Re: Still need more information this weekend/Jojo

[Guest guest]

Hi Jojo,

The UTI might be the entire cause to the aggressive behavior. I hope the

doctor will not put him in the Psych Ward until he has been on the antibiotics

for awhile, because the patient could become his normal self again after the

antibiotics kick in and a trip to the Psych Ward could cause even more problems

if they start messing around with his meds, if all he really needed was

antibiotics. June is right, If this person can not speak for himself, hopefully

there is an advocate for him that has a Durable Power of Attorney to speak and

keep him out of the Psych Ward if it is not needed. This is such a dreadful

disease and it is so sad if the patient gets into the hands of the wrong doctor

that knows nothing about LBD.

Is this the list you are looking for on the Good and Bad Medications for LBD?

http://health.groups.yahoo.com/group/LBDcaregivers/files/Medications/

I hope this family stands firm with the doctor and gives him/her all the

information on medications and all information that has sent, because

it is vital for the loved one to have medications compatible with LBD. Our Loved

Ones are very sensitive to medications and the rule of thumb here is less is

best in dosage. If you encounter a doctor that treats all dementia the same and

thinks he/she knows it all and will not listen, drop that doctor immediately and

find one that will. There are many doctors like that and most of us have had to

stand up to them if they are not willing to listen. The family has every right

to change doctors.

Be Strong and advocate, I hope it all goes well for the Loved One and all

involved................Jan

jojowood53 wrote:

Thanks for your replys. The latest is Dr. is still pushing for a

locked unit for this resident. Oh and low and behold I just asked the

nurse today and he did have a U.T.I. This could have been the reason

for the violent episode also. I am still looking for info. on the good

meds bad meds list. Can anyone direct me to this site. Now the Hosp.

has informed family that no locked units are avaialble locally and they

might have to place him more than 100 miles away from family. What

next? I went to see him today and my resident gave me the biggest hug

with tears in his eyes and told me he was so sorry for the episode. I

told him he neednt worry it was not his fault. The hug was worth all I

and the family are fighting for. It just breaks your heart to see them

so out of controll and so remorseful. We meet with the Dr. tomm. but I

doubt we can change his mind and he still will not release him to my

private home. We asked for a second opinion and the Dr. we sought does

not practice at that hosp. We are up against a brick wall.

Caregiver in Colorado.

Welcome to LBDcaregivers.

[Guest guest]

Hi Jojo,

After reading your post again, I think Carol might be right in saying a Locked

Psych Ward is different from a Locked Dementia Wing in a nursing home.

jojowood53 wrote:

Now the Hosp. has informed family that no locked units are avaialble locally

and they

might have to place him more than 100 miles away from family. What

next?

I still believe the family has every right to speak up and demand where they

want their Loved One to be and if there is no unit available close to home, they

should be able to place him where they feel he is getting a quality of life for

the time being until a unit is available close to home when the time is right

for the family.

I went nursing home shopping, (nh) years in advance of my husband going into a

nh. He also was aggressive/combative. I toured every nh within a 20 mi radius of

my home. I never made an appointment time to visit, I just dropped in and asked

for a tour. That way they can not stage it to look good, you see how they really

are by just dropping in. I made a list of questions and I numbered the nh in

order of 1 - 10 in my observations. 10 being the worst.

When the time came for me to put my husband in a nh I went to the Social

Worker at the hospital. We needed a nh that contracted doctors from my husband's

provider. She gave me a list of those nh, most of them I had seen a few years

before and those that I had not been to I went to. My # 1 and 2 pick were booked

and my husband is in the #3 pick of nh that I liked. He is 10 minutes away from

my home. My husband is a Kaiser Member, so I am not sure that all Health

Providers work this way, but it is a must to shop around looking at the NHs with

locked dementia units, so family is aware of what is around when the time comes

for a locked nh dementia unit.

Here is a website that is a registry for all nh in the U.S. and rates them, so

you can get an idea of what they offer.

http://memberofthefamily.net/usregistry.htm

Jan

Welcome to LBDcaregivers.