Guest guest Posted June 14, 1999 Report Share Posted June 14, 1999 Hello to all, I just recently got home from having his Mri and Dr's appointment. We found out that his cerebellum looks good and is not crowded around foramen magnum. However his right ventricle of the brain is totally collapsed, this is where his shunt is. They also say his bubble to his shunt is slow to fill. Nsg is putting him on a trial dose of diamox. Half way into explaining this she had to run to emergency surgery, I am supposed to call her tomorrow nite. In the meantime can any one supply me with any info on what the above all means?? Thanks alot. Lorraine (ryan's mom) ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 1999 Report Share Posted June 14, 1999 In a message dated 6/14/99 7:07:15 PM Eastern Daylight Time, LDON32@... writes: << However his right ventricle of the brain is totally collapsed, this is where his shunt is. They also say his bubble to his shunt is slow to fill. >> I'm not really sure about the collapsed ventricle but makes me want to think that the shunt was possibly overdraining?? Did the NSG mention anything about slit ventricles which is due the the shunt overdraining? 's pump on her shunt has for years been slow to fill. Not sure why, but none of the NSG's that she has seen over the years has considered it a problem - her yearly CT shows everything OK. They have said it obviously is doing what it is supposed to do. That wasn't much help was it?? Tory ('s mom) ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 1999 Report Share Posted June 14, 1999 wrote: Hello, I take the drug Diamox b/cause I create too much CSF to cause hydrocephalus, but it's not enough to warrant inserting a shunt at this time. Docs fear if they put a shunt in & it drains off too much fluid which will cause even more problems. The worse part about Diamox is that it changes the taste of everything you eat or drink. You eventually get used to it. The other drawback was I seem to be a little bit more lethargic or lazy until my body adjusted. Major side effect of this drug is that is causes your body to become acidic or acidosis. Acidosis causes bone loss so I must take extra calcium & hormone replacement therapy (at the age of 33) to prevent any additional bone loss. It has also caused nausea & vomiting as well. All the best to you & your loved one. a Original Article: /group/chiari/?start=18976 > Hello to all, > I just recently got home from having his Mri and Dr's appointment. > We found out that his cerebellum looks good and is not crowded around > foramen magnum. > However his right ventricle of the brain is totally collapsed, this is where > his shunt is. > They also say his bubble to his shunt is slow to fill. > Nsg is putting him on a trial dose of diamox. Half way into explaining this > she had to run to emergency surgery, I am supposed to call her tomorrow nite. > In the meantime can any one supply me with any info on what the above all > means?? > Thanks alot. > Lorraine (ryan's mom) > ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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