Fw: Family In Crisis

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----- Forwarded Message ----To: miralax Sent: Fri, December 25, 2009 5:48:03 PMSubject: Re: Family In Crisis

I'm sorry to hear this story, it breaks my heart. Please read the Files section of this group and comb through the 1403 FDA adverse reactions. I went over them with docs to better understand what this medication does. Yes, I've heard these stories over and over for 10 years on here. It's a busy time right now for families but hang in there someone will respond soon. Please read all the fact sheets as well. Go with your gut feeling and read the files section. I think you'll find the answers you've been looking for.

Thanks

Jeanie

From: amsmith0275 <amsmith0275@ yahoo.com>Subject: Family In CrisisTo: miralax@yahoogroups .comDate: Friday, December 25, 2009, 5:23 PM

My three and a half year old nephew is very, very ill. He has been in a Children's Hospital going on four weeks now. He is in the neurological center. We know that he has an inflamed brain stem, but we do not know the cause. The doctors haven't a clue; he has had many, many invasive tests done. Two spinal taps, two MRI's, cat scans, X-rays, a toxicology panal, many blood tests, IVIG's. He has had so many needles in his arm this month that his veins are collapsing. They have eliminated many possible causes.We don't know if there is a connection, but he has been taking Miralax for three months now for chronic constipation which was recommended for him by his pediatric physician. His last dose was six days ago and afterward he was like a rag doll all day - couldn't hold head up or even speak.The following day he was not given any and could hold his upper body up if supported by pillows. On Monday, our family officially ordered that he not be

given any more Miralax.Six days later and he still cannot support his weight enough to stand and walk more than two steps. But no more rag doll symptoms -thank God. We are starting to question the doctors who keep telling our family that Miralax is totally safe and cannot be the cause. They are guessing that he is recovering from a virus that attacked his brain stem, but he never showed any signs of having a virus before all this happened - he was acting like a normal healthy active little boy. A virus was not found in any of the tests that they have done on him this month. Plus, he is not getting better which they said he would be if it was a virus especially after having eight antibody treatments. The toxicology report came back negative, but I'm still not totally convinced that Miralax is not the cause. I'm looking for anything that might help this sweet little boy. Is there anyone else out there who may have had something similar

happen to their child or family member after being exposed to Miralax for a prolonged period of time?This is what happened:At first he complained of "his hand not working", he could not grasp things with his hand. This was combined with abnormal lethargy that lasted for several days. Then he collapsed while going to the bathroom. His urine had been cloudy and getting progressively worse before he was admitted into the hospital and got the IV, right before this, it looked like he was urinating face cream. He never regained his strength, and has progressively gotten worse over the last month. According to my sister, it look like he has been periodically having small seizures as well as speaking slower than normal including having trouble finding the words to communicate his thoughts.Looking for insights.Thank youa.m.s.