Miralax and demyelinating polyneuropathy

[Guest guest]

New to this group, hoping to find info regarding possible link between daily

long term use of Miralax and my case of " idiopathic " demyelinating

polyneuropathy. I have been using Miralax daily, recommended by my PCP as well

as gastro specialist. I was reassured by both that this is completely safe, even

though the bottle says two weeks. This was 2 1/2 years ago, and I have been

using this for chronic constipation. It worked great for the problem, however

about two years ago I started developing a problem with shooting pains in my

hands, developing thenar atrophy about 9 mos ago. Progressed to atrophy of

muscles in my feet. About four mos ago this progressed even further to sensory

neuropathy symptoms (tingling,etc) Began to have muscle twitches and

fasiculations in legs and arms. Finally after seeing my PCP and other doctors

trying to find the etiology, many diagnostic tests, including myelogram and

lumbar puncture for CSF analysis, EMG's, multiple lab tests for heavy metals,

etc, it comes down to no etiology found, idiopathic. Six weeks ago, I analyzed

all my meds and anything I could be ingesting that could be the cause, and came

across some info online about possible concerns with Miralax. I stopped it

immediately (6 weeks ago). Lo and behold, my symptoms have almost completely

resolved by this point. However, I am in physical therapy to regain the use of

my hands and feet. I will probably have permanent muscle loss, my intrinsics in

my hands are gone. I feel I have possibly found the cause. Any info anyone can

send me to show to my docs would be greatly appreciated. Thanks for all this

helpful information!