Re: Fibromyalgia/ACM - together again - Part 2 (Questions)

[Guest guest]

Hi,

If anyone is interested in contacting Devin with questions her e-mail addy.

is devstar@.... I was diagnosed with both MPS and FMS years ago and

have found that a MAJOR problem is: treatment for one aggravates the other.

Believe me when I say that Chiari symptoms are not like Fibro or MPS

symptoms. Chiari symptoms appears more neurological and the other two appear

more muscular. Plus Fibro/MPS has been more painful for me than the Chiari.

(however, the Chiari symptoms are scarier) There is research associating

Fibro and Chiari in Oregon by Dr. . I appreciate his work but there

has been some controversy to his idea that using Growth Hormone will help

with Fibro. Unfortunately this controversy has overshadowed all of his

other work. If anyone is interested in Fibro/MPS info. please contact me

privately as I have an extensive collection of information.

Take care,

Lucy

------------------------------------------------------------------------

eGroups.com home: /group/chiari

- Simplifying group communications