RE: Re: my sadness

[Guest guest]

thanks leeann.

my sadness

>

>

>

>

> As you all know and some have helped out with, our ds has been

enduring a huge back-up. At first, the doc (naturopath) said itâ?Ts

gastritis caused by constipation. Which it probably wasâ?¦ds missed

one day of school, came home early the next because he didnâ?Tt feel

good. Went to school and church the next day, then missed the next

two days of school and all activities. Pain was his biggest problem

â? " doubled over, crying, begging me and God to make it stop. We were

giving the rememdies the doc suggested â? " massive doses of Vit C

(5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm.

It ended up where we up all night one night with his pain and crying,

so we went to get an xray at the chiroâ?Ts office â? " the doc is an

hour away, chiro is closer. Xray showed a mass in the middle of his

belly and his colon twisted. Called the doc, he told us to come right

away. Got there and another xray showed an incredible amount of back

up â? " close to impaction. Colon okay, not twisted. The whole time ds

was in incredible painâ?¦writhing, crying, doubled over. Hard to do

an xray that way. The only way out was to go from the bottom up, not

top down as we had been doing. Doc suggested an enema and ds lost it

right there â? " crying, screaming, begging noâ?¦doc sent us home with

instructions to do 3 suppositories a day. Ds had a terrible fit each

timeâ?¦he would scream, cry and tense up. My dh had to hold him down

while I tried to get the suppository where it was supposed to go â? "

pain still continues, nothing is happening. TWELVE days of this and

NOTHING. Heâ?Ts pooâ?Ting little poops â? " nothing to write home

about, though. When does this end? This is our second major back up

this year â? " I thought I was doing everything right. Food,

supplements, activity, toileting. Everything I thought was right is

not â? " Iâ?Tm so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema wonâ?Tt help if

suppositories are doing nothing. He says if nothing happens by

Monday, surgery might have to happen. Iâ?Tve cried and cried today-

trying not to let my kid see me. Donâ?Tt want him worrying more than

he is.

>

>

>

> This constipation stuff SUCKS. Iâ?Td use stronger words

throughout, but out of respect for your poor eyes and brain, Iâ?Tll

refrain! J As whiny as it sounds, this just isnâ?Tt fair. Weâ?Tre

seeing a holistic nutritionist later this week â? " maybe sheâ?Tll

have some answers. Weâ?Tve also doubled his water intake â? " now I

worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, Iâ?Td be willing to

consider them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at docâ?Ts office, I showed

him the miralax group. He was VERY impressed â? " he says heâ?Ts going

to join. Hope so!! He said he didnâ?Tt realize lay people could

generate so much information. Wouldnâ?Tt it be great to have a doc

sharing advice? Showed him the files, etc. Showed him the adverse

reaction reports â? " he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and

the other meds listed or is it a culmination of any kind of adverse

reaction to the medications listed?

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1835 - Release Date:

12/7/2008 4:56 PM

>

------------------------------------

[Guest guest]

He just drinks the water. We started at about a cup in the morning and a cup in the early evening. He is able to take less now and still have a good b.m.

my sadness> > > > > As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem â€" doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested â€" massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office â€" the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible amount of back up â€" close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there â€" crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go â€" pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops â€" nothing to write home about, though. When does this end? This is our second major back up this year â€" I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not â€" I’m so confused and sad and in pain because my child is in pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is. > > > > This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week â€" maybe she’ll have some answers. We’ve also doubled his water intake â€" now I worry about hyponatreamia. Good God.> > > > Thanks for listening. If you have any ideas, I’d be willing to consider them.> > > > Tracie> > > > Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed â€"he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports â€" he had 3 questions:> > 1. Are there reports pertaining to PEG, as opposed to EG?> > 2. What is the molecular difference between PEG and EG?> > 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listed? > > > > > --------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.9.15/1835 - Release Date: 12/7/2008 4:56 PM>

[Guest guest]

They even have one for children.

Subject: Re: my sadnessTo: miralax Date: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

IS this something you can use on  a daily basis since it’s

magnesium?

From:

miralax [mailto:miralax ] On Behalf Of Jennie

Sent: Saturday, December 13, 2008 10:48 AM

To: miralax

Subject: Re: Re: my sadness

They even have one for children.

From: Heidi Dillon

Subject: Re: my sadness

To: miralax

Date: Saturday, December 13, 2008, 7:37 AM

Natural calm comes

in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is

ALL NATURAL. See www.petergillham.

com. I bought mine at vitamin shoppee

[Guest guest]

Some do!! I would be a little leary about using daily due to it is citrate form and can be acidic on the gi!! The natural calm form is not huge dose amounts so most likely not to harmful. Im thinking you should see if you can do daily for a few daily to get things moving and then trial on lowering the doses to every other day or so or lower than recommended doses daily. Hopefully those who use it(we dont use calm form with our son(to sensory)but other citrate form) can tell you more about it. But citrate seems to be the best form of magnesium for movements. In saying all this Im thinking in low doses it could be fine but should try alternating days! Let us know how it works! Jennie<><

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

Has anyone had it happen where mag citrate (any form) make the

colon shut down? Where the colon became dependent on the contractions caused by

the mag citrate?

From:

miralax [mailto:miralax ] On Behalf Of Jennie

Sent: Saturday, December 13, 2008 1:18 PM

To: miralax

Subject: RE: Re: my sadness

Some do!! I would be a little leary about using daily due

to it is citrate form and can be acidic on the gi!! The natural calm form is

not huge dose amounts so most likely not to harmful. Im thinking you should

see if you can do daily for a few daily to get things moving and then trial

on lowering the doses to every other day or so or lower than recommended

doses daily. Hopefully those who use it(we dont use calm form with our son(to

sensory)but other citrate form) can tell you more about it. But citrate seems

to be the best form of magnesium for movements. In saying all this Im

thinking in low doses it could be fine but should try alternating days! Let

us know how it works! Jennie<><

From: Heidi Dillon <heidi.dillon@ verizon.net>

Subject: Re: my sadness

To: miralax@yahoogroups .com

Date: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry

lemon flavor. It works wonders, doesn¢t taste bad and is ALL

NATURAL. See www.petergillham.

com. I bought mine at vitamin shoppee

[Guest guest]

I think this would be hard unless someone was using in super high doses all the time. We actually need magnesium daily if able in supplementing form due to we dont have enough in our foods anymore. From what I understand magnesium is a relaxer and this is also why some use it when in high stress/anxiety(this includes muscle twitching). Im not to sure on the contractions from mag due to it relaxes the muscles. Now I have breifly seen this mentioned, but highly suspect it wont do to much there. Magnesium when it causes loose stools is because the body is getting rid of what it doesnt need for the day not that it is neccessarily stimulating contractions. Not gonna swear on this but I think it is the opposite mineral calcium that would stimulate contractions(but calcium can constipate). Magnesium was a big one for calming our sons seizures! Most likely someone cant

become dependant on a mineral our body needs anyways especially the ones that excrete out if not needed. The only time there needs to be caution with magnesium is if there are kidney issues that I know of and of coarse no overdosing(we can do this with anything). Or if calcium body supplies are very low. Magnesium pulls calcium, but america has plenty of calcium in our food supply and not to much worry there unless mag is overdosed all the time. You are fine to use magnesium. Just maybe not citrate in large doses daily!! If this is referring to the natural calm, I have never heard at this point of anyone having problems with it! Jennie<><

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

http://www.petergillham.com/literature/pdf/Kid's-Calm-trifold.pdf

, this looks promising, I like how they know about looking at vitamin deficiency vs. treating ADHD with medications. Isn't it funny that I don't know one doc that looks at deficiencies before prescribing something for ADHD or anything for that matter...........

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

no........... but Pfeiffer uses mag oxide which gave my dd a headach right in the middle of her eyes on her forehead

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

Magnesium pulls calcium, but america has plenty of calcium in our food supply and not to much worry there unless mag is overdosed all the time.

, I thought magnesium and calcium balance each other? I've never heard of it pulling calcium? From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

Yes they do balance eachother, agreed! Calcium can deplete magnesium strongly if not proper amounts, we are overdosing on calcium in our country and causing serious mangesium depletions. There isnt a whole lot of info on the reverse, infact much reports claiming to much magnesium doesnt affect calcium, but it does! Kinda contraveral at this point I think. I think we dont have to worry to much about the to much magnesium unless someone is deficiant in calcium(rare though). I suspect it would have to be daily huge huge doses of magnesium to affect the calcium levels. Magnesium cleanouts should be limited! I shouldnt have mentioned this since it does seem a little contraversal in the research, sorries!!! Here is an article that may help!! Jennie<><

http://www.acu-cell.com/mr.html

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

I’m sorry to hear all the circumstances around your son’s

constipation. It’s so frustrating. In one of the articles I sent out a

little bit ago, there are estimates that 80% of Americans suffer from chronic

constipation and medical tests can be upwards of $3000 per year per person.

There’s a lot surrounding those statements and a lot more of opinion

surrounding those statements, but the bottom line is when it comes to the kids,

it needs to fixed – somehow.

We’ve been dealing with our son’s constipation since

he was born. He was on Miralax for 5 years before I realized what it was doing

to him. We decided to put him on it completely blind – trusting the

doctors and their ideas. Things went downhill fast for him – he’s

totally fine other than constipation and the side effects of it. We’re

still dealing with those issues – sensory, tics, autism spectrum

(possibly). This back-up we’re experiencing now is the worst yet. We’ve

decided on a radical approach to intervention but the decision came from the

frustration and pain of watching him suffer with this issue for too long. I

cannot imagine him dealing with this the rest of his life and the possibility of

a lifetime of drugs and their side-effects. His diet is near-perfect (he doesn’t

eat like a normal kid, which is good, but at this peer-charged age it’s

challenging) and he’s on supplements to help him go, all of which

inevitably stop working after a certain amount of time. It’s

time-consuming and expensive to continually reevaluate everything.

We’re going to a clinic in Mexico called International

Biocare Hospital (www.biocarehospital.com)

where they’ll do intensive alternative therapies to heal his gut and

remove the toxicities from his body (from years of backup and heavy metals from

vaccines). We’ll be gone up to 21 days but they have an 80% success rate.

They deal mostly with cancer, but also other autoimmune diseases and chronic

illnesses. We know two families that have had enormous success and one of those

families knows an Amish family who’s child went from non-verbal autism to

having a few social “idiosyncracies” with this treatment. It’s

a huge step and leap of faith, but we’re done with chronic constipation.

We just want him to poop! J

Doc said sedation just to protect ds from the trauma of either

digital extraction, enema or whatever else may need to happen in a hospital

setting. However, he had his 5th water bottle enema in 2 days and we

finally got some stool going . Not all of it, but a start to give him some hope.

I think we may have to one more enema, but at least he’s not freaking out

about it – he’s seen that it can help.

From: miralax

[mailto:miralax ] On Behalf Of missyjroy

Sent: Saturday, December 13, 2008 5:36 PM

To: miralax

Subject: Re: my sadness

>

> From: Happel's <ctajcharter (DOT) net>

> Subject: my sadness

> To: miralax@yahoogroups .com

> Date: Sunday, December 7, 2008, 3:55 PM

>

> As you all know and some have helped out with, our ds has been

enduring a

> huge back-up. At first, the doc (naturopath) said it's gastritis

caused by

> constipation. Which it probably was.ds missed one day of school,

came home

> early the next because he didn't feel good. Went to school and

church the

> next day, then missed the next two days of school and all

activities. Pain

> was his biggest problem - doubled over, crying, begging me and God

to make

> it stop. We were giving the rememdies the doc suggested - massive

doses of

> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm.

> It ended up where we up all night one night with his pain and

crying, so we

> went to get an xray at the chiro's office - the doc is an hour

away, chiro

> is closer. Xray showed a mass in the middle of his belly and his

colon

> twisted. Called the doc, he told us to come right away. Got there

and

> another xray showed an incredible amount of back up - close to

impaction.

> Colon okay, not twisted. The whole time ds was in incredible

pain.writhing,

> crying, doubled over. Hard to do an xray that way. The only way out

was to

> go from the bottom up, not top down as we had been doing. Doc

suggested an

> enema and ds lost it right there - crying, screaming, begging

no.doc sent us

> home with instructions to do 3 suppositories a day. Ds had a

terrible fit

> each time.he would scream, cry and tense up. My dh had to hold him

down

> while I tried to get the suppository where it was supposed to go -

pain

> still continues, nothing is happening. TWELVE days of this and

NOTHING. He's

> poo'ing little poops - nothing to write home about, though. When

does this

> end? This is our second major back up this year - I thought I was

doing

> everything right. Food, supplements, activity, toileting.

Everything I

> thought was right is not - I'm so confused and sad and in pain

because my

> child is in pain. What am I supposed to do? Doc says enema won't

help if

> suppositories are doing nothing. He says if nothing happens by

Monday,

> surgery might have to happen. I've cried and cried today- trying

not to let

> my kid see me. Don't want him worrying more than he is.

>

>

>

> This constipation stuff SUCKS. I'd use stronger words throughout,

but out of

> respect for your poor eyes and brain, I'll refrain! J As whiny as

it sounds,

> this just isn't fair. We're seeing a holistic nutritionist later

this week -

> maybe she'll have some answers. We've also doubled his water

intake - now I

> worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I'd be willing to

consider

> them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc's office, I showed him

the

> miralax group. He was VERY impressed -he says he's going to join.

Hope so!!

> He said he didn't realize lay people could generate so much

information.

> Wouldn't it be great to have a doc sharing advice? Showed him the

files,

> etc. Showed him the adverse reaction reports - he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and

the other

> meds listed or is it a culmination of any kind of adverse reaction

to the

> medications listdd?

>

[Guest guest]

Missy,

sorry to hear your story, hope your son is doing better..............I strongly advise anyone not to use the gastric tube, there are several reports on the FDA, AERS adverse reports of the nurse putting the gastric tube in the wrong spot, they inserted it into the lungs instead, this will cause a lifetime of ailments and considering I would never advise anyone to give Miralax, I strongly disagree with using a GI tube.......................This really affects the nervous system and it can take years for them to reside to normal sleeping patterns and I often wonder if it may affect them for the rest of their lives. There's only one thing that makes me more upset than giving a child Miralax and that's giving a non-verbal, already damaged child Miralax....................uhrrrrr.................He couldn't tell you how he's feeling if he tried.........these poor children

warm regards,

Jeanie

http://health.groups.yahoo.com/group/miralax/files/---

Subject: Re: my sadnessTo: miralax Date: Saturday, December 13, 2008, 5:35 PM

> > From: Happel's <ctajcharter (DOT) net>> Subject: my sadness> To: miralax@yahoogroups .com> Date: Sunday, December 7, 2008, 3:55 PM > > As you all know and some have helped out with, our ds has been enduring a> huge back-up. At first, the doc (naturopath) said it's gastritis caused by> constipation. Which it probably was.ds missed one day of school, came home> early the next because he didn't feel good. Went to school and church the> next day, then missed the next two days of school and all activities. Pain> was his biggest problem - doubled over, crying, begging me and God to make> it stop. We were giving the rememdies the doc suggested - massive doses of> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm.> It ended up where

we up all night one night with his pain and crying, so we> went to get an xray at the chiro's office - the doc is an hour away, chiro> is closer. Xray showed a mass in the middle of his belly and his colon> twisted. Called the doc, he told us to come right away. Got there and> another xray showed an incredible amount of back up - close to impaction.> Colon okay, not twisted. The whole time ds was in incredible pain.writhing,> crying, doubled over. Hard to do an xray that way. The only way out was to> go from the bottom up, not top down as we had been doing. Doc suggested an> enema and ds lost it right there - crying, screaming, begging no.doc sent us> home with instructions to do 3 suppositories a day. Ds had a terrible fit> each time.he would scream, cry and tense up. My dh had to hold him down> while I tried to get the suppository

where it was supposed to go - pain> still continues, nothing is happening. TWELVE days of this and NOTHING. He's> poo'ing little poops - nothing to write home about, though. When does this> end? This is our second major back up this year - I thought I was doing> everything right. Food, supplements, activity, toileting. Everything I> thought was right is not - I'm so confused and sad and in pain because my> child is in pain. What am I supposed to do? Doc says enema won't help if> suppositories are doing nothing. He says if nothing happens by Monday,> surgery might have to happen. I've cried and cried today- trying not to let> my kid see me. Don't want him worrying more than he is. > > > > This constipation stuff SUCKS. I'd use stronger words throughout, but out of> respect for your poor eyes and brain, I'll refrain! J

As whiny as it sounds,> this just isn't fair. We're seeing a holistic nutritionist later this week -> maybe she'll have some answers. We've also doubled his water intake - now I> worry about hyponatreamia. Good God. > > > > Thanks for listening. If you have any ideas, I'd be willing to consider> them. > > > > Tracie > > > > Oh! While waiting for xray to be read at doc's office, I showed him the> miralax group. He was VERY impressed -he says he's going to join. Hope so!!> He said he didn't realize lay people could generate so much information.> Wouldn't it be great to have a doc sharing advice? Showed him the files,> etc. Showed him the adverse reaction reports - he had 3 questions: > > 1. Are there reports pertaining to PEG, as opposed to EG? > > 2. What is

the molecular difference between PEG and EG? > > 3. Are the adverse reports only on people who used PEG and the other> meds listed or is it a culmination of any kind of adverse reaction to the> medications listdd?>

[Guest guest]

Missy,

I also forgot to tell you that just giving Miralax soley, without any BM's can pull the salt, water, magnesium, calcium, and potassium out of the brain and body, they are written all over the FDA sheets. So it's not just because of the diahrea, they forgot to tell you that part................wink wink! They know more than they tell you because they don't want to scare you and then you may decline the procedure. Ask them, it's true!

Subject: Re: my sadnessTo: miralax Date: Saturday, December 13, 2008, 5:35 PM

> > From: Happel's <ctajcharter (DOT) net>> Subject: my sadness> To: miralax@yahoogroups .com> Date: Sunday, December 7, 2008, 3:55 PM > > As you all know and some have helped out with, our ds has been enduring a> huge back-up. At first, the doc (naturopath) said it's gastritis caused by> constipation. Which it probably was.ds missed one day of school, came home> early the next because he didn't feel good. Went to school and church the> next day, then missed the next two days of school and all activities. Pain> was his biggest problem - doubled over, crying, begging me and God to make> it stop. We were giving the rememdies the doc suggested - massive doses of> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm.> It ended up where

we up all night one night with his pain and crying, so we> went to get an xray at the chiro's office - the doc is an hour away, chiro> is closer. Xray showed a mass in the middle of his belly and his colon> twisted. Called the doc, he told us to come right away. Got there and> another xray showed an incredible amount of back up - close to impaction.> Colon okay, not twisted. The whole time ds was in incredible pain.writhing,> crying, doubled over. Hard to do an xray that way. The only way out was to> go from the bottom up, not top down as we had been doing. Doc suggested an> enema and ds lost it right there - crying, screaming, begging no.doc sent us> home with instructions to do 3 suppositories a day. Ds had a terrible fit> each time.he would scream, cry and tense up. My dh had to hold him down> while I tried to get the suppository

where it was supposed to go - pain> still continues, nothing is happening. TWELVE days of this and NOTHING. He's> poo'ing little poops - nothing to write home about, though. When does this> end? This is our second major back up this year - I thought I was doing> everything right. Food, supplements, activity, toileting. Everything I> thought was right is not - I'm so confused and sad and in pain because my> child is in pain. What am I supposed to do? Doc says enema won't help if> suppositories are doing nothing. He says if nothing happens by Monday,> surgery might have to happen. I've cried and cried today- trying not to let> my kid see me. Don't want him worrying more than he is. > > > > This constipation stuff SUCKS. I'd use stronger words throughout, but out of> respect for your poor eyes and brain, I'll refrain! J

As whiny as it sounds,> this just isn't fair. We're seeing a holistic nutritionist later this week -> maybe she'll have some answers. We've also doubled his water intake - now I> worry about hyponatreamia. Good God. > > > > Thanks for listening. If you have any ideas, I'd be willing to consider> them. > > > > Tracie > > > > Oh! While waiting for xray to be read at doc's office, I showed him the> miralax group. He was VERY impressed -he says he's going to join. Hope so!!> He said he didn't realize lay people could generate so much information.> Wouldn't it be great to have a doc sharing advice? Showed him the files,> etc. Showed him the adverse reaction reports - he had 3 questions: > > 1. Are there reports pertaining to PEG, as opposed to EG? > > 2. What is

the molecular difference between PEG and EG? > > 3. Are the adverse reports only on people who used PEG and the other> meds listed or is it a culmination of any kind of adverse reaction to the> medications listdd?>

[Guest guest]

,

that was very interesting, could you explain the chart to me? I don't quite understand it? why would the stones only end up in either the R or L kidney, and the heel spur only end up in the right heel?

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

Jeanie, we can atest to this first hand! When our son was admitted(for testing/biopsie) they had him on the golytely for cleanout! I didnt realize until the next day when the nurse left the containor in the room and looked at the ingredients and realized it was PEG, they just changed the name from miralax to golytely...hmmmmm...why is this change(I suspect many are catching on to the dangers)? I was very upset to say the least knowing how my son reacts to Miralax. I told them he cant be on this, by the time(2nd day) they took him off due to grotest/extreme bloating/stat exray that showed no blockage(no poo coming out either/no diahrea) and then the blood testing showed that the PEG sitting in him for not even 2days had dramatically dropped his potassium dangerously low he started to have heart issues and ended up in ICU! He ended up there for a while

until they could get his potassium levels up and stayed on heart monitor the rest of his stay. This shows that diareha didnt cause the drops(which they tend to blame on the electrolyte issues) and it was the PEG sitting in him! This was less than 2 days of PEG, imagine the long term use daily with it! My point is that Jeannie knows what she is talking about when she points out the dangers of PEG/miralax/golytely. It is not ment to stay in the systom at all and should not be used due to the electrolyte(potassium) issues with it. I would be curious Jeannie if this PEG is linked to unknown sudden heart issues even heart attacks? They also told me there was danger with the heart and raising his potassium levels back up. This stuff is just not worth it and we all need to work very hard in getting all off this stuff and then teaching those alternate ways(alternate ways are much much easier in the long run once learned and also well heal the body for the

good). Jennie<><

From: missyjroy <missyjroyhotmail (DOT) com>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 5:35 PM

> > From: Happel's <ctajcharter (DOT) net>> Subject: my sadness> To: miralax@yahoogroups .com> Date: Sunday, December 7, 2008, 3:55 PM > > As you all know and some have helped out with, our ds has been enduring a> huge back-up. At first, the doc (naturopath) said it's gastritis caused by> constipation. Which it probably was.ds missed one day of school, came home> early the next because he didn't feel good. Went to school and church the> next day, then missed the next two days of school and all activities. Pain> was his biggest problem - doubled over, crying, begging me and God to make> it stop. We were giving the rememdies the doc suggested - massive doses of> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm.> It ended up where

we up all night one night with his pain and crying, so we> went to get an xray at the chiro's office - the doc is an hour away, chiro> is closer. Xray showed a mass in the middle of his belly and his colon> twisted. Called the doc, he told us to come right away. Got there and> another xray showed an incredible amount of back up - close to impaction.> Colon okay, not twisted. The whole time ds was in incredible pain.writhing,> crying, doubled over. Hard to do an xray that way. The only way out was to> go from the bottom up, not top down as we had been doing. Doc suggested an> enema and ds lost it right there - crying, screaming, begging no.doc sent us> home with instructions to do 3 suppositories a day. Ds had a terrible fit> each time.he would scream, cry and tense up. My dh had to hold him down> while I tried to get the suppository

where it was supposed to go - pain> still continues, nothing is happening. TWELVE days of this and NOTHING. He's> poo'ing little poops - nothing to write home about, though. When does this> end? This is our second major back up this year - I thought I was doing> everything right. Food, supplements, activity, toileting. Everything I> thought was right is not - I'm so confused and sad and in pain because my> child is in pain. What am I supposed to do? Doc says enema won't help if> suppositories are doing nothing. He says if nothing happens by Monday,> surgery might have to happen. I've cried and cried today- trying not to let> my kid see me. Don't want him worrying more than he is. > > > > This constipation stuff SUCKS. I'd use stronger words throughout, but out of> respect for your poor eyes and brain, I'll refrain! J

As whiny as it sounds,> this just isn't fair. We're seeing a holistic nutritionist later this week -> maybe she'll have some answers. We've also doubled his water intake - now I> worry about hyponatreamia. Good God. > > > > Thanks for listening. If you have any ideas, I'd be willing to consider> them. > > > > Tracie > > > > Oh! While waiting for xray to be read at doc's office, I showed him the> miralax group. He was VERY impressed -he says he's going to join. Hope so!!> He said he didn't realize lay people could generate so much information.> Wouldn't it be great to have a doc sharing advice? Showed him the files,> etc. Showed him the adverse reaction reports - he had 3 questions: > > 1. Are there reports pertaining to PEG, as opposed to EG? > > 2. What is

the molecular difference between PEG and EG? > > 3. Are the adverse reports only on people who used PEG and the other> meds listed or is it a culmination of any kind of adverse reaction to the> medications listdd?>

[Guest guest]

Jeanie, honestly I have no clue!! This is interesting and now cant wait to have the time to research this further. If you come accross info could you post! This stuff can get so deep! Every time I try to learn/research something new I get a new gray:) I usually just learn the basics unless more is needed! Vaccines was my deep crazy research! Jennie<>< From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

, I've posted this for years on here, all the different names that PEG is in, so this kind of mistake never happens.................

Golytely

NuLytely

Movicol

Colace

http://www.medicinenet.com/electrolyte_with_peg-oral/article.htm

http://understanding.infantilism.org/laxatives.php

Movicol used in the UK...............

http://www.netdoctor.co.uk/medicines/100001760.html

From: missyjroy <missyjroyhotmail (DOT) com>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 5:35 PM

> > From: Happel's <ctajcharter (DOT) net>> Subject: my sadness> To: miralax@yahoogroups .com> Date: Sunday, December 7, 2008, 3:55 PM > > As you all know and some have helped out with, our ds has been enduring a> huge back-up. At first, the doc (naturopath) said it's gastritis caused by> constipation. Which it probably was.ds missed one day of school, came home> early the next because he didn't feel good. Went to school and church the> next day, then missed the next two days of school and all activities. Pain> was his biggest problem - doubled over, crying, begging me and God to make> it stop. We were giving the rememdies the doc suggested - massive doses of> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm.> It ended up where

we up all night one night with his pain and crying, so we> went to get an xray at the chiro's office - the doc is an hour away, chiro> is closer. Xray showed a mass in the middle of his belly and his colon> twisted. Called the doc, he told us to come right away. Got there and> another xray showed an incredible amount of back up - close to impaction.> Colon okay, not twisted. The whole time ds was in incredible pain.writhing,> crying, doubled over. Hard to do an xray that way. The only way out was to> go from the bottom up, not top down as we had been doing. Doc suggested an> enema and ds lost it right there - crying, screaming, begging no.doc sent us> home with instructions to do 3 suppositories a day. Ds had a terrible fit> each time.he would scream, cry and tense up. My dh had to hold him down> while I tried to get the suppository

where it was supposed to go - pain> still continues, nothing is happening. TWELVE days of this and NOTHING. He's> poo'ing little poops - nothing to write home about, though. When does this> end? This is our second major back up this year - I thought I was doing> everything right. Food, supplements, activity, toileting. Everything I> thought was right is not - I'm so confused and sad and in pain because my> child is in pain. What am I supposed to do? Doc says enema won't help if> suppositories are doing nothing. He says if nothing happens by Monday,> surgery might have to happen. I've cried and cried today- trying not to let> my kid see me. Don't want him worrying more than he is. > > > > This constipation stuff SUCKS. I'd use stronger words throughout, but out of> respect for your poor eyes and brain, I'll refrain! J

As whiny as it sounds,> this just isn't fair. We're seeing a holistic nutritionist later this week -> maybe she'll have some answers. We've also doubled his water intake - now I> worry about hyponatreamia. Good God. > > > > Thanks for listening. If you have any ideas, I'd be willing to consider> them. > > > > Tracie > > > > Oh! While waiting for xray to be read at doc's office, I showed him the> miralax group. He was VERY impressed -he says he's going to join. Hope so!!> He said he didn't realize lay people could generate so much information.> Wouldn't it be great to have a doc sharing advice? Showed him the files,> etc. Showed him the adverse reaction reports - he had 3 questions: > > 1. Are there reports pertaining to PEG, as opposed to EG? > > 2. What is

the molecular difference between PEG and EG? > > 3. Are the adverse reports only on people who used PEG and the other> meds listed or is it a culmination of any kind of adverse reaction to the> medications listdd?>

[Guest guest]

My kids have also been like that. Right ear infections, right eye infections, turned out the atlas was waaay right. That is the first sign that they need to go back, eye buggers in the right eye.

From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

Wow, that is so interesting! That makes some sense on the right left topic! From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

can anyone explain this to me? I don't understand this? From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

If im understanding Nattalie write(not sure i fully understand), but it sounds like if the allignments are off to the left, then so the mineral etc affects the left side of the body and if off to the right vice versa, not sure if i am even close on this but could explain the left/right affect on body part mineral influence??? Once the mineral influence is in true balance than the allignments well stay in place?? Am I close?? May be way off?? Jennie<>< From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee

[Guest guest]

Yes,

When your atlas is out it goes left or right tucked or tipped and at various rotations, hence the reason some kids are autistic and some are asthmatic and some like my kids major gi stuff. You seee it is where the pressure is on the brain stem and what nerves it effects. If the atlas or axis is out to the right the symptoms often display this on the right side first because that is where the nerve pressure is. My kids leg length was off by 3/8 of an inch Even my 6 month old!! After the adjustment the leg length went to normal. This is because when there is pressure on the brain stem, the body tries to fix it by tensing up and one side of the body actually spasms and causes the leg length descrepancy. My kids have been holding much better since changing the supplements.

This is a really long story. If you look at the pics everything I just told you will make sense, it has been proven. They have some shots of spine scans before and after.

http://www.pacificchiro.com/pacific_chiropractic_and_research/article_autism_asthma.htm

To: miralax Sent: Monday, December 15, 2008 7:13:52 AMSubject: RE: Re: my sadness

can anyone explain this to me? I don't understand this? From: Heidi Dillon <heidi.dillon@ verizon.net>Subject: Re: my sadnessTo: miralax@yahoogroups .comDate: Saturday, December 13, 2008, 7:37 AM

Natural calm comes in a raspberry lemon flavor. It works wonders, doesn¢t taste bad and is ALL NATURAL. See www.petergillham. com. I bought mine at vitamin shoppee