New to group

[Guest guest]

Hello to you all,

I'm new to the group and wanted to introduce myself. My name is Donna

and I live in Indiana. My mother has been diagnosed with LBD by the

psychologist at the NH where she currently resides. She has several

doctors and they aren't all so willing to give the same diagnosis,

but I feel confident that LBD is it.

The story is long so won't get into all of that. Currently I've had

to file for guardianship because of her trust issues. I'm the only

child and she wants anyone but me to be her guardian. She knows how

to manipulate 'anyone' else. She has caused chaos for residents, the

nursing staff, doctors and much division in family.

I know that knowledge is power and I'm thrilled with the amount of

information that is available on this list. THANK YOU! THANK YOU!

THANK YOU! for all that you have done here. I know that there is a

lot of work and time spent gathering all of these resources.

I look forward to getting you know you all.

Donna in Indiana

[Guest guest]

We have experienced that also. My 12 year old has been on and off Miralax for

about 7 or 8 years. I'm trying to understand this

whole phenomenon as well. My son lost his ability to push his stool as well by

age 1 1/2 despite a healthy diet of

fruit and veggies. After mineral oil treatment and diet trials of sneaking in

more fiber foods and eliminateing possible allergy foods, without success, we

turned to Miralax around age 4.

Complicated with the fact that his fruit and veggie rich diet has diminished

every year since age 3. Now at 12 1/2 he won't eat more than one fruit/veggie

per day.

Before his diminished fiber diet I never kept him on Miralax more than 3 months

at a time because it was tricky and also he seemed to have a decent diet to

support healthy movement.

Although now he has removed about 85% of his fiber foods from his diet. Maybe

typical for a 12 year old? We have recently been using Miralax for

the last 10 months every other day at the least. He has had less constipation

and dry messy stool but he hasn't seemed to develop any muscles that the GI

specialist

and pediatrician keep saying are going to kick in after a good 6 months of

regular use. The Enconprisis has been a little less but not gone. He's either

leaking or leaves a heavy stool in the bowl that needs to be pushed down with

the toilet brush. How can the muscles develop when there is no substance to push

against?

We have tried to tritrate doses to decrease but now the full dose gets the same

result at 1/4 dose.

And did I mention that his ADHD has gotten so bad during this last year that

we've had to medicate him so he can get through the day at school without

getting sent to

the principal for his impulsive behavior?

I've been giving my 9 year old Miralax as well for a few years as needed

occasionally. He's been diagnosed with anxiety this week.

I have many questions also.

Sue