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Hi Everyone,

Just an update on my mom. I don't post too often but wanted to share an

interesting experience re hallucinations.

Last Wednesday during a snow storm my sister called my mom and discovered that

at that moment my mom was dressed in her coat and boots ready to go outside to

help the 'kids' that she has to look after. For the past few weeks it has been

all sorts of things about the kids that she has to look after. We have tried to

deflect and divert but it has not gone away.

So I called our CCAC which is the agency which assesses and helps find

placements for people. When I told the case worker about the four episodes

since Thanksgiving of mom having the intention of leaving the apartment to help

the kids or to find someone else (with three cans of ginger ale and some bread),

and about all of the confusion and behaviours that have been evident since last

fall she said that mom should be put on the crisis list for placement. We do

have her name in at three nursing homes.

She also gave me a number to call for emergency shelter for seniors in this

situation as she felt mom should be under 24 hour care.

Well we were able to get a respite place which is quite nice and she has settled

in with some expected behaviours and agitation.

What I wanted to share is that the 'kids' came with us. When my husband put a

nail in the wall to hang her key on, her comment was " oh that's good, it's high

enough so that the kids can't reach it " . She has also mentioned them a few

times. This morning she told me that 'they left the kids here, but I don't mind

that'.

So it looks like hallucinations or delusions follow us no matter where we go.

She is aware that there is a move of some kind, but is still acting for the

caregiver from the other place. I tell her that is on holiday.

Well that's where we are now. Just waiting for the next move to her hopefully

permanent placement.

Take care everyone. Doris

Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then

changed to LBD in March of 2005. Living independently with much support until

now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel.

(Mississauga, Canada)

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