Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 Okay, thanks for all the great replies and I can't wait to sit down and look at some of the attachments you've sent. Also, wondering if two incidents he had that looked like seizures were from the miralax. He was checked out in the ER and had an EEG and nothing was found. Well, now that he's off miralax, what should I give him for the constipation? I gave him milk of mag last night and no bm yet. And can you give that on a daily basis anyway? I really need to re-read these posts so I can start to process it. Thanks to all for their replies. Jo > > Welcome, After being on this group for almost 10 years and have read every post, > this is typical. The children do this at home b/c this is where they feel safe > and all children's problems fall on the parents laps b/c that's what they're > there for! LOL! We have Physician's to back up that it's affecting their brain. > Our dd does the same thing but I can tell you that we have one child sitting in > prison from what he did on PEG. Please see the files section and I'll post some > info for you. The FDA IS indeed investigating............... > > > > What your are seeing is a result of what we believe is the toxicity of PEG. Most > parents on here say once they took them off the meds, their child came back. > The rage is extreme.........there is a list of symptoms that would choke a mule. > We are in the middle of contacting dateline and re-petitioning the fda. I'll > post the photo's of just how big this case is........................we have > Physician's helping us gather our info to achieve this goal. > http://www.ntuh.gov.tw/PMR/Lists/List14/Attachments/164/10253009-200903-37-1-45-\ 50-a.pdf > > > Many of us are investigating how PEG could be causing symptoms of ethylene > glycol poisoning which it's noted in the article attached. > > > > > > ________________________________ > > To: miralax > Sent: Wed, March 14, 2012 11:22:16 PM > Subject: New to Forum > > > This was my posting to the encopresis_kids forum and some very kind people > directed me to this forum. Any suggestions you might have would be greatly > appreciated and yes, I'm taking him off of miralax. > > " My son is 7 and has never really been fully bm trained. It started out with > severe constipation but with Miralax I think we have that under control. He's > been on and off with the toilet but he hasn't used the toilet for a few months > now. He poops a couple of times a day and sometimes refused to acknowledge that > he has pooped and has a HUGE fit if you try to get him to clean up. He will sit > for up to 8 hours in it. My boy has always been the most easy going kid and now > he RAGES at least one to two times a day. He will rage if you try to talk about > the problem or any little thing. He is so irritable all the time now. He refuses > to try sitting on the potty and just about anything else I try. And he only does > this at home. He doesn't poop at school or anywhere in public and he has model > behavior everywhere else but home. We're seeing a counselor but it feels like > that is going no where but I probably need to give it more time. Also, I did the > Encopresis study (u can poop too)and he worked with me for a while but nothing > now. So my question is, " Do you think SS will work for him? He doesn't seem to > be constipated with regular Miralax use but he is extremely resistant to > anything relating to the toilet. " It really seems like a behavior issue and I > don't know if SS addresses that. $90 is a lot of money for us to put out right > now. It sucks that we're having huge financial issues, my son's issues and I > have a daughter with other issues. I'm at my wits end and don't know what to do. > And,yes, I may have some parenting issues but please don't criticize. I feel > crappy enough already and the counselor will be helping with that. So thoughts > about SS? " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2012 Report Share Posted March 15, 2012 I don't like to give doses, I recommend asking a Pharmacist or Physician. Always follow the label advice To: miralax Sent: Thu, March 15, 2012 3:12:36 PMSubject: Re: Fw: New to Forum Okay, thanks for all the great replies and I can't wait to sit down and look at some of the attachments you've sent. Also, wondering if two incidents he had that looked like seizures were from the miralax. He was checked out in the ER and had an EEG and nothing was found. Well, now that he's off miralax, what should I give him for the constipation? I gave him milk of mag last night and no bm yet. And can you give that on a daily basis anyway? I really need to re-read these posts so I can start to process it. Thanks to all for their replies. Jo > > Welcome, After being on this group for almost 10 years and have read every post, > this is typical. The children do this at home b/c this is where they feel safe > and all children's problems fall on the parents laps b/c that's what they're > there for! LOL! We have Physician's to back up that it's affecting their brain. > Our dd does the same thing but I can tell you that we have one child sitting in > prison from what he did on PEG. Please see the files section and I'll post some > info for you. The FDA IS indeed investigating............... > > > > What your are seeing is a result of what we believe is the toxicity of PEG. Most > parents on here say once they took them off the meds, their child came back. > The rage is extreme.........there is a list of symptoms that would choke a mule. > We are in the middle of contacting dateline and re-petitioning the fda. I'll > post the photo's of just how big this case is........................we have > Physician's helping us gather our info to achieve this goal. > http://www.ntuh.gov.tw/PMR/Lists/List14/Attachments/164/10253009-200903-37-1-45-50-a.pdf > > > Many of us are investigating how PEG could be causing symptoms of ethylene > glycol poisoning which it's noted in the article attached. > > > > > > ________________________________ > > To: miralax > Sent: Wed, March 14, 2012 11:22:16 PM > Subject: New to Forum > > > This was my posting to the encopresis_kids forum and some very kind people > directed me to this forum. Any suggestions you might have would be greatly > appreciated and yes, I'm taking him off of miralax. > > "My son is 7 and has never really been fully bm trained. It started out with > severe constipation but with Miralax I think we have that under control. He's > been on and off with the toilet but he hasn't used the toilet for a few months > now. He poops a couple of times a day and sometimes refused to acknowledge that > he has pooped and has a HUGE fit if you try to get him to clean up. He will sit > for up to 8 hours in it. My boy has always been the most easy going kid and now > he RAGES at least one to two times a day. He will rage if you try to talk about > the problem or any little thing. He is so irritable all the time now. He refuses > to try sitting on the potty and just about anything else I try. And he only does > this at home. He doesn't poop at school or anywhere in public and he has model > behavior everywhere else but home. We're seeing a counselor but it feels like > that is going no where but I probably need to give it more time. Also, I did the > Encopresis study (u can poop too)and he worked with me for a while but nothing > now. So my question is, "Do you think SS will work for him? He doesn't seem to > be constipated with regular Miralax use but he is extremely resistant to > anything relating to the toilet." It really seems like a behavior issue and I > don't know if SS addresses that. $90 is a lot of money for us to put out right > now. It sucks that we're having huge financial issues, my son's issues and I > have a daughter with other issues. I'm at my wits end and don't know what to do. > And,yes, I may have some parenting issues but please don't criticize. I feel > crappy enough already and the counselor will be helping with that. So thoughts > about SS?" > Quote Link to comment Share on other sites More sharing options...
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