Re: axiety

[Guest guest]

Hi...

Believe me, I know it' s tough dealing with many of the things that chiari

throws at us. And yes, anxiety seems to play a pretty good size part for

many of us.

The issues with words was always big with me. In my case...working crossword

puzzles helped a lot. Not a total fix, but a darn good help.

Believe me, I understand the issues with balance, etc. Up to a month prior

to my decompression I was TEACHING fitness classes. But " stuff happens " ...

I also think it's a big help not to concentrate on what we CAN'T do...better

to try to find out what we CAN do!

I had to give up some things that I loved, as well. The catalyst for my

chiari becoming symptomatic, I believe, were a couple of falls from

horseback. This was something that I REALLY enjoyed. However, it made no

sense to continue to risk fate. I still enjoy being around horses...I just

have elected not to ride.

I grew up at the shore and LOVED amusement rides. Sadly, most of these are

simply asking for trouble with a Chiarian..so they have been moved off the

" to do " list!

These are just a couple of the choices I have made..but I am really not

complaining...it was, IMHO, worth it. We are, in a way, fortunate that we

CAN make some lifestyle changes that CAN be helpful to many of us. This is

not the case with all afflictions.

As far as burning energy goes...something as simple as a good walk in well

cushioned shoes can do a world of good.

As far as the mini-tramp goes..I shudder a bit. When I was teaching, I

strongly disliked tramps for anyone, the potential for injury is huge.

..However for chiarians, they are really a no-no. Yes, your legs are

protected from some impact but what about your brain being bounced

around...IMHO, NOT a very good choice.

Again, even with Pilates or Yoga ( I taught them,too <g>) Please don't take

an " all or nothing " position. You simply have to be a little selective and

understand what particular things could cause you problems. With both

Pilates and Yoga there ARE things which can be done safely... And certainly

there are those which would be not recommended.

Learning AMAP about the whole chiari condition and thus what limitations are

there is so important.

We each have to make choices for ourselves balancing the concept of

risk/reward! But by doing this we are really able to help ourselves have a

better quality of life. IMHO this is a VERY " good thing " !!

All best wishes,

Sally R... Decompression '91, Hydro, VP shunt, 2 shunt revisions, Feeling

pretty good on NO meds in Bethlehem,Pa

axiety

> how commen is axiety wih chiari malformation1,I have devaloped a

> problem with it.I use to be handle things a lot easier then I am.I am

> loosing words in mid sentences while talking to clients at work.That as

> you can guess is not good.I am fustrated because I cann't remember what

> I am doing.I need to burn some energy but I cann't do what I love.I

> don't have the balance to do palaties or yoga that sucks.I want a

> little trampoline so I can jump for days.or until I am less stressed.If

> I get one it better have a handle to hold on to otherwise I will bounce

> off it and threw the door or on my dog LOL.

>

[Guest guest]

You might consider not doing the trampoline thing.  The impact could

contribute  to downward movement of the cerebellar tonsils.  It also

might irritate your inner ear balance.

H

Subject: axiety

To:

Date: Sunday, December 21, 2008, 8:59 PM

how commen is axiety wih chiari malformation1, I have devaloped a

problem with it.I use to be handle things a lot easier then I am.I am

loosing words in mid sentences while talking to clients at work.That as

you can guess is not good.I am fustrated because I cann't remember what

I am doing.I need to burn some energy but I cann't do what I love.I

don't have the balance to do palaties or yoga that sucks.I want a

little trampoline so I can jump for days.or until I am less stressed.If

I get one it better have a handle to hold on to otherwise I will bounce

off it and threw the door or on my dog LOL.