Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 asked: I have a question, I keep reading about tetherered cord surgeries, has anyone had one by Dr. Oro. Does he do them too? I've just been hearing about the Dr.s in NY. Also, why do people have a lot of CSF leakage as a result. Is there a way to prevent that. I have a consultation scheduled with Dr. Oro for the end of the year. Kathleen's response: I believe Dr. Oro does do TCS surgery. We had a member post about it recently. The question is more, do other doctors perform Occult Tethered Cord surgery. I will ask this to all of our experts when I send questions. As for leaks, our brain and spinal cord are wrapped in three layers called Pia, Arachnoid, and Dura. The Dura is the outermost layer. The dura is as thin as Saran Wrap. In my case it had been compressed for so many years, it was more like cheese cloth. Just driving a suture into the dura can cause a leak. There are many sutures that help hold the patch in place. Some surgeons have different techniques that help, and various glues are being tested to see if they will help. Here is a link discussing the various meninges. http://www.becomehealthynow.com/article/bodynervousadvanced/813/ TCI also has a relatively new video on TCS. I recommend everyone listen to it. http://www.chiariinstitute.com/ Dr. Oro also has a section on TCS in his Frequently asked questions: http://www.chiaricare.com/Learning/Learning.html Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Quote Link to comment Share on other sites More sharing options...
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