RE: Doctor Names from ASAP

[Guest guest]

Suzanne:

As many of us do, I receive the ASAP Connections newsletter. I thought I

would list some of the doctors mentioned in recent newsletters, so you can

see some of the true experts in addition to the ones frequently mentioned on

this list.

ASAP has its Web site at www.asap.org <http://www.asap.org/> . ASAP provides

research, education and support.

Kathleen's address:

The various sites educating us on chiari and various disorders do our best

to send members to what we consider experts. That is based on patient

feedback, articles that have been published, and other attributes,

Not every surgeon is for every patient. I always try to convince members to

see at least one expert, preferably two, then take into consideration

several factors deciding what surgeon would be best for you or family

member.

Kathleen

Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed

with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome,

surgery for everything but EDS since 1998.

http://chiariconnectioninternational.com/