we are

> planning our wedding. He has no children. My

> prayers are that God

> blesses me in the ability to have a TR and that my

> husband (to be)

> and I can have a family together.

>

> GOD BLESS ALL OF YOU!!!

>

>

=====

Donna Fannin 34

DH Kenny 33

DD's Angie & 15 & 16

DS (bubby)14

TL 3-15-93 TR 8-20-01

__________________________________________________

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Vee,

I didn't have the same procedure done. I had my reversal By Dr L in May 01. I

am now 5 1/2 months pg. I do know and believe. If it can be reversed Dr L

will do it or attempt to . He his a very wonderful doctor.

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  • 4 years later...

Dear

I now eat the whole egg raw. I just put the raw eggs in a drinking

glass and break them up with a spoon. Like drinking scrambled eggs. I was just

eating the egg yoke when I noticed the pain going away. Here is an article I

found on raw eggs.

http://www.regenerativenutrition.com/content.asp?id=268

" Kindscher (Charter) " wrote:

Hi ,

Boy Aajonus sure had a very interesting life so far. I know my grandmother

ate raw meat all the time, she lived to be 99 years old with no illness,

other then some diemtia the last year. How do you stomach the raw eggs that

just seems gross. This is something I will have to spend some more time

reading about. I already use raw milk and raw cheese, just not raw meat and

eggs. Thanks for sharing.

http://www.rawpaleodiet.org/ I don't stick with the diet 100% but I

try and get as close as I can. When I started drinking raw cow milk

my headaches quit. I also experienced fast pain relief after eating

raw chicken egg yokes. My health is improving. Its a slow process! I

wish it was quick.

Here is another website I highly recomend reading everything on it.

http://www.drbass.com/index.html

This interview with Aajonus Vonderplanitz will blow your mind away

http://www.drbass.com/aajonus.html

The interview is a bit long but well worth reading.

Neither of these two web sites are mine. Just out spreading the word.

I live in Louisiana and work for the US postal service.

Costanza

---------------------------------

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

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  • 2 years later...

Thank you for your response Norma,

I wish there were some friends or family willing to help out, but that

avenue has been exhausted. It's just him. I can't do it because I haven't

earned the trust of his loved one yet. I can help with a lot of things, but I'm

not allowed to help with meds, restroom trips, showers or baths, or helping to

get dressed. I just clean and try to hold a conversation with his loved one as

often as possible.

Re: New to the group

Hi Holly,

How wonderful of you to write. You have every reason to be concerned

because caregiving can certainly take its toll. Since I don't know the

specifics of the situation, I can't comment directly but the most important

thing--IF AT ALL POSSIBLE--is for your man to get help so he can have a

life. Is there any way he can get someone to relieve him a few days a week

(for two or three hours a day)? How about two hours two times a week? Can

he go out for two hours while you clean? And then can someone else relieve

both of you for an evening each week so that you can go out?

I would also suggest that he exercise whenever he can to relieve the

stress.

Hope this helps a little, Norma

" wonderingwhattod

o "

<wonderingwhattod To

o@...> LBDcaregivers@ yahoogroups. com

Sent by: cc

LBDcaregivers@ yah

oogroups.com Subject

New to the group

01/02/2008 01:04

PM

Please respond to

LBDcaregivers@ yah

oogroups.com

Hi to everyone, my name is Holly and I'm new to the group. I've heard

such great things about this group and I am seeking some advice. My

situation is a bit different thou, I am not a direct caregiver. I

have fallen in love with someone who is a caregiver. Someone that

spends all day, every day in the same four walls. He receives no help

from friends or family, just me and most of the time I don't know what

I can do. I always feel so helpless. We talk about LBD from time to

time, but he mostly talks with all of you, and I am ok with that. In

fact, I am thankful for this group and giving him other people that

can relate to him better than I. But what really concerns me is him

and his condition. While he says he isn't stressed out, the stress is

taking its toll physically on him. All sorts of things are started to

go wrong or pop up. I think he feels no one understands him (excluding

the group). That he is going stir crazy being inside all day, every

day. He gets no relief, so he can't get out at all. I even feel that

he doesn't think I understand. I feel I do understand, I just don't

go thru the same exact experiences he does. I have the freedom to

come and go. And I don't know how I can help him. When I can, I help

with his loved one, or I will help with house work. But my main

concern is for him. He is the love of my life and I want to spend the

rest of my life with him. I'm just afraid that there may be nothing

left of him by the time this is over. In a couple of years, I may

have to be his caregiver. What can I do to help him? Thank you Holly

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Holly - Welcome to the group. I can think of a few things you can do

to help out the person who is caring for their loved one.

* Just 'being there' for him is a great help. You are his outlet,

when someone is a 24/7 caregiver having someone who visits and talk

about what the rest of the world is doing is great.

* You can continue to 'be there' for his loved one - a different

face, someone different to talk with is wonderful for the loved one.

Even your visiting with his loved one allows him to break free and do

some things around the house that needs to get done.

* You can do research. Caregiving takes a lot of time - if you can do

the research for him I'm sure he'll be appreciative. Find in-home

caregivers in his area, that are free (volunteers) or inexpensive

could help. With your help he could find a caregiver who would allow

him to get out and do something out of the house with you. Do the

research of adult day centers - the costs and etc. which would also

allow you & him to get a break. There's tons of stuff in our Links

section that he may not have had the chance to look into - but you

can do the research for him.

http://health.groups.yahoo.com/group/LBDcaregivers/links/

* Housekeeping is always welcome. Running errands is a huge help too.

If you work it out so that he can come to this board and pose

questions and/or vent, and you utilize the board as a research area -

I bet that would be very helpful for him.

And again... just your being there for him may be all that he needs.

Thank you for caring for the caregiver! :)

>

> Hi to everyone, my name is Holly and I'm new to the group. I've

heard

> such great things about this group and I am seeking some advice. My

> situation is a bit different thou, I am not a direct caregiver. I

> have fallen in love with someone who is a caregiver. Someone that

> spends all day, every day in the same four walls. He receives no

help

> from friends or family, just me and most of the time I don't know

what

> I can do. I always feel so helpless. We talk about LBD from time

to

> time, but he mostly talks with all of you, and I am ok with that.

In

> fact, I am thankful for this group and giving him other people that

> can relate to him better than I. But what really concerns me is him

> and his condition. While he says he isn't stressed out, the stress

is

> taking its toll physically on him. All sorts of things are started

to

> go wrong or pop up. I think he feels no one understands him

(excluding

> the group). That he is going stir crazy being inside all day, every

> day. He gets no relief, so he can't get out at all. I even feel

that

> he doesn't think I understand. I feel I do understand, I just don't

> go thru the same exact experiences he does. I have the freedom to

> come and go. And I don't know how I can help him. When I can, I

help

> with his loved one, or I will help with house work. But my main

> concern is for him. He is the love of my life and I want to spend

the

> rest of my life with him. I'm just afraid that there may be nothing

> left of him by the time this is over. In a couple of years, I may

> have to be his caregiver. What can I do to help him? Thank you

Holly

>

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Hello and Good Evening;

My name is Charla and I am 45 years old. My father has LBD and PSP. He was

diagnosed a little over a year and a half ago. My husband and I sold our

house which was 2 1/2 hours away from my home town and moved in with my dad

to take care of him because I was not going to put him in a NH. His disease

has progressed and the last few days he has been sleeping a lot. I have

told him it is okay to let go and I asked him if he was holding on for me

and he shook his head yes. I told him not to. I love my dad very much and

this has been a up and down roller coaster ride from the beginning. I'm

really not ready to say goodbye, but he has no quality of life anymore as he

is totally incontinent and has been for months and can no longer walk or

stand on his own. I just wish he still had his mind. He has worked so hard

all of his life and next week he will be 78 years old. He is a strong man

and a fighter which shows as last October the Neurologist said he had 3

months to live if he was lucky, he has surpassed that by far and although he

has had bad days before; this seems different. He has aspirated more and he

has to have all food pureed and liquids thickened to honey consistency.

Hope to gain some peace through all of this.

Blessings,

Charla

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Hi, Charla,

Welcome to the list. I'm sending prayers and hugs your way.

Gladys

-- New to the Group

Hello and Good Evening;

My name is Charla and I am 45 years old. My father has LBD and PSP. He was

diagnosed a little over a year and a half ago. My husband and I sold our

house which was 2 1/2 hours away from my home town and moved in with my dad

to take care of him because I was not going to put him in a NH. His disease

has progressed and the last few days he has been sleeping a lot. I have

told him it is okay to let go and I asked him if he was holding on for me

and he shook his head yes. I told him not to. I love my dad very much and

this has been a up and down roller coaster ride from the beginning. I'm

really not ready to say goodbye, but he has no quality of life anymore as he

is totally incontinent and has been for months and can no longer walk or

stand on his own. I just wish he still had his mind. He has worked so hard

all of his life and next week he will be 78 years old. He is a strong man

and a fighter which shows as last October the Neurologist said he had 3

months to live if he was lucky, he has surpassed that by far and although he

has had bad days before; this seems different. He has aspirated more and he

has to have all food pureed and liquids thickened to honey consistency.

Hope to gain some peace through all of this.

Blessings,

Charla

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HI Charla and welcome to the group.

Your post tugged at my heart. It is so hard to watch our LO's quality of life

decline. We just never know how far this darned disease will take our LO's. My

mom has been bed-bound for a few years now and I wrestle with the issue of

wanting her here yet acknowledging that her quality of life is nil. Sending

you, your father and husband strength for the road ahead.

Courage

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--- Dear Charla,

Welcome to the group.Youll find many wonderful caring caregivers

here.Im Ron and I take care of my mother with lbd in her home.I know

the sacrifices youve had to make moving home first hand..My heart

goes out to you, your husband and your dear father.My heartfelt best

to you

Ron

In LBDcaregivers , " Gladys Stefany "

wrote:

>

> Hi, Charla,

>

> Welcome to the list. I'm sending prayers and hugs your way.

>

> Gladys

>

> -- New to the Group

>

> Hello and Good Evening;

>

> My name is Charla and I am 45 years old. My father has LBD and

PSP. He was

> diagnosed a little over a year and a half ago. My husband and I

sold our

> house which was 2 1/2 hours away from my home town and moved in

with my dad

> to take care of him because I was not going to put him in a NH.

His disease

> has progressed and the last few days he has been sleeping a lot. I

have

> told him it is okay to let go and I asked him if he was holding on

for me

> and he shook his head yes. I told him not to. I love my dad very

much and

> this has been a up and down roller coaster ride from the

beginning. I'm

> really not ready to say goodbye, but he has no quality of life

anymore as he

> is totally incontinent and has been for months and can no longer

walk or

> stand on his own. I just wish he still had his mind. He has

worked so hard

> all of his life and next week he will be 78 years old. He is a

strong man

> and a fighter which shows as last October the Neurologist said he

had 3

> months to live if he was lucky, he has surpassed that by far and

although he

> has had bad days before; this seems different. He has aspirated

more and he

> has to have all food pureed and liquids thickened to honey

consistency.

>

> Hope to gain some peace through all of this.

>

> Blessings,

>

> Charla

>

>

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