heart palpitaions, POTS, and Inerventional Cardiologists

[Guest guest]

Hello!

Since my last post I have had several people ask me where to find a good

Interventional Cardiologist. An Interventional Cardiologist works with minimally

invasive procedures in a Cath lab to treat the heart. My PFO/ASD closure is a

good example of that kind of procedure.

I have a  very good friend, PHD in molecular biology,  who works with some of

the top Interventional Cardiologists in the country and overseas. I thought that

I would call in a favor and see if he would give me a list of the best  ICs

across the country. He said he would but he needed more information and was

willing to bring up our concerns to a few of them to make sure he has

accumulated the appropriate list. He asked me for more information.

He knows that PFO/ASD closure is a concern because of mine.

I am asking you for concerns that you have that you feel like you are getting

the run around on. Maybe you need a procedure but you don't know who to

trust..... we all know that trust for us is hard since we have all been through

the wringer!

This isn't about giving diagnosis' or second guessing anyone.

Also, I know that my brainstem irritation is responsible for a lot of my heart

palpitaions. A cardiologist can not fix this. Mine recognizes that I have Chiari

and that ACM maybe responsible for heart symptoms that are beyond his control.

We work together and he has willingly communicated with my neurosurgeon.

Good Luck to everyone!

Lynn

ACM,EDS,TCS