Re: Some posts on Nightline are being taken off

[Guest guest]

In a message dated 3/23/2008 7:46:58 A.M. Pacific Daylight Time,

darlenesb2000@... writes:

Check to see if what you posted as a comment is still on the Nightline

website. There were over 200 and now there is only 183. I do not see the

comments

I made, and the one that I made for Marcie McGovern on there. Maybe we were

more harsh on our words than others. I don't think it is fair of them to take

the posts off, after all we were true to our words, and the criticism was

constructive. Unless I am blind, then I know I did not see 3 posts that were

mine and Marcie's. Darlene

I think they took down any posts that had links to other websites, articles.

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[Guest guest]

Jeanine, you can send your comment to me, as I have a segment on my website.

Say what is in your heart and what you believe in, I am taking all comments.

You can send them to my email, than I will post them. Many of the posts have

been deleted, this is why I want to continue the support for Dr. Rea and all of

us that are sick. Thanks, Darlene

[Guest guest]

It is entirely possible to state the harshest forms of criticism

without being censored for it. Agreed, it takes restraint and a

great deal of thought - possibly consultation with someone to aid

you in developing/editing your thoughts. However, if we are to

represent a problem of science, humanity, LIFE to the public in a

responsible way, then it is counterproductive to phrase it in a

fashion that people can dismiss as either uneducated or illogical.

of not outright abusive and libelous. Such behavior is far more

likely to be interpreted as sentiments representating mental

unstability than justifiable fury.

Is it fair? No, it is not.

Is it reality. Yes. Try presenting something in a court of law in

any manner which is unacceptable in newsprint. You will get fined

or thrown out of court.

This is the court of public opinion. We can't win just yet but the

better the argument is phrased, the more people won over with each

new effort.

This is the problem with presenting Dr. Nagy's unusual story as

typical. It is not typical. I had more than one telephone

conversation with Dr. Nagy and her experiences are remarkably

atypical of chemically injured persons in general although not

unique. Her advice to me in our last conversation was innapropriate

given her belief that her experiences were definitive for our

population. When I told her that her recommendations would not

benefit me, SHE told me that I was being 'negative' and my attitude

would hold me back from progressing. So the issues of psychology

can be misused by each side if we are not vigilant about it and

restrained. Motivations aside, what matters is being effective. We

can and will do better than this story on nightline.

Many of us cannot be cured. That is reality. Can we be helped?

Only if we work harder at presenting facts. Unbridled emotion by

either advocates OR adversaries does not lead to effective best

arguments. When we do express it, it must be done with great care

and power - in terms that will be respected (even if not believed).

We can help each other with the framing of hard to express facts.

Let's seek each other's aid in doing so. I have at least half a

dozen people who help me to write. One died from the effects of

chlordane poisoning a few years ago. Irene Wilkenfeld, may she rest

in peace, helped me learn to write again after losing a large part

of my literacy skills to brain injury frm pesticide poisoning. She

edited my first article, " Hello, I am an Acceptable Risk " and helped

me to express my outrage at being a mere blip on industry radar -

just another statistic counted as a loss of no consequence to them

even if I did become a burden to society. A professor of risk

assessment at Carnegie Mellon, and a chapter of Sierra Club used it

as a training exercise.

We also must acknowledge that it is only through prevention of the

problem that those of us already ill can find safe places to live or

work. Only through prevention that this and MANY other ailments can

be stopped. So let's not emphasize CURING the ailment but that the

damage of poisoning by any source can be PREVENTED. For those

already damaged, non-toxic living and working arrangements are

essential.

The psychological issues are effects, not causes and must be placed

in perspective. Also, I believe there are studies showing the

incidence of mental illness is no higher among the EI group than any

other group of individuals with regard to premorbid histories.

Presentation does matter. We must expect those representing others

to acknowledge that realistically.

Barb Rubin

========================================

>

> I've tried writeing a comment but I keep seeing under comment box

> were any insults are not allowed. so I guess it's a double

standard

> kind of thing and if I than am supposed to play nicey nice and not

be

> aloud freedom of speech, than I have no comment to give.

>

>

[Guest guest]

Darlene, I well try to pit something together and get it to you.

headacke right now, well be later. remind me if I forget. send email

with link please, thanks girl.

>

> Jeanine, you can send your comment to me, as I have a segment on my

website. Say what is in your heart and what you believe in, I am

taking all comments. You can send them to my email, than I will post

them. Many of the posts have been deleted, this is why I want to

continue the support for Dr. Rea and all of us that are sick. Thanks,

Darlene

>