Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 One hospitcal site I was just on recommended preventive antibiotic use and, from other things I've read, that is an old protocol and probiotics are used (d-mannose may be even better) for the early stages because they are shown to be as effective as antibiotics - there is a study out there you can google. If someone you know has VUR, before you go the antibiotic route, please look into D-Mannose.>> My 3 year old daughter has VUR. Basically it is when the valves connecting the ureters and bladder don’t function properly and allow urine to backflow into the kidneys causing infection. She had reimplantation surgery so no longer has the reflux, but suffers from constipation, as many VUR kids do. Both her urologist and pediatrician recommended Miralax daily. I was giving it to her with no apparent side effects until I came across this group and will now investigate further. > > > > From: miralax [mailto:miralax ] On Behalf Of CAChitter@...> Sent: Thursday, May 31, 2012 7:31 AM> To: miralax > Subject: Re: VUR> > > > > > I think VUR is a mechanical issue - my nephew had it and I had my daughter tested - but it can lead to serious infections - maybe kids who don't know they have it and get uti's and are on miralax are more vulnerable to the effects of peg? > > > > > > > > You're very welcome. I have never heard of VUR before, thankfully. > I share this group as a wonderful source of information with everyone that I speak with... especially new parents who will possibly come across Miralax in the future... in hopes that we can spare others from so much pain and suffering.> > > > Boutillette-Torlucci, JP+ 99494> > > > > > Want to grow your own fruits and veggies at home? Check out the Tower Garden!> > <http://www.susant.towergarden.com/> www.susant.towergarden.com Developed from Disney's hydroponic technology used at THE LAND.> > > > See <http://www.healthwithsusan.com/> www.healthwithsusan.com to learn how to add nutritious, vine-ripened fruits & veggies to your diet!> > Ask about how children ages 4-16 and F/T college students receive free Juice Plus+!> > > > See <http://www.tapintokangen.com/> www.tapintokangen.com to learn more about ionized, alkaline, oxygen-rich drinking water.> > > > Providing education so that people may invest in the future of their health!> > > > <http://thebeavers.net/wp-content/uploads/2012/02/tower-garden-presentation-01-2012-12.jpg> > > > > > > _____ > > > To: miralax > Date: Wed, 30 May 2012 18:21:51 -0700> Subject: Re: VUR> > > > That's what I thought.....when I typed it in, I couldn't find anything but I was in a hurry and at work. Thanks > > > > This is something that I think needs to be thoroughly investigated with this drug. This happens to too many children for it not to related. I wonder if it's deadening these nerves? > > People need to report to FDA ASAP! > > > Causes> > > In healthy individuals the ureters enter the urinary bladder obliquely and run submucosally for some distance. This, in addition to the ureter's muscular attachments, helps secure and support them posteriorly. Together these features produce a valvelike effect that occludes the ureteric opening during storage and voiding of urine. In people with VUR, failure of this mechanism occurs, with resultant retrograde flow of urine.> > Hardikar syndrome can include Vesicoureteral reflux, <http://en.wikipedia.org/wiki/Hydronephrosis> Hydronephrosis, <http://en.wikipedia.org/wiki/Cleft_lip_and_palate> cleft lip and palate, <http://en.wikipedia.org/wiki/Intestinal_obstruction> Intestinal obstruction and other symptoms. <http://en.wikipedia.org/wiki/Vesicoureteral_reflux#cite_note-0> [1] > > http://en.wikipedia.org/wiki/Vesicoureteral_reflux > > > > > > > _____ > > > > To: Miralax Yahoo Group <miralax >> Sent: Wed, May 30, 2012 7:30:29 PM> Subject: RE: VUR> > > > > > I entered VUR into Google and found this website:> > http://www.vurinfo.com/> > > > > > Boutillette-Torlucci, JP+ 99494> > > > > > Want to grow your own fruits and veggies at home? Check out the Tower Garden!> > <http://www.susant.towergarden.com/> www.susant.towergarden.com Developed from Disney's hydroponic technology used at THE LAND.> > > > See <http://www.healthwithsusan.com/> www.healthwithsusan.com to learn how to add nutritious, vine-ripened fruits & veggies to your diet!> > Ask about how children ages 4-16 and F/T college students receive free Juice Plus+!> > > > See <http://www.tapintokangen.com/> www.tapintokangen.com to learn more about ionized, alkaline, oxygen-rich drinking water.> > > > Providing education so that people may invest in the future of their health!> > > > <http://thebeavers.net/wp-content/uploads/2012/02/tower-garden-presentation-01-2012-12.jpg> > > > > > > _____ > > > To: miralax > Date: Wed, 30 May 2012 16:50:03 -0700> Subject: VUR> > > > Does anyone know what this stands for?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 LeeAnn, do you know how or why D Mannose works? Is this good for a UTI? or just VUR? To: miralax Sent: Thu, May 31, 2012 11:30:18 AMSubject: Re: VUR -- d-mannose If someone you know has VUR, before you go the antibiotic route, please look into D-Mannose. > > My 3 year old daughter has VUR. Basically it is when the valves connecting the ureters and bladder don’t function properly and allow urine to backflow into the kidneys causing infection. She had reimplantation surgery so no longer has the reflux, but suffers from constipation, as many VUR kids do. Both her urologist and pediatrician recommended Miralax daily. I was giving it to her with no apparent side effects until I came across this group and will now investigate further. > > > > From: miralax [mailto:miralax ] On Behalf Of CAChitter@... > Sent: Thursday, May 31, 2012 7:31 AM > To: miralax > Subject: Re: VUR > > > > > > I think VUR is a mechanical issue - my nephew had it and I had my daughter tested - but it can lead to serious infections - maybe kids who don't know they have it and get uti's and are on miralax are more vulnerable to the effects of peg? > > > > > > > > You're very welcome. I have never heard of VUR before, thankfully. > I share this group as a wonderful source of information with everyone that I speak with... especially new parents who will possibly come across Miralax in the future... in hopes that we can spare others from so much pain and suffering. > > > > Boutillette-Torlucci, JP+ 99494 > > > > > > Want to grow your own fruits and veggies at home? Check out the Tower Garden! > > <http://www.susant.towergarden.com/> www.susant.towergarden.com Developed from Disney's hydroponic technology used at THE LAND. > > > > See <http://www.healthwithsusan.com/> www.healthwithsusan.com to learn how to add nutritious, vine-ripened fruits & veggies to your diet! > > Ask about how children ages 4-16 and F/T college students receive free Juice Plus+! > > > > See <http://www.tapintokangen.com/> www.tapintokangen.com to learn more about ionized, alkaline, oxygen-rich drinking water. > > > > Providing education so that people may invest in the future of their health! > > > > <http://thebeavers.net/wp-content/uploads/2012/02/tower-garden-presentation-01-2012-12.jpg> > > > > > > _____ > > > To: miralax > From: dreamjeanie@... > Date: Wed, 30 May 2012 18:21:51 -0700 > Subject: Re: VUR > > > > That's what I thought.....when I typed it in, I couldn't find anything but I was in a hurry and at work. Thanks > > > > This is something that I think needs to be thoroughly investigated with this drug. This happens to too many children for it not to related. I wonder if it's deadening these nerves? > > People need to report to FDA ASAP! > > > Causes > > > In healthy individuals the ureters enter the urinary bladder obliquely and run submucosally for some distance. This, in addition to the ureter's muscular attachments, helps secure and support them posteriorly. Together these features produce a valvelike effect that occludes the ureteric opening during storage and voiding of urine. In people with VUR, failure of this mechanism occurs, with resultant retrograde flow of urine. > > Hardikar syndrome can include Vesicoureteral reflux, <http://en.wikipedia.org/wiki/Hydronephrosis> Hydronephrosis, <http://en.wikipedia.org/wiki/Cleft_lip_and_palate> cleft lip and palate, <http://en.wikipedia.org/wiki/Intestinal_obstruction> Intestinal obstruction and other symptoms. <http://en.wikipedia.org/wiki/Vesicoureteral_reflux#cite_note-0> [1] > > http://en.wikipedia.org/wiki/Vesicoureteral_reflux > > > > > > > _____ > > > > To: Miralax Yahoo Group <miralax > > Sent: Wed, May 30, 2012 7:30:29 PM > Subject: RE: VUR > > > > > > I entered VUR into Google and found this website: > > http://www.vurinfo.com/ > > > > > > Boutillette-Torlucci, JP+ 99494 > > > > > > Want to grow your own fruits and veggies at home? Check out the Tower Garden! > > <http://www.susant.towergarden.com/> www.susant.towergarden.com Developed from Disney's hydroponic technology used at THE LAND. > > > > See <http://www.healthwithsusan.com/> www.healthwithsusan.com to learn how to add nutritious, vine-ripened fruits & veggies to your diet! > > Ask about how children ages 4-16 and F/T college students receive free Juice Plus+! > > > > See <http://www.tapintokangen.com/> www.tapintokangen.com to learn more about ionized, alkaline, oxygen-rich drinking water. > > > > Providing education so that people may invest in the future of their health! > > > > <http://thebeavers.net/wp-content/uploads/2012/02/tower-garden-presentation-01-2012-12.jpg> > > > > > > _____ > > > To: miralax > From: dreamjeanie@... > Date: Wed, 30 May 2012 16:50:03 -0700 > Subject: VUR > > > > Does anyone know what this stands for? > Quote Link to comment Share on other sites More sharing options...
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