Frustraion part 2

[Guest guest]

Ok so..I went to see the Neurologist yesterday morning and he said I

have Chiari and gave me Topomax and said come see me in two weeks.

If the Topomax doesnt work there are lots of different medicines and

that it is trial and error.

That to me was my answer that I was not having surgery. When I got

home I called my insurance to see if I could get things rolling at

TCI. The insurance lady was very taken back that the Neurosurgeon

had done that to me. I asked her what my options were she said I

have to go to UCSF or Stanford for a second oppinion because they

are considered a center of excellence. If they are not able and or

willing to help me then I can go to TCI and insurance will pay for

it.

After I hung up with insurance I recieved a call from my

neurosurgeon saying he just recieved a call from insurance saying I

was upset about what has happened. He said that my surgery was still

scheduled for Saturday. " I said I was upset " , " I felt like there was

a second guess at the last minute " . His exact reply was " You have

your referal to Stanford good bye " .Then he hung up.

I called insurance back asking why I just got a very upsetting and

rude call from my neurosurgeon? She documented everything and

apparently he told insurance that I was sent to the Nuerologist for

a second oppinion...? My husband and I swear that those words never

came out of his mouth. He adked me " have you ever been treated for

migraines " ? I said Yes I have been on Imitrex, Fioricet and Midrin.

He said " Have you been treated by a Neurologist for migrains " ? I

said no. He gave my husband and I a moment to talk things over by

ourselves...I cried. He came back in and said your appointment is

tomorrow at 8:15. His front desk even ask when is your surgery so

that I can make your appointments for post op stuff, I said I have

no idea and I just cried and cried!

Does anyone know anyone in California at UCSF or Stanford? I am

feeling depressed at this point and I am feeling like maybe this is

my fault???? AHHHH I am so sorry for this mess!

Meg-Reno,NV