Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi all, I don't get on here often, but am usually in the LBD chat room most weeknight evenings. I was wondering if anyone else is caring for someone with LBD who has had a stroke? My husband seems to have cycles of weakness and I was wondering if it is from the LBD. Since he cannot communicate well, it is hard to separate problems from the stroke with those from LBD. He has recently resumed physical therapy because he had lost ground after a few hospital stays. About 2 weeks ago he was progressing pretty well and walked almost 50 feet with help and a hemi walker. Then last weekend, he got weak again and some days I have trouble even transferring him from bed to chair or chair to commode, etc.. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Phyllis, My dad is home with 24/7 caregivers in addition to my mom who would not be able to handle him alone. These women are trained to know safe ways to transfer him from bed, in and out of the shower, and so on. Sometimes when we're there he can walk around on his own with help getting in and out of chairs/bed and someone walking beside him guiding him for safety. He will go for a " stroll " with the caregiver beside him up and down the driveway. Other times he is so weak that he cannot even stand. He slumps over and seems to not have any energy to get from one place to the other. We have a transport chair that they can use when he is like that. I just attribute it to the roller coaster nature of LBD--some days he feeds himself and other days he sits with his eyes closed at the table and has to be fed. There doesn't seem to be a " cause " for the fatigue most of the time. My dad has not had a stroke, although he had a heart attack in 2004. I just think it's the Lewy Coaster. Dianne P daughter of Bill, 84 pdklee2004 wrote: Hi all, I don't get on here often, but am usually in the LBD chat room most weeknight evenings. I was wondering if anyone else is caring for someone with LBD who has had a stroke? My husband seems to have cycles of weakness and I was wondering if it is from the LBD. Since he cannot communicate well, it is hard to separate problems from the stroke with those from LBD. He has recently resumed physical therapy because he had lost ground after a few hospital stays. About 2 weeks ago he was progressing pretty well and walked almost 50 feet with help and a hemi walker. Then last weekend, he got weak again and some days I have trouble even transferring him from bed to chair or chair to commode, etc.. Phyllis --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Thanks Dianne, I have been feeling it was probably from the LBD, but was hoping for some confirmation. I want to keep up the physical therapy and they need to know that there are other factors that hinder his walking. The therapist working with him now is trying to get an EStim ? device to help keep his leg muscles active even when he is in a " weak mode " . At least that is the way I understand it. Phyllis > Hi all, I don't get on here often, but am usually in the LBD chat room > most weeknight evenings. > > I was wondering if anyone else is caring for someone with LBD who has > had a stroke? > > My husband seems to have cycles of weakness and I was wondering if it > is from the LBD. Since he cannot communicate well, it is hard to > separate problems from the stroke with those from LBD. > > He has recently resumed physical therapy because he had lost ground > after a few hospital stays. About 2 weeks ago he was progressing > pretty well and walked almost 50 feet with help and a hemi walker. > Then last weekend, he got weak again and some days I have trouble even > transferring him from bed to chair or chair to commode, etc.. > > Phyllis > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.