Guest guest Posted June 21, 1999 Report Share Posted June 21, 1999 Hi All, I am one of the new quiet ones in the group. Your posts have been a wealth of information as I have been learning about my recent diagonsis of chiari 1. I just talked wih my neurologist today though and he does not believe my symptoms are coming from the malformation, except fot maybe the nystagmus. He says that chiari malformations are like being bald...just a strang malfunction and not the root of all evils. I guess I thought my symptoms sounded like the symptoms mentioned on the web sight...fatigue, pin & needles in hands and feet, sensitivity to light, some dizziness, clumsy, daily occipital headaches, muscle fatigue, trouble focusing blah blah blah etc etc etc. Anyway, he wants me to come in on Monday for EMG/nerve conduction velocity tests. Is this usual? I have some ideas of what he is looking for. I guess I am so surprised he doesn't think the chiari has anything to do with it. I have had an MRI of head, cervical & thoracic spine which revealed only the chiari, and not a syrinx. Anyway, I am beginning to ramble. Is this doctor on track , am I headed for another diagnosis as well? I would greatly appreciate any input you have. And thankyou to those of you who have replied to my previous questions. I am sorry I have not replied back lately as I have been in La La land... is this not a Chiari symptom or what? Oh well Bye. Holly from VA ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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