Re: my sadness

[Guest guest]

is 10.

The mass actually turned out to be a huge gas pocket stretching his

color all the way across his belly. The doc surmises this is where the pain is

originating. I was going to clarify that in my first post, but got lost in my

train of thoughts. Thanks for asking.

He was scoped 3 years ago. Nothing except “slow motility.” We’ve

been miralax free for 2 years.

What are “mycotocins?”

From:

miralax [mailto:miralax ] On Behalf Of Jennie

Sent: Sunday, December 07, 2008 5:05 PM

To: miralax

Subject: Re: my sadness

I am so sorry your son is going through this and you

also!! It is so hard!! When you say mass in the belly are you referring to

stool in the intestines or an actual mass in the belly? When our son has been

the worst/impacted we have used the liquid magnesium citrate(hospitals well

use this also). It doesnt taste good, kinda bitter but sure works when

nothing else well. Im not sure how old your son is and hopefully you could

convince him to drink it. They do have grape flavor now(still a lil bitter).

Has he been scoped? I can tell you that it has takin close to 4yrs to finally

see some closer normalcy(with supplementing). The gut needs healing also and

then things slowly start to work better. My son has hirschsprungs and I can

say he is doing pretty darn good even with that. I feel my son not only has

been struggling with the hirschprungs but had a double wammy of gut issues of

bacteria/fungal(antibiotics)/yeast/viral, once these started to clear up then

improvements started to happen. Even his seizures are 99.9% improved from the

mycotoxin clearup. I know this is hard and even seems traumatic at some

times, but it well get better! We are all here for you!! Keep us updated!!

Jennie<><

Subject: my sadness

To: miralax

Date: Sunday, December 7, 2008, 1:55 PM

As

you all know and some have helped out with, our ds has been enduring a huge

back-up. At first, the doc (naturopath) said it’s gastritis caused by

constipation. Which it probably was…ds missed one day of school, came home

early the next because he didn’t feel good. Went to school and church the

next day, then missed the next two days of school and all activities. Pain

was his biggest problem – doubled over, crying, begging me and God to make it

stop. We were giving the rememdies the doc suggested – massive doses of Vit C

(5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended

up where we up all night one night with his pain and crying, so we went to

get an xray at the chiro’s office – the doc is an hour away, chiro is closer.

Xray showed a mass in the middle of his belly and his colon twisted. Called

the doc, he told us to come right away. Got there and another xray showed an

incredible amount of back up – close to impaction. Colon okay, not twisted.

The whole time ds was in incredible pain…writhing, crying, doubled over. Hard

to do an xray that way. The only way out was to go from the bottom up, not

top down as we had been doing. Doc suggested an enema and ds lost it right

there – crying, screaming, begging no…doc sent us home with instructions to

do 3 suppositories a day. Ds had a terrible fit each time…he would scream,

cry and tense up. My dh had to hold him down while I tried to get the

suppository where it was supposed to go – pain still continues, nothing is

happening. TWELVE days of this and NOTHING. He’s poo’ing little poops –

nothing to write home about, though. When does this end? This is our second

major back up this year – I thought I was doing everything right. Food,

supplements, activity, toileting. Everything I thought was right is not – I’m

so confused and sad and in pain because my child is in pain. What am I

supposed to do? Doc says enema won’t help if suppositories are doing nothing.

He says if nothing happens by Monday, surgery might have to happen. I’ve

cried and cried today- trying not to let my kid see me. Don’t want him

worrying more than he is.

This

constipation stuff SUCKS. I’d use stronger words throughout, but out of

respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing

a holistic nutritionist later this week – maybe she’ll have some answers.

We’ve also doubled his water intake – now I worry about hyponatreamia. Good

God.

Thanks

for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh!

While waiting for xray to be read at doc’s office, I showed him the miralax

group. He was VERY impressed –he says he’s going to join. Hope so!! He said

he didn’t realize lay people could generate so much information. Wouldn’t it

be great to have a doc sharing advice? Showed him the files, etc. Showed him

the adverse reaction reports – he had 3 questions:

1.

Are there reports pertaining to PEG, as opposed to EG?

2.

What is the molecular difference between PEG and EG?

3.

Are the adverse reports only on people who used PEG and the other meds

listed or is it a culmination of any kind of adverse reaction to the

medications listed?

[Guest guest]

I know I'm chiming in late here but what you are going through sounds similiar to my son's severe G.I. and bowel symptoms. Sounds like they need to do further testing to find out the core issues but meanwhile this may be helpful. I posted a month ago that we started using flax seeds ground up with a little agave syrup and ghee to bind together and then formed into a little pancake-shape. My son liked the taste and didn't mind the texture and he was pooping a lot. Nothing else had achieved these results!!!! After several weeks of this he began to have foul-smelling gas (which is rare for him) and becasue his G.I. issues are so complex it seemed that some of the flax might be fermenting in there instead of all moving through him (even with the tons of water he was drinking). I spoke with a woman at Hippocrates Wellness Center in florida about all this. They specialize in treating all these disorders through diet. She said to trying soaking whole (organic) flax seed for 12 hours. Use 1 part flax seed to 5 parts water. The flax absorbs a lot of water so after 12 hours stir it up and pour the water off. It will be a little thicker than regular water. I started my son on 2 cups a day, one in the morning and one in the evening. After 4 days of this he is having the healthiest-looking b.m.'s I have seen for him, ever and no more stinky gas. You can use the same flax seeds for 2 or 3 days by just adding water to them. * You must keep this flax/water concoction refrigerated at all times, don't leave it out.

I was going to give it another couple weeks before posting this to make sure he does well on it over time but your story made me want to get you this information to at least think about now. The other thing about this flax water is that it seems to be helping soothe my son's G.I. tract (he was recently diagnosed with colitis).

Hope this helps,

Carole my sadness

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions:

1. Are there reports pertaining to PEG, as opposed to EG?

2. What is the molecular difference between PEG and EG?

3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listed?

[Guest guest]



I'm curious about this. Have just bought a bag of Bob's Red Mill Flax seeds. Is this a dumb question but are they

gluten free?

How do you grind your flax seeds, in a coffee grinder? Are you soaking the seeds whole or ground?

Can you tell me the amount of flax seeds and water your using in cup amounts, etc.

Thanks,

Kathy

my sadness

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions:

1. Are there reports pertaining to PEG, as opposed to EG?

2. What is the molecular difference between PEG and EG?

3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listed?

No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.9.15/1835 - Release Date: 12/7/2008 4:56 PM

[Guest guest]

My husband is an RN and says that an enema should work even when

suppositories will not. An enema should get way up there where a

suppository obviously does not go very far up.

I am so sorry that you are dealing with this. I am sending you a lot

of positive vibes.

I would get him to another doctor who will help you more than this

asap. An enema would sure be better than surgery.

Angi

Happel's wrote:

As you all know and some have helped out with,

our ds

has been enduring a huge back-up. At first, the doc (naturopath) said

it’s

gastritis caused by constipation. Which it probably was…ds missed one

day

of school, came home early the next because he didn’t feel good. Went

to

school and church the next day, then missed the next two days of school

and all

activities. Pain was his biggest problem – doubled over, crying,

begging

me and God to make it stop. We were giving the rememdies the doc

suggested –

massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt

baths and

slippery elm. It ended up where we up all night one night with his pain

and

crying, so we went to get an xray at the chiro’s office – the doc

is an hour away, chiro is closer. Xray showed a mass in the middle of

his belly

and his colon twisted. Called the doc, he told us to come right away.

Got there

and another xray showed an incredible amount of back up – close to

impaction. Colon okay, not twisted. The whole time ds was in incredible

pain…writhing,

crying, doubled over. Hard to do an xray that way. The only way out was

to go

from the bottom up, not top down as we had been doing. Doc suggested an

enema

and ds lost it right there – crying, screaming, begging no…doc sent

us home with instructions to do 3 suppositories a day. Ds had a

terrible fit

each time…he would scream, cry and tense up. My dh had to hold him down

while I tried to get the suppository where it was supposed to go – pain

still

continues, nothing is happening. TWELVE days of this and NOTHING. He’s

poo’ing little poops – nothing to write home about, though. When

does this end? This is our second major back up this year – I thought I

was doing everything right. Food, supplements, activity, toileting.

Everything

I thought was right is not – I’m so confused and sad and in pain

because my child is in pain. What am I supposed to do? Doc says enema

won’t

help if suppositories are doing nothing. He says if nothing happens by

Monday,

surgery might have to happen. I’ve cried and cried today- trying not to

let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger

words

throughout, but out of respect for your poor eyes and brain, I’ll

refrain! J As whiny as it

sounds,

this just isn’t fair. We’re seeing a holistic nutritionist later

this week – maybe she’ll have some answers. We’ve also

doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d

be

willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s

office,

I showed him the miralax group. He was VERY impressed –he says he’s

going to join. Hope so!! He said he didn’t realize lay people could

generate so much information. Wouldn’t it be great to have a doc

sharing

advice? Showed him the files, etc. Showed him the adverse reaction

reports –

he had 3 questions:

1.

Are there reports pertaining to PEG, as

opposed to EG?

2.

What is the molecular difference between

PEG and EG?

3.

Are the adverse reports only on people

who used PEG and

the other meds listed or is it a culmination of any kind of

adverse

reaction to the medications listed?

[Guest guest]

I am confused, why do our kids get backed up and compacted while on

Miralax? The GI put us on it to keep her cleaned out! HA!

>

>

> Subject: my sadness

> To: miralax

> Date: Sunday, December 7, 2008, 1:55 PM

>

> As you all know and some have helped out with, our ds has been

enduring a

> huge back-up. At first, the doc (naturopath) said it's gastritis

caused by

> constipation. Which it probably was.ds missed one day of school,

came home

> early the next because he didn't feel good. Went to school and

church the

> next day, then missed the next two days of school and all

activities. Pain

> was his biggest problem - doubled over, crying, begging me and God

to make

> it stop. We were giving the rememdies the doc suggested - massive

doses of

> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm.

> It ended up where we up all night one night with his pain and

crying, so we

> went to get an xray at the chiro's office - the doc is an hour away,

chiro

> is closer. Xray showed a mass in the middle of his belly and his colon

> twisted. Called the doc, he told us to come right away. Got there and

> another xray showed an incredible amount of back up - close to

impaction.

> Colon okay, not twisted. The whole time ds was in incredible

pain.writhing,

> crying, doubled over. Hard to do an xray that way. The only way out

was to

> go from the bottom up, not top down as we had been doing. Doc

suggested an

> enema and ds lost it right there - crying, screaming, begging no.doc

sent us

> home with instructions to do 3 suppositories a day. Ds had a

terrible fit

> each time.he would scream, cry and tense up. My dh had to hold him down

> while I tried to get the suppository where it was supposed to go - pain

> still continues, nothing is happening. TWELVE days of this and

NOTHING. He's

> poo'ing little poops - nothing to write home about, though. When

does this

> end? This is our second major back up this year - I thought I was doing

> everything right. Food, supplements, activity, toileting. Everything I

> thought was right is not - I'm so confused and sad and in pain

because my

> child is in pain. What am I supposed to do? Doc says enema won't help if

> suppositories are doing nothing. He says if nothing happens by Monday,

> surgery might have to happen. I've cried and cried today- trying not

to let

> my kid see me. Don't want him worrying more than he is.

>

>

>

> This constipation stuff SUCKS. I'd use stronger words throughout,

but out of

> respect for your poor eyes and brain, I'll refrain! J As whiny as it

sounds,

> this just isn't fair. We're seeing a holistic nutritionist later

this week -

> maybe she'll have some answers. We've also doubled his water intake

- now I

> worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I'd be willing to consider

> them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc's office, I showed him the

> miralax group. He was VERY impressed -he says he's going to join.

Hope so!!

> He said he didn't realize lay people could generate so much information.

> Wouldn't it be great to have a doc sharing advice? Showed him the files,

> etc. Showed him the adverse reaction reports - he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and the

other

> meds listed or is it a culmination of any kind of adverse reaction

to the

> medications listed?

>

[Guest guest]

So the flax/water combo -- he drinks the water or eats the soaked

seeds?

To answer 's questions:

Yes flax is gluten free

I grind them in a coffee grinder and then freeze the flaxmeal.

It can be used as an egg substitute - 2 tablespoons of hot water and

1 tablespoon of flaxseed meal - let sit for a few minutes before

using in baking like cookies or breads.

Supposedly it's best if you roast the flax seeds then grind them --

but I rarely take that extra step.

Roasted flax seeds (not ground) are good sprinkled on a salad.

>

> I'm curious about this. Have just bought a bag of Bob's Red Mill

Flax seeds. Is this a dumb question but are they

> gluten free?

> How do you grind your flax seeds, in a coffee grinder? Are you

soaking the seeds whole or ground?

> Can you tell me the amount of flax seeds and water your using in

cup amounts, etc.

> Thanks,

> Kathy

>

>

> my sadness

>

>

>

>

> As you all know and some have helped out with, our ds has been

enduring a huge back-up. At first, the doc (naturopath) said it’s

gastritis caused by constipation. Which it probably was…ds missed

one day of school, came home early the next because he didn’t feel

good. Went to school and church the next day, then missed the next

two days of school and all activities. Pain was his biggest problem

†" doubled over, crying, begging me and God to make it stop. We were

giving the rememdies the doc suggested †" massive doses of Vit C

(5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm.

It ended up where we up all night one night with his pain and crying,

so we went to get an xray at the chiro’s office †" the doc is an

hour away, chiro is closer. Xray showed a mass in the middle of his

belly and his colon twisted. Called the doc, he told us to come right

away. Got there and another xray showed an incredible amount of back

up †" close to impaction. Colon okay, not twisted. The whole time ds

was in incredible pain…writhing, crying, doubled over. Hard to do

an xray that way. The only way out was to go from the bottom up, not

top down as we had been doing. Doc suggested an enema and ds lost it

right there †" crying, screaming, begging no…doc sent us home with

instructions to do 3 suppositories a day. Ds had a terrible fit each

time…he would scream, cry and tense up. My dh had to hold him down

while I tried to get the suppository where it was supposed to go †"

pain still continues, nothing is happening. TWELVE days of this and

NOTHING. He’s poo’ing little poops †" nothing to write home

about, though. When does this end? This is our second major back up

this year †" I thought I was doing everything right. Food,

supplements, activity, toileting. Everything I thought was right is

not †" I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if

suppositories are doing nothing. He says if nothing happens by

Monday, surgery might have to happen. I’ve cried and cried today-

trying not to let my kid see me. Don’t want him worrying more than

he is.

>

>

>

> This constipation stuff SUCKS. I’d use stronger words

throughout, but out of respect for your poor eyes and brain, I’ll

refrain! J As whiny as it sounds, this just isn’t fair. We’re

seeing a holistic nutritionist later this week †" maybe she’ll

have some answers. We’ve also doubled his water intake †" now I

worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I’d be willing to

consider them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc’s office, I showed

him the miralax group. He was VERY impressed †" he says he’s going

to join. Hope so!! He said he didn’t realize lay people could

generate so much information. Wouldn’t it be great to have a doc

sharing advice? Showed him the files, etc. Showed him the adverse

reaction reports †" he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and

the other meds listed or is it a culmination of any kind of adverse

reaction to the medications listed?

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.15/1835 - Release Date:

12/7/2008 4:56 PM

>

[Guest guest]

Talked with the doc today. Surgery is last resort – if nothing

happens by Thurs, then he will sedate and do enema. My son will not tolerate an

enema while awake. Being holistic, the doc also wants to protect my son’s psyche

around this whole issue, which I very much appreciate.

From:

miralax [mailto:miralax ] On Behalf Of Geo

and Angi

Sent: Monday, December 08, 2008 2:49 PM

To: miralax

Subject: Re: my sadness

My husband is an RN and says that an enema should work even when

suppositories will not. An enema should get way up there where a

suppository obviously does not go very far up.

I am so sorry that you are dealing with this. I am sending you a lot of

positive vibes.

I would get him to another doctor who will help you more than this asap.

An enema would sure be better than surgery.

Angi

Happel's wrote:

As

you all know and some have helped out with, our ds has been enduring a huge

back-up. At first, the doc (naturopath) said it’s gastritis caused by

constipation. Which it probably was…ds missed one day of school, came home

early the next because he didn’t feel good. Went to school and church the next

day, then missed the next two days of school and all activities. Pain was his

biggest problem – doubled over, crying, begging me and God to make it stop. We

were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg),

fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we

up all night one night with his pain and crying, so we went to get an xray at

the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a

mass in the middle of his belly and his colon twisted. Called the doc, he told

us to come right away. Got there and another xray showed an incredible amount

of back up – close to impaction. Colon okay, not twisted. The whole time ds was

in incredible pain…writhing, crying, doubled over. Hard to do an xray that way.

The only way out was to go from the bottom up, not top down as we had been

doing. Doc suggested an enema and ds lost it right there – crying, screaming,

begging no…doc sent us home with instructions to do 3 suppositories a day. Ds

had a terrible fit each time…he would scream, cry and tense up. My dh had to

hold him down while I tried to get the suppository where it was supposed to go

– pain still continues, nothing is happening. TWELVE days of this and NOTHING.

He’s poo’ing little poops – nothing to write home about, though. When does this

end? This is our second major back up this year – I thought I was doing

everything right. Food, supplements, activity, toileting. Everything I thought

was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are

doing nothing. He says if nothing happens by Monday, surgery might have to

happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want

him worrying more than he is.

This

constipation stuff SUCKS. I’d use stronger words throughout, but out of respect

for your poor eyes and brain, I’ll refrain! J

As whiny as it sounds, this just isn’t fair. We’re seeing a holistic

nutritionist later this week – maybe she’ll have some answers. We’ve also

doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks

for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh!

While waiting for xray to be read at doc’s office, I showed him the miralax

group. He was VERY impressed –he says he’s going to join. Hope so!! He said he

didn’t realize lay people could generate so much information. Wouldn’t it be

great to have a doc sharing advice? Showed him the files, etc. Showed him the

adverse reaction reports – he had 3 questions:

1.

Are there reports pertaining to PEG, as opposed to EG?

2.

What is the molecular difference between PEG and EG?

3.

Are the adverse reports only on people who used PEG and the other meds

listed or is it a culmination of any kind of adverse reaction to the

medications listed?

[Guest guest]

Hellish - I sure feel sorry for your son having to endure all this!

Even so, I wish I could've gotten the doctor to sedate my l.o when she

needed an enema - she freaked out about it too!

>

> As you all know and some have helped out with, our ds has been

enduring a

> huge back-up. At first, the doc (naturopath) said it's gastritis

caused by

> constipation. Which it probably was.ds missed one day of school,

came home

> early the next because he didn't feel good. Went to school and

church the

> next day, then missed the next two days of school and all

activities. Pain

> was his biggest problem - doubled over, crying, begging me and God

to make

> it stop. We were giving the rememdies the doc suggested - massive

doses of

> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm.

> It ended up where we up all night one night with his pain and

crying, so we

> went to get an xray at the chiro's office - the doc is an hour away,

chiro

> is closer. Xray showed a mass in the middle of his belly and his colon

> twisted. Called the doc, he told us to come right away. Got there and

> another xray showed an incredible amount of back up - close to

impaction.

> Colon okay, not twisted. The whole time ds was in incredible

pain.writhing,

> crying, doubled over. Hard to do an xray that way. The only way out

was to

> go from the bottom up, not top down as we had been doing. Doc

suggested an

> enema and ds lost it right there - crying, screaming, begging no.doc

sent us

> home with instructions to do 3 suppositories a day. Ds had a

terrible fit

> each time.he would scream, cry and tense up. My dh had to hold him down

> while I tried to get the suppository where it was supposed to go - pain

> still continues, nothing is happening. TWELVE days of this and

NOTHING. He's

> poo'ing little poops - nothing to write home about, though. When

does this

> end? This is our second major back up this year - I thought I was doing

> everything right. Food, supplements, activity, toileting. Everything I

> thought was right is not - I'm so confused and sad and in pain

because my

> child is in pain. What am I supposed to do? Doc says enema won't help if

> suppositories are doing nothing. He says if nothing happens by Monday,

> surgery might have to happen. I've cried and cried today- trying not

to let

> my kid see me. Don't want him worrying more than he is.

>

>

>

> This constipation stuff SUCKS. I'd use stronger words throughout,

but out of

> respect for your poor eyes and brain, I'll refrain! J As whiny as it

sounds,

> this just isn't fair. We're seeing a holistic nutritionist later

this week -

> maybe she'll have some answers. We've also doubled his water intake

- now I

> worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I'd be willing to consider

> them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc's office, I showed him the

> miralax group. He was VERY impressed -he says he's going to join.

Hope so!!

> He said he didn't realize lay people could generate so much information.

> Wouldn't it be great to have a doc sharing advice? Showed him the files,

> etc. Showed him the adverse reaction reports - he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and the

other

> meds listed or is it a culmination of any kind of adverse reaction

to the

> medications listed?

>

[Guest guest]

,

I'm so sorry.............have you ever had the barium enema to see what and where it's twisted? I have heard of another child that this happened to, he was autistic. they put him on Miralax and now has EE..................I feel your pain, thank God our situation never got to that level. I can relate though, it sucks when there's someone suffering and nothing you can do. Peppermint in hot water sooths the tummy if that helps. When we were little and had a tummy ache, my mom bought liquid peppermint and added it to hot water, just a dash, it does help.................Since you've tried everything under the sun.............you might want to look into Shaklee's herb-lax, you can put it in applesauce. Talk to someone before giving in case he has a serious condition, but it's always worked in our family for years.....

Directions

Adults and children 12 years of age and older: 4 tablets once or twice a day. Children under 12 years old, consult a doctor.

Key Ingredients

Senna, senna leaf, buckthorn, culver's root, licorice, fennel, anise, rhubarb, blue malva

Warnings

Ask a doctor before use if you have experienced nausea, abdominal pain, vomiting, or a sudden change in bowel habits that lasts over a period of 2 weeks. If pregnant or nursing, ask a health care professional before use. Stop use and ask a doctor: If you need to use a laxative for more than 1 week. If rectal bleeding or failure to have a bowel movement after use of this product. occurs which may indicate a serious condition.

http://www.shaklee.net/ahealthybargain/product/HerbLax?OVRAW=shaklee%20herblax & OVKEY=shaklee%20herblax & OVMTC=standard & OVADID=21315392021 & OVKWID=18249046521---

Subject: my sadnessTo: miralax Date: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions:

1. Are there reports pertaining to PEG, as opposed to EG?

2. What is the molecular difference between PEG and EG?

3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

Just an update on this whole situation:

We are going on three weeks without a bm. This is with mineral

oil, 5000mg/day of Vitamin C and enemas. Nothing. Today we start a different

kind of enema, 3x/day. If nothing continues to happen, he’ll go in on

Monday for an NG tube and GoLytely. Please pray he unblocks this weekend.

His last xray (was on Wed) showed stool backed up to almost the

top of his small intestine. It looks so awful!

Surprisingly, however, he’s eating like a horse and

running around like a crazy boy. He had the lead in the school play last night

and rocked the house – all with a ton of stool! We have a friend who’s

a pediatrician. She saw his xray and said she’s never seen someone so

backed up and functioning so normally. Leave it to my kid to confound the

doctors! J We

are muddling through this – my job has been so understanding and lets me

have time off but we have some really difficult times, like when we’re

giving an enema or the pain strikes and ds is in my arms crying, begging me to

make it stop. That just tears my heart into pieces cuz there’s nothing I

can do. Hopefully it’ll all be over soon and then we can focus on

rehealing his gut.

From:

miralax [mailto:miralax ] On Behalf Of jeanie

ward

Sent: Friday, December 12, 2008 7:24 AM

To: miralax

Subject: Re: my sadness

,

I'm so sorry.............have you ever had the barium

enema to see what and where it's twisted? I have heard of another child that

this happened to, he was autistic. they put him on Miralax and now has

EE..................I feel your pain, thank God our situation never got

to that level. I can relate though, it sucks when there's someone suffering

and nothing you can do. Peppermint in hot water sooths the tummy if that

helps. When we were little and had a tummy ache, my mom bought liquid

peppermint and added it to hot water, just a dash, it does help.................Since

you've tried everything under the sun.............you might want to look into

Shaklee's herb-lax, you can put it in applesauce. Talk to someone before

giving in case he has a serious condition, but it's always worked in our

family for years.....

Directions

Adults and children 12 years of age and older: 4 tablets

once or twice a day. Children under 12 years old, consult a doctor.

Key Ingredients

Senna, senna leaf, buckthorn, culver's root, licorice,

fennel, anise, rhubarb, blue malva

Warnings

Ask a doctor before use if you have experienced nausea,

abdominal pain, vomiting, or a sudden change in bowel habits that lasts

over a period of 2 weeks. If pregnant or nursing, ask a health care

professional before use. Stop use and ask a doctor: If you need to use a

laxative for more than 1 week. If rectal bleeding or failure to have a

bowel movement after use of this product. occurs which may indicate a

serious condition.

http://www.shaklee.net/ahealthybargain/product/HerbLax?OVRAW=shaklee%20herblax & OVKEY=shaklee%20herblax & OVMTC=standard & OVADID=21315392021 & OVKWID=18249046521

From: Happel's

Subject: my sadness

To: miralax

Date: Sunday, December 7, 2008, 3:55 PM

As

you all know and some have helped out with, our ds has been enduring a huge

back-up. At first, the doc (naturopath) said it’s gastritis caused by

constipation. Which it probably was…ds missed one day of school, came

home early the next because he didn’t feel good. Went to school and

church the next day, then missed the next two days of school and all

activities. Pain was his biggest problem – doubled over, crying,

begging me and God to make it stop. We were giving the rememdies the doc

suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil,

Epsom salt baths and slippery elm. It ended up where we up all night one

night with his pain and crying, so we went to get an xray at the

chiro’s office – the doc is an hour away, chiro is closer. Xray

showed a mass in the middle of his belly and his colon twisted. Called the doc,

he told us to come right away. Got there and another xray showed an

incredible amount of back up – close to impaction. Colon okay, not

twisted. The whole time ds was in incredible pain…writhing, crying,

doubled over. Hard to do an xray that way. The only way out was to go from

the bottom up, not top down as we had been doing. Doc suggested an enema and

ds lost it right there – crying, screaming, begging no…doc sent

us home with instructions to do 3 suppositories a day. Ds had a terrible fit

each time…he would scream, cry and tense up. My dh had to hold him down

while I tried to get the suppository where it was supposed to go – pain

still continues, nothing is happening. TWELVE days of this and NOTHING.

He’s poo’ing little poops – nothing to write home about,

though. When does this end? This is our second major back up this year

– I thought I was doing everything right. Food, supplements, activity,

toileting. Everything I thought was right is not – I’m so

confused and sad and in pain because my child is in pain. What am I supposed

to do? Doc says enema won’t help if suppositories are doing nothing. He

says if nothing happens by Monday, surgery might have to happen. I’ve

cried and cried today- trying not to let my kid see me. Don’t want him

worrying more than he is.

This

constipation stuff SUCKS. I’d use stronger words throughout, but out of

respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just

isn’t fair. We’re seeing a holistic nutritionist later this week

– maybe she’ll have some answers. We’ve also doubled his

water intake – now I worry about hyponatreamia. Good God.

Thanks

for listening. If you have any ideas, I’d be willing to consider them.

Tracie

Oh!

While waiting for xray to be read at doc’s office, I showed him the

miralax group. He was VERY impressed –he says he’s going to join.

Hope so!! He said he didn’t realize lay people could generate so much

information. Wouldn’t it be great to have a doc sharing advice? Showed

him the files, etc. Showed him the adverse reaction reports – he had 3

questions:

1.

Are there reports pertaining to PEG, as opposed to EG?

2.

What is the molecular difference between PEG and EG?

3.

Are the adverse reports only on people who used PEG and the other meds

listed or is it a culmination of any kind of adverse reaction to the

medications listdd?

[Guest guest]

Tracie, Im so sorry your ds is going through all this! I suspect 2 things if you have been loading all the movers in him and still nothing. 1st is, a blockage, have you done the magnesium citrate liquid? Do you think you could get him to drink it(they do have grape/not as bitter). This is what is used(if not the golighlty/PEG), infact the norm befor they started PEG's was magnesium citrate. It really is good with the hard stuff/blockages. 2nd is, damaged or absent nerves, with my son his stool would be so loose and still wouldnt move. We learned that with the nerve issues the stool can be loose and not move(you need contractions to move/this would be the nerve issue/our son is missing the nerves!). You mentioned enemas also, we now no why they wouldnt work much either. Our sons nerve issue is at the first few inches up into the rectum(this seems to be typical

if it is a nerve issue). This may sound odd, but while enemas didnt directly get things moving(unless he was so full/liquified it just eventually came out), our gastro while my son was in the hospital was bloating severe(no blockage) pure liquid stool, while on peg for 2 days(didnt realize goligthly was PEG at that time) and enemas(stat exrays showed no blockage), nothing, took what is considered an adult nasal tool. It is a very soft flexable tube(softer than enemas), he inserted and WOW, blowout city. What this did is bypass the dead/missing nerves at the entrance about 5 inches and let it all out through the tube. We have done this a hand full of times if nothing is happening. Im not sure how to get these without doc script, if anyone is interested in testing this method maybe we can find out how to get them. Im thinking when a child no matter how much is put in them to get things moving/cronic/been going on with this for months etc and nothing

works this would be a good test first without having to go through all the other hell of hospitals, biopsies etc. As I mentioned this is softer than even enemas and if the children are induring enemas anyways this could be helpful/give clues to what might be going on(wont work if lower blockage). Our gastro said the adult nasal tube(I think he called it a flute) is the perfect size for children. If it resorts to tubing(is NG the nasal tube?) you can request the magnesium citrate verses the golightly(PEG) as I mentioned, befor the PEG became the commen use, they used the mag citrate. Your son is in my prayers!! Jennie<><

From: Happel's <ctajcharter (DOT) net>Subject: my sadnessTo: miralax@yahoogroups .comDate: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them. Tracie Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions: 1. Are there reports pertaining to PEG, as opposed to EG? 2. What is the molecular difference between PEG and EG? 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

Golytely is PEG, can't they give mag citrate or phosphate soda?

From: Happel's <ctajcharter (DOT) net>Subject: my sadnessTo: miralax@yahoogroups .comDate: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to consider them. Tracie Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions: 1. Are there reports pertaining to PEG, as opposed to EG? 2. What is the molecular difference between PEG and EG? 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

If it comes to it, I will ask for mag citrate. Even with the colors

and additives, it’s better than PEG!

From:

miralax [mailto:miralax ] On Behalf Of jeanie

ward

Sent: Friday, December 12, 2008 3:10 PM

To: miralax

Subject: RE: my sadness

Golytely is PEG, can't they give mag citrate or phosphate

soda?

From: Happel's <ctajcharter (DOT) net>

Subject: my sadness

To: miralax@yahoogroups .com

Date: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been

enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis

caused by constipation. Which it probably was…ds missed one day of school,

came home early the next because he didn’t feel good. Went to school and

church the next day, then missed the next two days of school and all

activities. Pain was his biggest problem – doubled over, crying, begging me

and God to make it stop. We were giving the rememdies the doc suggested –

massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths

and slippery elm. It ended up where we up all night one night with his pain

and crying, so we went to get an xray at the chiro’s office – the doc is an

hour away, chiro is closer. Xray showed a mass in the middle of his belly

and his colon twisted. Called the doc, he told us to come right away. Got

there and another xray showed an incredible amount of back up – close to

impaction. Colon okay, not twisted. The whole time ds was in incredible

pain…writhing, crying, doubled over. Hard to do an xray that way. The only

way out was to go from the bottom up, not top down as we had been doing.

Doc suggested an enema and ds lost it right there – crying, screaming,

begging no…doc sent us home with instructions to do 3 suppositories a day.

Ds had a terrible fit each time…he would scream, cry and tense up. My dh

had to hold him down while I tried to get the suppository where it was

supposed to go – pain still continues, nothing is happening. TWELVE days of

this and NOTHING. He’s poo’ing little poops – nothing to write home about,

though. When does this end? This is our second major back up this year – I

thought I was doing everything right. Food, supplements, activity, toileting.

Everything I thought was right is not – I’m so confused and sad and in pain

because my child is in pain. What am I supposed to do? Doc says enema won’t

help if suppositories are doing nothing. He says if nothing happens by

Monday, surgery might have to happen. I’ve cried and cried today- trying

not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but

out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just

isn’t fair. We’re seeing a holistic nutritionist later this week – maybe

she’ll have some answers. We’ve also doubled his water intake – now I worry

about hyponatreamia. Good God.

Thanks for listening. If you have any ideas, I’d be willing to

consider them.

Tracie

Oh! While waiting for xray to be read at doc’s office, I showed him

the miralax group. He was VERY impressed –he says he’s going to join. Hope

so!! He said he didn’t realize lay people could generate so much information.

Wouldn’t it be great to have a doc sharing advice? Showed him the files,

etc. Showed him the adverse reaction reports – he had 3 questions:

1.

Are there reports pertaining to PEG, as opposed to EG?

2.

What is the molecular difference between PEG and EG?

3.

Are the adverse reports only on people who used PEG and the other

meds listed or is it a culmination of any kind of adverse reaction

to the medications listdd?

[Guest guest]

They have clear form of citrate(no coloring). Most likely just a little preservative.

From: Happel's <ctajcharter (DOT) net>Subject: my sadnessTo: miralax@yahoogroups .comDate: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God. Thanks for listening. If you have any ideas, I’d be willing to consider them. Tracie Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions: 1. Are there reports pertaining to PEG, as opposed to EG? 2. What is the molecular difference between PEG and EG? 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

the cherry contains peg

From: Happel's <ctajcharter (DOT) net>Subject: my sadnessTo: miralax@yahoogroups .comDate: Sunday, December 7, 2008, 3:55 PM

As you all know and some have helped out with, our ds has been enduring a huge back-up. At first, the doc (naturopath) said it’s gastritis caused by constipation. Which it probably was…ds missed one day of school, came home early the next because he didn’t feel good. Went to school and church the next day, then missed the next two days of school and all activities. Pain was his biggest problem – doubled over, crying, begging me and God to make it stop. We were giving the rememdies the doc suggested – massive doses of Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and slippery elm. It ended up where we up all night one night with his pain and crying, so we went to get an xray at the chiro’s office – the doc is an hour away, chiro is closer. Xray showed a mass in the middle of his belly and his colon twisted. Called the doc, he told us to come right away. Got there and another xray showed an incredible

amount of back up – close to impaction. Colon okay, not twisted. The whole time ds was in incredible pain…writhing, crying, doubled over. Hard to do an xray that way. The only way out was to go from the bottom up, not top down as we had been doing. Doc suggested an enema and ds lost it right there – crying, screaming, begging no…doc sent us home with instructions to do 3 suppositories a day. Ds had a terrible fit each time…he would scream, cry and tense up. My dh had to hold him down while I tried to get the suppository where it was supposed to go – pain still continues, nothing is happening. TWELVE days of this and NOTHING. He’s poo’ing little poops – nothing to write home about, though. When does this end? This is our second major back up this year – I thought I was doing everything right. Food, supplements, activity, toileting. Everything I thought was right is not – I’m so confused and sad and in pain because my child is in

pain. What am I supposed to do? Doc says enema won’t help if suppositories are doing nothing. He says if nothing happens by Monday, surgery might have to happen. I’ve cried and cried today- trying not to let my kid see me. Don’t want him worrying more than he is.

This constipation stuff SUCKS. I’d use stronger words throughout, but out of respect for your poor eyes and brain, I’ll refrain! J As whiny as it sounds, this just isn’t fair. We’re seeing a holistic nutritionist later this week – maybe she’ll have some answers. We’ve also doubled his water intake – now I worry about hyponatreamia. Good God. Thanks for listening. If you have any ideas, I’d be willing to consider them. Tracie Oh! While waiting for xray to be read at doc’s office, I showed him the miralax group. He was VERY impressed –he says he’s going to join. Hope so!! He said he didn’t realize lay people could generate so much information. Wouldn’t it be great to have a doc sharing advice? Showed him the files, etc. Showed him the adverse reaction reports – he had 3 questions: 1. Are there reports pertaining to PEG, as opposed to EG? 2. What is the molecular difference between PEG and EG? 3. Are the adverse reports only on people who used PEG and the other meds listed or is it a culmination of any kind of adverse reaction to the medications listdd?

[Guest guest]

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wonders, doesn’t taste bad and is ALL NATURAL. See www.petergillham.com. I bought mine at

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[Guest guest]

>

> From: Happel's <ctajcharter (DOT) net>

> Subject: my sadness

> To: miralax@yahoogroups .com

> Date: Sunday, December 7, 2008, 3:55 PM

>

> As you all know and some have helped out with, our ds has been

enduring a

> huge back-up. At first, the doc (naturopath) said it's gastritis

caused by

> constipation. Which it probably was.ds missed one day of school,

came home

> early the next because he didn't feel good. Went to school and

church the

> next day, then missed the next two days of school and all

activities. Pain

> was his biggest problem - doubled over, crying, begging me and God

to make

> it stop. We were giving the rememdies the doc suggested - massive

doses of

> Vit C (5000 mg), fish oil, mineral oil, Epsom salt baths and

slippery elm.

> It ended up where we up all night one night with his pain and

crying, so we

> went to get an xray at the chiro's office - the doc is an hour

away, chiro

> is closer. Xray showed a mass in the middle of his belly and his

colon

> twisted. Called the doc, he told us to come right away. Got there

and

> another xray showed an incredible amount of back up - close to

impaction.

> Colon okay, not twisted. The whole time ds was in incredible

pain.writhing,

> crying, doubled over. Hard to do an xray that way. The only way out

was to

> go from the bottom up, not top down as we had been doing. Doc

suggested an

> enema and ds lost it right there - crying, screaming, begging

no.doc sent us

> home with instructions to do 3 suppositories a day. Ds had a

terrible fit

> each time.he would scream, cry and tense up. My dh had to hold him

down

> while I tried to get the suppository where it was supposed to go -

pain

> still continues, nothing is happening. TWELVE days of this and

NOTHING. He's

> poo'ing little poops - nothing to write home about, though. When

does this

> end? This is our second major back up this year - I thought I was

doing

> everything right. Food, supplements, activity, toileting.

Everything I

> thought was right is not - I'm so confused and sad and in pain

because my

> child is in pain. What am I supposed to do? Doc says enema won't

help if

> suppositories are doing nothing. He says if nothing happens by

Monday,

> surgery might have to happen. I've cried and cried today- trying

not to let

> my kid see me. Don't want him worrying more than he is.

>

>

>

> This constipation stuff SUCKS. I'd use stronger words throughout,

but out of

> respect for your poor eyes and brain, I'll refrain! J As whiny as

it sounds,

> this just isn't fair. We're seeing a holistic nutritionist later

this week -

> maybe she'll have some answers. We've also doubled his water

intake - now I

> worry about hyponatreamia. Good God.

>

>

>

> Thanks for listening. If you have any ideas, I'd be willing to

consider

> them.

>

>

>

> Tracie

>

>

>

> Oh! While waiting for xray to be read at doc's office, I showed him

the

> miralax group. He was VERY impressed -he says he's going to join.

Hope so!!

> He said he didn't realize lay people could generate so much

information.

> Wouldn't it be great to have a doc sharing advice? Showed him the

files,

> etc. Showed him the adverse reaction reports - he had 3 questions:

>

> 1. Are there reports pertaining to PEG, as opposed to EG?

>

> 2. What is the molecular difference between PEG and EG?

>

> 3. Are the adverse reports only on people who used PEG and

the other

> meds listed or is it a culmination of any kind of adverse reaction

to the

> medications listdd?

>