Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Hi - Well, this is all very complex and there's a lot to learn if mold is the source of your issues. There are over 100,000 molds, and with there being that many, little is known about most of them. With that many, you can see that it becomes difficult to test to see if someone has been affected by one... real needle in a haystack time. What we DO know is that the purpose fungus seems to have in the world is to break things down in order to recycle them... sometimes, living things seem to get attacked in the same ways dead ones do. There are a handful of ways mold can affect people - a good overview can be found http://zed.alaw.org/asthma/ames/pdfs/amesMold_Guide_Health_Professionals_modifie\ d09-30-2004.pdf See page 33 of the pdf to get the four categories. If you are lucky enough to have been someplace where you could see the mold and had it tested in the environment, you can see how that might make it possible to get tested for issues that might be related to that particular mold. Most people don't have that good fortune for a variety of reasons, a big one being the expense of testing. I'm assuming that since you've been sick for so long, you don't have a *site* per se that would hold clues to your health. So, a wrote you earlier about how one quarter of the population has a genotype that makes us more susceptible to environmental toxins. This is Dr. Shoemaker's work - he found the gene responsible for whether or not we make the antibodies that help rid us of biotoxins. I'm gonna guess that most of us on this list fall into the unlucky quarter. Other people can be in the same environment and not get affected, but we crumple. She Dr. Shoe's book Mold Warriors which can be ordered from moldwarriors.com or from Amazon. It's a good read whether or not mold is your actual issue - I'm sure it would give you food for thought. And then you'd have some of Dr. Shoe's own work to evaluate him for yourself. I'm the first to admit there are charletons everywhere, but the two doctors that have been put forth to you are people that we on the list have confidence in... there are a handful of others throughout the country, but in the grand scheme of things there are nearly none. So, this stuff is really under-understood, if you're following me, but there's another HUGE perception problem about mold that we run into... lemme explain. We know fungal issues have been around for all eternity - there are references in the Bible and throughout history. But there are LARGE corporate interests in this country doing an effective job at keeping the science under wraps, and it's working. They have come up with some junk science that purports to prove mold can't hurt you, which, of course, flies in the face of the fact that many bioweapons are developed from mycotoxins. You following me here? My neighbor actually died from his exposure to a mycotoxin that is believed to be what was dropped on Laos in the 1970s. I'm not going to comment here on all of that, but we've had one headache and frustration after another deducing what happened to him and proving it, but we've done a remarkably good job despite the challenges. A couple of things happened in the last few decades that changed things in the US and made mold a bigger problem and figuring it out more frustrating. The first thing is that in order to conserve energy better, buildings began to get built more airtight... this meant that if water intrusions happen, they don't air out as well, giving time for fungus to grow. Fungus LIKE growing indoors where they have fewer enemies than in the wild. If they get nice and comfy and don't feel they are fighting for their existence all the time, they can build fortifications to ward off other fungi - this fortification comes in the form of mycotoxins. Some mycotoxins are actually friendly and (debatably) useful - we know them as antibiotics. Penicillan is made from Penicillium. (Please forgive my spelling, it was bad before mold exposure - worse since.) Other mycotoxins will kill you if given the chance, as one did with my neighbor. Dr. Shoe created a protocol with a drug that helps those of us without the full set of antibodies help get rid of our toxins. Yea! Dr. Gray uses the Shoemaker protocol. On this list, you'll find a lot of testimony that Cholestyramine (CSM) makes a huge difference in people's lives. It was developed as a cholesterol-lowering drug - it's a sequesterant that binds to toxins and gets them out of the body. Now, clearly I don't know what's going on in your body, but it's possible that this protocol could be useful to you even if there were something other than mold that's milling around in you. It's worth reading the book to learn about it. OK, I'm getting a bit worn out, but the politics of this stuff is best understood from an article that ran in the Wall Street Journal a year ago January - KC posted it recently and I'll try to forward it to you.. The insurance industry has had it in for mold issues since 2001 when the first mega-million dollar case got won - they call it 'the next asbestos.' They have been doing their damnedest to create so-called science to refute problems coming from mold, and the American medical community has bought into it sufficiently so that most doctors think we're nuts when we show up with the bizarre mold symptoms. You've asked about the tests - there are several kinds, some are for allergies, some are for toxins, some are for infections...(see the earlier link for the variety of problems). ~Haley cbn97es <cbn97@...> wrote: > CBN: > > Hey Dude, there's no good answer to your question, and I guarantee every one of us on this site has had the SAME question, why the heck can't ask a reg'lar physician to recognize our symptoms and ailments... am gonna tell you there is no rational explanation. Honestly, don't waste your time looking for one if you want to stay sane... > > Save yourself time and frustration and see the folks who know how to diagnose and what to do about it so you can begin healing. Sometimes you can get your doctor at home to take instruction to someone with experience with what we're working with. > > I didn't at all get the sense that you were denegrating the doctors mentioned as I see another did. My sense is that like most of us here, you've been using what scientific skills we non- scientists have to deduce what's wrong with us because we have bizarre symptoms that most doctors glaze over about when we describe them. And it doesn't make sense that there is so little accepted information for symptoms that are really, really real. > > Congratulations - you've joined the club! Dunno if you've got what we've got, but you've been run through the same ringer! ;-) > > ~Haley Thank you. That is a good answer. So, nobody knows but some people get better by working on the mold thing, right? Still, how do you know then that mold is your problem? What is your personal opinion about this Dr.Shoemaker's online test? I have read so many messages saying it's scam that it's hard to believe. In general when it's one isolated doctor against the whole world with a miracle treatment of his invention, then usually 2+2=4 and it's scam. I thought that this forum was about something merely scientific as mold and its normal treatments but at the end in these forums every disease group rounds around alternative therapies, miracle products, disbelieved genius doctors and all the classic stuff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 cbn, for one thing, you need to slow your ass down, and your starting to make me have doughts about your purpose here and weither your really sick or not. now I have to say that some red flags are poping up, dont make me regret waisting my energy here. for one thing most people just know because of what they went through and connecting the dots. that may take time for some but mostly they allready have a pretty sure felling or they wouldn't come looking for this group. I just read your reply to sharon and no, people sick from this kist dont respond like that. either way, you need to mellow out. I don't care who you are. if your sick and need answers mellow out. if your not sick any need answers maybe you need to just hang in the background and learn for awhile cause people here dont need you stressing them out and we dont have to prove shit to shit to you and if your just gonna argue about it than move on. > > > > > > > > > > Hello, > > > > > > > > > > I am 42 years old and I am very ill. I have thought of > > > everything > > > > > and tried everything. Nobody knows exactly what I have so > I'm > > > > > diagnosed with depression, anxiety, Chronic Fatigue > Syndrome, > > > > > Fibromyalgia, Dysautonomia, etc. > > > > > > > > > > And I may agree with that but the question is that I also > have > > > > awful > > > > > respiratory disease that doctors can't see or treat for > over > > 15 > > > > > years. My nose, sinuses and lungs burn and hurt 24 hours a > day > > > and > > > > > nothing helps. I feel really sick from it to the point that > > > > disables > > > > > me more than the rest of diagnosis or illneses. > > > > > > > > > > I have always lived in an old big and dark apartment which > > > smells > > > > > like old, dusty and even moldy, has lots of carpets, wall > > paper, > > > > > wooden floor with lots of holes between the woods, it has > lots > > > of > > > > > old books old furniture and some rooms have this old > > > > > style " Luxurious " clothe in the walls instead of paint or > > paper. > > > > > > > > > > So, the house could be having mold but I don't see it. My > nose > > > and > > > > > sinuses and lungs are so damaged that I can't smell but > people > > > say > > > > > it smells like old and a bit damp. As I said it is very > dark, > > > never > > > > > sees the light in most of it. > > > > > > > > > > As I said before, I have visited a thousand respiratory > > > > specialists, > > > > > nose, ear and thorat specialists, allergy doctors, > internists, > > > > > neurologists... they diagnose: " hypersensitivity and > > > > > hyperreactivity " or " vasomotor " rhinitis, but not allergy > or > > > > > infection or anything. I can't have that because my lungs > and > > > > > sinuses are awfully ill with non stop mucus, phlegms, > dryness > > > and > > > > > pain like hell. > > > > > > > > > > So, my desperate question is, how can I know if I am sick > > > because > > > > of > > > > > mold or something like that. > > > > > > > > > > Thank you very much in advance > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 KC and Sharon.... BIG HUGZZZZZZZZZZZZZZZZ > > > > > > > > > > > > > > Hello, > > > > > > > > > > > > > > I am 42 years old and I am very ill. I have thought of > > > > > everything > > > > > > > and tried everything. Nobody knows exactly what I have > so > > > I'm > > > > > > > diagnosed with depression, anxiety, Chronic Fatigue > > > Syndrome, > > > > > > > Fibromyalgia, Dysautonomia, etc. > > > > > > > > > > > > > > And I may agree with that but the question is that I > also > > > have > > > > > > awful > > > > > > > respiratory disease that doctors can't see or treat for > > > over > > > > 15 > > > > > > > years. My nose, sinuses and lungs burn and hurt 24 > hours > > a > > > day > > > > > and > > > > > > > nothing helps. I feel really sick from it to the point > > that > > > > > > disables > > > > > > > me more than the rest of diagnosis or illneses. > > > > > > > > > > > > > > I have always lived in an old big and dark apartment > > which > > > > > smells > > > > > > > like old, dusty and even moldy, has lots of carpets, > wall > > > > paper, > > > > > > > wooden floor with lots of holes between the woods, it > has > > > lots > > > > > of > > > > > > > old books old furniture and some rooms have this old > > > > > > > style " Luxurious " clothe in the walls instead of paint > or > > > > paper. > > > > > > > > > > > > > > So, the house could be having mold but I don't see it. > My > > > nose > > > > > and > > > > > > > sinuses and lungs are so damaged that I can't smell but > > > people > > > > > say > > > > > > > it smells like old and a bit damp. As I said it is very > > > dark, > > > > > never > > > > > > > sees the light in most of it. > > > > > > > > > > > > > > As I said before, I have visited a thousand respiratory > > > > > > specialists, > > > > > > > nose, ear and thorat specialists, allergy doctors, > > > internists, > > > > > > > neurologists... they diagnose: " hypersensitivity and > > > > > > > hyperreactivity " or " vasomotor " rhinitis, but not > allergy > > > or > > > > > > > infection or anything. I can't have that because my > lungs > > > and > > > > > > > sinuses are awfully ill with non stop mucus, phlegms, > > > dryness > > > > > and > > > > > > > pain like hell. > > > > > > > > > > > > > > So, my desperate question is, how can I know if I am > sick > > > > > because > > > > > > of > > > > > > > mold or something like that. > > > > > > > > > > > > > > Thank you very much in advance > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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