Re: Looking for special lab work

[Guest guest]

Hi Barb,

Wow that is very specific. After being exposed to toxic mold from what ive read

on this board and elsewhere and from my own experiences, our bodies are totally

jacked up(ok not a professional term i know) after exposure!! And that is during

and post treatment with meds like anti-fungals and cholestyramine and others

that are specific to biotoxins. I mean all the normal biological processes

especially naturally occurring detoxification and hyper sensitivity to all

things chemical and if re-exposure occurs, within minutes we are back to square

one with our declining health.

Im sure your physician is correct in his implications however it seems to be

just a small part of the bigger picture from the various, numerous, life

changing symptoms we all suffer after exposure. But to answer your question it

would seem like a Doctor would have to find that lab your looking for and order

the lab work. Most labs only work with doctors orders unfortunately.

Sorry i couldnt be of more help to you.

God Bless

Eli

p.s. Supplementing your diet with a great multi vitamin will help you with your

B-Vitamin deficiencies.

agasaya <agasaya@...> wrote: Are there any

labs which currently assess the esterases necessary for

various metabolic processes related to detoxification, including the

sulfur transferases? My physician feels these are implicated in many

with environmentally induced illness and are very likely to be

diminished in my own case, given my serious sulfur allergies,

deficiencies in folate, B vitamins, food allergies to sufur-containing

foods etc. These cannot be tested commercially as far as we can tell.

Thanks for any info you may have,

Barb Rubin

[Guest guest]

I was poisoned by pesticides before I ever became mold sensitized.

The issue is that most buildings are 'sick' and we were nearly all

exposed to them prior to illness developing. I was fortunate to find

out (after decades of reactivity) what 'got' me and how it effected

me. I can't touch Bs, folate, glutathione, NAC, etc. because I can't

process sulfur which is the basis of our detox system.

Sulfation/methylation problems are suspected in many disorders from

autism to cancer. I handled it all fine before poisoning so the

mechanism was 'broken'. Drug clearance is also effected and I cannot

tolerate any foods which are rich in these vitamins and minerals. We

also found that processing of vitamin A is via the same sulfur

enzymes and I have long been unable to tolerate A even topically

(intermittent night blindness as well).

These tests are not available commercially and my doc will happily

prescribe any tests if I can find the lab to do it. They couldn't.

Barb

-----------------------------------

>

> Hi Barb,

> Wow that is very specific. After being exposed to toxic mold from

what ive read on this board and elsewhere and from my own

experiences, our bodies are totally jacked up(ok not a professional

term i know) after exposure!! And that is during and post treatment

with meds like anti-fungals and cholestyramine and others that are

specific to biotoxins. I mean all the normal biological processes

especially naturally occurring detoxification and hyper sensitivity

to all things chemical and if re-exposure occurs, within minutes we

are back to square one with our declining health.

> Im sure your physician is correct in his implications however

it seems to be just a small part of the bigger picture from the

various, numerous, life changing symptoms we all suffer after

exposure. But to answer your question it would seem like a Doctor

would have to find that lab your looking for and order the lab work.

Most labs only work with doctors orders unfortunately.

>

> Sorry i couldnt be of more help to you.

> God Bless

> Eli

> p.s. Supplementing your diet with a great multi vitamin will help

you with your B-Vitamin deficiencies.

>

[Guest guest]

Barb,

You might take a look at Genova Diagnostics (http://www.gdx.net/home/)

They do a variety of specialized tests. You could probably call and

speak to someone.

>

> Are there any labs which currently assess the esterases necessary for

> various metabolic processes related to detoxification, including the

> sulfur transferases? My physician feels these are implicated in many

> with environmentally induced illness and are very likely to be

> diminished in my own case, given my serious sulfur allergies,

> deficiencies in folate, B vitamins, food allergies to sufur-containing

> foods etc. These cannot be tested commercially as far as we can tell.

>

> Thanks for any info you may have,

>

> Barb Rubin

>

[Guest guest]

Barb,

Did your doctor have a specific assay in mind? I used to work in a

medical lab, but I think for what you're looking for you're going to

have to look into labs that do more specialized testing. I'll list

out a few examples below that may be able to provide some of the end

information that he's looking for, although I'm not sure that they'll

have the exact test menu that he's trying to find. See if he has any

specific markers in mind that he's looking to test.

Anyway, here's some suggestions for labs that may provide some of the

detox pathway info or metabolic info that he's looking for

(Personally, I've only ever had testing at Spectracell):

1.) http://www.spectracell.com/ They test " intracellular "

levels, which is quite different from regular blood testing which

tests " extracellular " or circulating levels. Their FIA comprehensive

5000 profile gives a comprehensive view of what's going on inside

your cells nutritionally. When I got this test done, I was

surprized to find out I had several deficiencies and once corrected

made a difference in how I felt. It seems being exposed to these

toxins robs our bodies of a lot of vitamins & other nutrients.

2.) http://www.gdx.net/home/ Under Metabolic testing, they

have a Comprehensive Detox Profile. Don't really know much about

the lab or testing though.

3.) http://www.metametrix.com/content/DirectoryOfServices/Main

Again, don't know much about this lab. They do offer a few profiles,

such as the Organix Profiles & the Toxic Effects Profiles that may be

helpful.

4.) http://www.specialtylabs.com/ This is a very

reputable " reference Lab " . They do a lot of " unusual " testing that

is isn't done at many of your mainstream labs. If they don't do the

testing, they may know where you can get it done. Your doctor may

also find the " Rainbow Reference Books " very helpful. I believe that

they now have them online to reference.

5.) Nichols Institute is part of Quest Diagnostics Lab and they do

very specialized testing as well.

I apologize for not being able to give you better info, but I no

longer actively work in the field because of my illness. I hope some

of this info may help though.

Debbie :-)

>

> Are there any labs which currently assess the esterases necessary

for

> various metabolic processes related to detoxification, including

the

> sulfur transferases? My physician feels these are implicated in

many

> with environmentally induced illness and are very likely to be

> diminished in my own case, given my serious sulfur allergies,

> deficiencies in folate, B vitamins, food allergies to sufur-

containing

> foods etc. These cannot be tested commercially as far as we can

tell.

>

> Thanks for any info you may have,

>

> Barb Rubin

>

[Guest guest]

Thank you and also all the others who responded on and off list. I

will certainly advise you of any information I obtain.

Barb

www.armchairactivist.us

=====================================

--- In , " SUNnFUUN " <sunnfuun@...>

wrote:

>

> Barb,

>

> Did your doctor have a specific assay in mind? I used to work in

a

> medical lab, but I think for what you're looking for you're going

to

> have to look into labs that do more specialized testing. I'll

list

> out a few examples below