Wow you want to talk depressed heck yeah

[Guest guest]

If you asked me what you could help me with I have no idea ((most dont have it

to this degree as Dr. Bolognese has even pointed out to my son. I am suppose to

be like wow lol.)) personally since I am overwhelmed or overloaded whichever you

would like to call it. Let me explain.

 

First of all my husband passed on of a Glioblastoma Multiforme my x-fiancee who

I am dumb enough to still love we were engaged for four years walked away 6

years ago after I had my first operation.

 

Secondly I have 5 rare diseases and 35 neurological ones. These are only a few.

 

1) Arnold Chiari

2) Tethered Cord

3) acoustic neuroma

4) Syrinx

5) Eds

6) spinal stenosis

7) spondylosis

8) diabetic

9) hypothyroidism

10) degernative discs

11) degenerative joint disease

12) my neck has been fused twice and I have had 8 operations in the last 6 years

2 brain and 6 spinal cord and such

13) hell I can't even process water correctly according to the Long Island

doctors the hospital brought in for me.

 

we have gone through a very messy first operation where my arms are permanently

hypersensitive because of the doctor bundling up all the nerves in my neck. I

went through hallucinations because spinal fluid would well up and empty into

the brain to such an extent they had to manually decompress it. It was to much

to use a shunt Dr. Bolognese and Milhorat did my operation. NO MRI was used

originally and my son and I went through hell from hallucinations. I should also

explain that I am roman catholic I did go to priests and all they could offer my

son is to have me locked away and himself placed in jail. So we ventured off to

a pastor who had a religious woman come into the home throwing out many of the

things we owned stating it was all possessed and the pastor agreeing she was

doing the right thing. I had lost souls being judged by an angel through me.

Scary as hell by the way. And all the doctors and hospitals stated that they had

a white room for

me. Although my mother is not much of a support mostly that is one thing she

made sure of that I got into my operation with Dr. Bolognese and Dr. Milhorat

God bless them both.

 

In reality it worked out of course that it was a medical reason((fluid in the

brain)) and had to be addressed as well as was right away. Dr. Bolognese was

amazed no one did an MRI in the wonderful state of Pennsylvania.

 

I also had all the discs in my neck from C1-C7 cut in half leaving my neck in

the shape where it could have flipped back and I could sufficate to death. It

has been fused after that twice so far trying to clear up that error. And will

have to be done yet again when prototype is out they said in about three months

or so.

 

I walk as if a baby((for a year now)) falling constantly with alot of black and

blues I am suppose to have an electric wheelchair and although medicare and

aetna keep authorizing it it keeps being refused by the maker of the chairs with

them stating it has to be a physical therapy wheelchair ((whatever the heck that

is)) and thus refusing to make it. And I am stuck with getting it approved again

which means back to the drawing board and getting medicare and aetna to approve

it once again. My physical therapist is scared to work on me he keeps saying I

could make you quadropledgic after he got the doctors notes. He tried moving my

head around till he found out they didnt want him to. It is taking forever

to send them info. My regular doctor told me the hell I will correspond with

them by email and he doesnt want them talking that way to him either. He keeps

telling me they have done one hell of a job with me and keeps telling me that he

could tell

them what the heck is wrong with me why arent they fixing it .

 

I have a bi-polar son who has eds and is maniac depressive. He is presently

being haunted by a PO who is making things so much worse for him. He wound up

making love to a 15 year old ((she lied completely and totally about her age

saying she was 19 at the time and got on match.com changed her birthdate and

such to be on it)) who is more than happy to laugh in your face on how she did

it to him and how now she has him roped. She is now 20yrs old. Both of them can

not be separated even though they both have a restraining order on them. They

swear after the three years are up they will be married. Hell he would have done

that anyway so dont know why she is so impressed with herself. Wacky situation

in a already big disaster.

 

My other son is big time depressed with handicapping conditions of his own. He

cant read which is frustrating him to no end((birth defect no cap to back of

eyes)). And the bangor school district has graduated him right in the middle of

my husband passing on. He is now 26 has had a major spinal operation and was

originally born with CPS, Arnold Chiari, Hearing and Speech impaired and fine

and gross motor impaired and hearing and speech impaired. But hell the SSD has

refused to give him it now like 19 times easy. They keep saying not one of his

handicapps are bad enough but if you put them all together you have a mess. No

kidding he was lifting when he knew he wasnt suppose to to just have a job and

has a bigger mess going on due to it.

 

I have different parts of this house falling apart and I cant afford to fix

them. I bought a garage door but cant afford to put it up. My credit card bills

are off the charts mainly because of medical bills ((hell wouldn't want to sue

the son of a gun who operated on me first nope let him keep telling everyone he

knows so much about chiari the government is giving him money to destroy

people's lives)) with my pain level being a 10 permanently. The money my husband

left me is pretty well gone and if I laid out the rest I would still be

overwhelming in the red and lose the only thing I do own my home. I have 0 none

nil family support was already told they have their lives I have mine good luck.

That they don't understand where this came from but it wasn't them. My hsuband's

family couldn't even get off their buns to come to the funeral haven't seen them

for over 11 years and will definitely keep it that way. I need a vacation from

operations disasters

and such and am of course out of luck on that one. My thyroid going has left me

in a mound of clothes with nothing fitting and I so much need to before the next

operation to lose it or have one hell of a start. I have always had a problem

with weight and now with everything else thyroid depression my walking I have no

way of losing it. It is definitely not from eating. The doctors are surprised

with everything I have gone through I still have a smile to give everyone. Have

been told by different ones after they have seen my medical papers they could

never have done it.

 

When I go into the hospital for an operation my first thought is for the other

person/people in my hospital room. Thus taking my mind of the things that have

happened to me and thanking God I am still here. Even though each and every

operation has caused a new and exciting problem of some sorts not only for

myself but Dr. Bolognese and Dr. Milhorat.

 

 We need help here and I definitely have no idea what is out there my sons and I

are so depressed dont think we give a darn anymore. I need to find out financing

which will not have my home taken from me for handicapped people such as myself.

Who have no hopes of holding down a job and are on SSD. My oldest needs to know

what kind of scholarships are out there as well. I do not want to move really

since my husband and I lived in this house. And I love the mountains I know I

know it probably would be better for me somewhere like florida but I have no

where that is this pretty that I can think of.