Guest guest Posted May 26, 2012 Report Share Posted May 26, 2012 No, I don't wonder. I said you are lucky that there was a clear line for you. Tracie, you wonder if it's possible to see a separation between my son's issues and the drug -- the answer is yes, because my son was 11 when we first used Miralax. The anxiety, phobias, tics ... all of these developed over the years as he matured. If a parent starts their child with Miralax at a young age, uses it for years, and then sees new neuro symptoms years later, I personally find it hard to make the connection. > > "...but some of the posts here pretty far fetched and I just think it reflects poorly on the group." > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2012 Report Share Posted May 26, 2012 For me personally with my daughter who was on Miralax from the time she was nearly 18 months until she was nearly 26 months the correlation between her symptoms and Miralax was pretty cut and dried, as in she exhibited some odd and paranoid behavior as well as some rapid facial tics, all of which appeared shortly after she was on Miralax and disappeared shortly after we stopped Miralax. But the most graphic evidence I have is her growth chart which clearly showed that my daughter didn't grow a millimetre in nearly nine months and actually lost an ounce....she was failing to thrive while on Miralax. A month after she was off it she grew nearly an inch, but it took her another 6 months or so before she started gaining weight again. My daughter had no other underlying medical issue. She was constipated because of regular whole milk. I mentioned this to the Pediatrician, and even asked about lactose-free milk, but the solution recommended to me was Miralax. Anyway, my thought is that Miralax should be the very last resort, if at all...not the go-to solution for the common constipation. If nothing else, now with this article out there, other parents researching Miralax won't have to dig as deep as I did to find information and guidance. If this article had been written 3 years ago maybe my 4.5 year old girl wouldn't look like she was closer to 3.5 y/o. Sent from Yahoo! Mail on Android From: bbrodley ; To: ; Subject: Re: NYT article Sent: Sat, May 26, 2012 3:13:13 PM My son has some neurological issues that have no known cure. Not feeling lucky. > > > > "...but some of the posts here pretty far fetched and I just think it reflects poorly on the group." > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2012 Report Share Posted May 26, 2012 To the people who feel that we are not properly arriving at our conclusions: I am 43 years old, not a child. I took it for a mere 3 months, at the end of which I went crying to my doctor because I could not handle it anymore. Sure I had bowel movements on it, but only on it. Preceding it I had one voluntary movement for a week, afterwards I had no voluntary movements and 9 months later still have none. My teeth were developing sensitivities on it, they are continuing to deteriorate. I have a bloated stomach that started on the drug and my GP thinks it is possibly nerve damage As far as neurological issues – i was lucky enough to be an adult and be on it a relatively short time in comparison to other people. You have to form your own opinion on the side effects of the drug. You have decided that the drug cannot have caused any problems in your child – that’s your perogative. But in a group of 1600 who feel the way we do and have all had similar symptoms that is a lot of opinions – to me and others it is conclusive that the drug has bad side effects. Take your time to read all of the posts and files too. From: Lillu Sent: Saturday, May 26, 2012 10:49 AM To: Miralax ; bbrodley@... Subject: Re: Re: NYT article For me personally with my daughter who was on Miralax from the time she was nearly 18 months until she was nearly 26 months the correlation between her symptoms and Miralax was pretty cut and dried, as in she exhibited some odd and paranoid behavior as well as some rapid facial tics, all of which appeared shortly after she was on Miralax and disappeared shortly after we stopped Miralax. But the most graphic evidence I have is her growth chart which clearly showed that my daughter didn't grow a millimetre in nearly nine months and actually lost an ounce....she was failing to thrive while on Miralax. A month after she was off it she grew nearly an inch, but it took her another 6 months or so before she started gaining weight again. My daughter had no other underlying medical issue. She was constipated because of regular whole milk. I mentioned this to the Pediatrician, and even asked about lactose-free milk, but the solution recommended to me was Miralax. Anyway, my thought is that Miralax should be the very last resort, if at all...not the go-to solution for the common constipation. If nothing else, now with this article out there, other parents researching Miralax won't have to dig as deep as I did to find information and guidance. If this article had been written 3 years ago maybe my 4.5 year old girl wouldn't look like she was closer to 3.5 y/o. Sent from Yahoo! Mail on Android From: bbrodley ; To: ; Subject: Re: NYT article Sent: Sat, May 26, 2012 3:13:13 PM My son has some neurological issues that have no known cure. Not feeling lucky. > > > > "...but some of the posts here pretty far fetched and I just think it reflects poorly on the group."> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2012 Report Share Posted May 26, 2012 The point of this group is to relay information about the adverse effects our children and families have endured because of Miralax. These are things we, as adults, noticed after Miralax began. In some cases, the reactions reduced or cleared after Miralax was discontinued. There are no "claims." These are real stories from real people about real children. Hi Mickey, thanks for expanding on what I tried to say. I agree with everything you said. We need to be careful regarding what claims are made. > > I have to admit, I agree very much with bbrodley's post. I, too, am > dealing with issues with miralax and usage for my child, but I see way too > much scapegoating. And the response to his post is exactly what I > expected, though, to be honest, not as voluminous as I expected. We need > to be careful. > > No one is denying the reality of people's conditions, I don't think. What > you're dealing with is real. It's causes, though, might not be so clear > cut. > > I do think that we attribute causality to things that we can't prove. The > point made that some of these things would have developed anyway is a valid > one, but one that is hard to accept. It's nicer to have causes. Discrete, > open-and-shut causes. But often in life, it's just not that simple. I > think Miralax poses several potential issues, but we can't just assume that > every symptom that happened after a particular time is necessarily > related. Nor are things that develop years later necessarily related. Is > it possible? Sure, I think we should allow for that, but I think too often > it's stated on here that, "we took miralax, and now..." and that all of > those things are definitely attributable to the drug. Not, "I suspect > that..." It's where emotion, suffering, and logic all collide. It's a > very difficult thing to navigate, but I think his point is taken that if > you over-attribute without anything more than anecdotal evidence, then it > does make the overall goal look suspect to people who are not familiar with > the issue. > Quote Link to comment Share on other sites More sharing options...
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