Congenital Chiari or not? geepers !!

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ronny

In a message dated 2/11/99 7:33:05 AM, you wrote:

<< " Chiari Syndrome is caused by a congenital skull malformation resulting in

a tight posterior fossa and restricted csf flow. The type I chiari

malfomation (tonsillar herniation of the cerebellum) is a most common,

though non-essential, factor in determining this syndrome. "

If Chip calls me a meathead again, I'll know I'm on the right track with this.

>>

can i beat him too it ronny ? as i tried to point out to cindy , not all who

have chairi have this small , tight posterior fossa skull involvement

.........it is one *pattern * than can be present and contribute to that

individuals situation and dx , but its just that , one pattern that may be

present !

this one is part of that genetic inheritance pattern, the duke work has been

following , but is NOT the only chiari complex pattern .....some folks , like

me , have a normal shape to thier skull , and yet a chiari present .

its too easy to generalise with this , and mislead both those trying to get a

grasp , and perhaps health care folks using the list to come up to speed too

.......it seems to me , we need to be careful to explain not all folks with

chiari will fit this bunch of symptoms / anatomy criteria .

the text books used to discribe chiari as the classic type 2 .....this left

out the newer pattern discribed by Dr Milhortat , Dukes studies ect ......but

its easy to see now there are more than just these 2 patterns involved, when

we look at the variations found through the lists , and current study/

understanding ......can we please stop generalising and stating *as fact *

these misleading statements ?? they represent only some folks with chiari ,

and personally i expect better of us collectivly !

as i have stated before ,. it seems to me , there are several different

patterns emerging in understanding , how a chiari forms , and how one *looks *

seems to me , we only do ourselves harm trying to force square pegs in these

round holes .....!.

sarah in paradise ) (dander back up , grrrr !).....

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