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chairi II under 3 years

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Is there anybody out there who has experience or knowledge in relation to pros

and cons of un-tethering cord under 3 years of age. Also shunting of syrinx in

an infant (2yrs/2mths) after 3 x decompresion of Posterior fossa. Gross motor

delay (standing with support, walking with support) is main concern at present

as it is difficult to assess other possible symptoms in a young child.

Also would appreciate any input with relation to medications other than zantac

and cisapride for reflux? Prilosec and young children??????

Roxannes major problem in relation to her Chairi is apnoea whilst awake as well

as sometimes during sleep. She has other associated problems such as gagging,

choking, vomiting,inspirational stridor, etc, etc. Surgery includes 3

decompressions, 4th shunt revision recently, in my dreams someone has followed a

similar path???????

Any input appreciated.

KYM

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