my new Nuerologist( long)

[Guest guest]

I all, Ive been awaiting THE BIG APPOINTMET! with a Neuro here since we moved,

The man we bought our house from is a Cancer reserach Scientist at UCSD, he

recommened a lady named dr. Blume. Well first off I havent seen a Neurologist

since Decemebr 1996, I had seen a woman who flat out told me I was making up

all my symptoms mentaly becasue my brother died to ALS, Im dead serious folks,

my husband adn I told her " to stick it somewhere " and wlaked out, all she had

was an MRI they ahd taken of the top of my brain, noCervical, no

Cerebellumect..., she didnt think it was necceasary to order any further

tests, ebacsue she thought I was a mental case. So I stopped seeing any

doctors, I prgressed during those next 4 months to all most Dead, yes dead

from a crushing skull and Syringomyelia.

After I found my srugeon whonormaly doesnt take ACM patients, I ended up in a

wheelchair, I had total left side paraliysis ,siezures, blindness, hearing,

adn only 89 pounds from such severe swallowing dysfunction, I said I would

never see a Neurologist again.

Well its a long time since then, almsot 2 years of Re-hab adb learning to

walk, permanant left side damage, total blindness at times, massive hearing

loss, lost liley ALL permanant. this Doctor was so respective to me, she spent

an hour testing me, sicne its been 6 months, Before I even said anything about

surgery she said " you know you need mroe surgery " I laughed adn said " well Ive

had a few Top Notch Surgeons tell me that, since 2 motnhs AFTER my first

surgery. I think she thought I maybe should have been Shunted also, I told her

my surgeon and I muttualy agreed not to at this point. She said " well when are

you going to ahve srugery, would you like me to get you a surgeon " , I said no,

for now I trust mine, but if it becomes an emergancy then yes " . I said " you may

not understand this Doctor, but Ive lost my last 2 summers to these

disorders(ACM/SM/Scoliosis/RSD/Siezures) , the first one I spent in my

wheelchair, the second, awaiting another surgery adn sitting at home on my

oxygen tank for a whole month! " , so this year if I can hang on just for the

summer and see the beach, adn be with my kids then Im going to wait until

Fall " , She looked at me adn said " I understand " adn you j know what she really

did mean it, I could feel the empathy in her eyes. I have speech problems that

are becoming more and more obvious, they were to her, also she seemed

concerned about my Petite Mal Siezures thye have come back more frequently.My

Scoliosis adn Brainstem compression is interfering with my breathing badly now

she is getting me back in Re hab right away so I dont end up in my chair full

time again, my legs adn feet are losing sensations again.

well folks, I felt so relieved to knowI have at least one person here, she

gave me her pager adn said " page her anytime at all if anything happenes at all

adn I need hlep " , this may sound odd to you all, but I really felt when I left

her office like " Its about time, I deserve this kind of treament from a

Neurologist, and man oh man did I thank God for giving me a nice one, I could

tell she felt sorry for me, not pity, and she understood my determinations adn

why I hadent done this next surgery just yet. I said " you wont have to babysit

me I promise " , adn she said " No I didnt think so " . Well I really wanted to

share this tongiht thanks for your time in reading this.

Dawn

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