dural ectasia

[Guest guest]

Does anyone know what happens to a dural ectasia, ballooning of the dura at the

sub-occipital area, when it's not treated? On MRI report, but like so much

else, and like so many others, nothing was said.

Also sure I have EDS, but can't get help for anything. Suspect that the EDS is

responsible for the dural ectasia and the hole in the sac around my heart that

is imflammed and leaking, and no one cares. Also the joint pain and joints

protruding and shiny, red at lower part, and white where stretched out.

My son has EDS-hypermobility-and joint pain and Chiari.

Other things, as well, but can look back into my family and see where these

things probably came from.

Forgive me. I'm so discouraged and so tired. I just want some help, some

relief. This is so relentless. Been too many years. I know I'm not alone.

But I am alone, and I just want the best for us all.

Debbie

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